Posted 27 November 2011 - 09:40 PM
Posted 27 November 2011 - 10:03 PM
Posted 28 November 2011 - 03:15 AM
Simply put, celiac can wax and wane throughout a person's lifetime. Even though mine was triggered when I was 11, I went through periods of feeling quite well followed by periods of poor health. Since it's an autoimmune disease, celiac can vary over time.
This was my experience also until the symptoms became a steadily increasing torture when I was in my thirties. I was triggered at around 4 or 5 years when I developed severe DH but I had C since as long as my Mom could remember.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 28 November 2011 - 03:59 AM
Posted 28 November 2011 - 11:43 AM
Posted 28 November 2011 - 11:46 AM
Posted 28 November 2011 - 12:30 PM
Posted 28 November 2011 - 02:24 PM
Likewise, when she was healing, she was doing well, then she would have a few days of regurgitation, then she was fine for a month, then a few days of regurgitation . . . until finally she was symptom free. It was frustrating because every time that happened, I assumed she had gotten glutened somehow. In hindsight, she was just still in the process of healing.
Experience is what you get when you didn't get what you wanted.
Posted 28 November 2011 - 02:38 PM
Had GI symptoms, allergy symptoms and unexplained illness my whole life.
Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!
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