Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

What Blood Tests Are Carried In The Us To Diagnose Celiac Disease?


UK mum

Recommended Posts

UK mum Newbie

My daughter has had a blood test for celiac disease which came back negative. She was on a gluten diet for 6 weeks before the test, which was very difficult and she missed a lot of school. We were advised to continue the gluten diet for a further 6weeks and then the test would be repeated. We did not do this as it makes her feel very ill and low.

Are there different tests that are used in the US in which the patient does not need to be on a gluten diet for such a long time ?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

When the Univ of Chicago Celiac Center does it's free testing, they require you be on a regular gluten diet for 3 months.

Link to comment
Share on other sites
Skylark Collaborator

Sorry, there isn't any valid diagnostic testing in the US that works gluten-free.

Some people pay for Enterolab because it's very sensitive and can sometimes pick up antibodies in people eating low amounts of gluten, but Enterolab has never properly validated their tests as medical diagnostic tests. They seem to have a very high false positive rate. Doctors won't (and really can't) diagnose celiac from Enterolab results.

Link to comment
Share on other sites
Ellie84 Apprentice

It's the same test everywhere: they test for the antibodies the immune system makes when a person with celiac disease eats gluten. This blood test is then followed by a biopsy. Until the biopsy has been done the patient needs to eat gluten.

My doctor made a huge mistake in this and put me on a gluten-free diet in advance, my GI couldn't test for anything then. I had to do a gluten provocation for at least 8 weeks, but was hospitalised after only 3. This whole process delayed my diagnosis by a year.

I know it must feel horrible to give your child gluten, but it's very important to get through this period so she'll be diagnosed swiftly. *Hugs*

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,458
    • Most Online (within 30 mins)
      7,748

    RUTHANN BRANOFF
    Newest Member
    RUTHANN BRANOFF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...