Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Answers For Nausea
0

19 posts in this topic

I posted before that I was nauseous for like a month and we finally figured out it was my supplements.

I went off iron and felt a little better but I've still been having problems. My gut is so sensitive I am on a bland diet again and I've been off iron for a week.

After Chad posted that his Vitamin D had soy in it, I decided to do some checking. Turns out my vitamin D was made from soybean oil and I have very bad intolerance to soy. I had checked for gluten but not soy.

I took it for about a month!!!! It feels like when I first went gluten free and so many things bothered me. I wonder if soy causes damage to the villi. Anybody know?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I posted before that I was nauseous for like a month and we finally figured out it was my supplements.

I went off iron and felt a little better but I've still been having problems. My gut is so sensitive I am on a bland diet again and I've been off iron for a week.

After Chad posted that his Vitamin D had soy in it, I decided to do some checking. Turns out my vitamin D was made from soybean oil and I have very bad intolerance to soy. I had checked for gluten but not soy.

I took it for about a month!!!! It feels like when I first went gluten free and so many things bothered me. I wonder if soy causes damage to the villi. Anybody know?

Other things can, but I don't remember or recall reading about soy causing atrophy.

0

Share this post


Link to post
Share on other sites

Other things can, but I don't remember or recall reading about soy causing atrophy.

Good. Then it's just irritation. What a bummer. I was so overwhelmed with getting out of a long hospital stay and dealing with new illness and whatnot, I read the label and it said wheat free, gluten free and dairy free and I didn't read further. I can't believe I did that to myself.

0

Share this post


Link to post
Share on other sites

I read this in an article I bookmarked from Medscape. I believe the authors are gastroenterologists from Sweden.

http://www.medscape.com/viewarticle/405488_2

In part, it says:

"Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data."

I am not sure it means that your recent reaction is because of villous blunting, but maybe just your intolerance to soy is flaring up??

Off the subject a bit, but I have to take D myself because of a major deficiency and I use NOW brands. No soy, gluten, dairy, etc. :)

Hope your nausea clears up pronto!

0

Share this post


Link to post
Share on other sites

Thanks Irishheart. I will get NOW brand.

0

Share this post


Link to post
Share on other sites




Thanks Irishheart. I will get NOW brand.

I pestered the company to make sure and they wrote me a nice email explaining their testing procedure. Chemist hubby insisted we test all my supps with glutentox kit--tests for less than 5ppm . (for whatever that is worth) All "good to go"!

We take no chances!! :lol:

0

Share this post


Link to post
Share on other sites

I pestered the company to make sure and they wrote me a nice email explaining their testing procedure. Chemist hubby insisted we test all my supps with glutentox kit--tests for less than 5ppm . (for whatever that is worth) All "good to go"!

We take no chances!! :lol:

Your hubby is a keeper!

0

Share this post


Link to post
Share on other sites

We just did the gastrointestinal tract at Uni. When damage occurs it becomes difficult for the gut lining to keep things out of the blood that shouldn't be there. It might be you are reacting to the absorption of larger soy molecules than normal. It's also possible that you are reacting to the oestrogenic effects soy has. Have you had any problems with oestrogen recently? If your docs can balance your hormones you may get some relief and find that you can eat things you have been sensitive to (not gluten!). I am taking a herbal remedy that I can say is really helping me. I am behaving better this end of cycle than I have done in years - and I'm not wanting to hate/slander my estranged husband so something must be working! The heat/sweats I was feeling have disappeared and I am now able to eat cheese! Only been on it eight days (the remedy that is, not the cheese!)

1

Share this post


Link to post
Share on other sites

Your hubby is a keeper!

Oh boy, is he ever! :lol: and he makes the best gluten-free bread, too. :)

If I had not had him to keep me sane the last five years of this nightmare, I do not know what would have become of me.

He's my rock and my heartbeat.

Fortunately, he stuck by me when I became so inexplicably ill and incapacitated. Sadly, so many others on here report otherwise. What a shame. Who kicks someone when they are down--when they need them the most? :o Tragic.

I tell him every day how grateful I am that he never gave up on me. He thanks ME for persisting in getting answers and saving my own life. ;)

Hope you feel better soon! :)

0

Share this post


Link to post
Share on other sites

We just did the gastrointestinal tract at Uni. When damage occurs it becomes difficult for the gut lining to keep things out of the blood that shouldn't be there. It might be you are reacting to the absorption of larger soy molecules than normal. It's also possible that you are reacting to the oestrogenic effects soy has.

Excellent point! Thanks for posting this. I think this is often overlooked when people wonder why they still do not feel so well, even after giving up gluten. As long as there is still damage, there will still be system-wide issues.

Had nearly the same conversation with my GI doc at the last check up. I keep asking him why I react so violently to medications and why I have so much muscle/tissue pain and he said....damage from celiac and gluten toxicity can cause all of that. Be patient. It will resolve. (yeah, okay, doc ---easy for you to say. I'm in pain hell. :rolleyes: )

This is also why I do not consume soy. Wreaks havoc with the hormone levels :angry: .

0

Share this post


Link to post
Share on other sites

I have been feeling so sad about this. So upset that I did this to myself. I was just so overwhelmed with everything going on at the time.

I went off the iron and Vitamin D a week ago and it's getting a bit better but still not great. Still nauseous today and my appetite is low. GI doc said all my blood tests were good. Celiac titers good, so it's just a matter of wait and let it heal.

I did this 2 years ago healing from gluten and now this. So so sad. I did some crying today like I do everyday lately.

Slogging through the days feeling bad sucks. I was doing so well until mid September. Then my world crashed. My hormones went nuts. I ended up in the hospital and it's been one thing after another since then.

I'm getting off this roller coaster! I want to ride the kiddie rides now.

0

Share this post


Link to post
Share on other sites

I'm getting off this roller coaster! I want to ride the kiddie rides now.

I hear you--- and me too, kiddo. Me too! <_< I am so tired of always feeling like crap and having SO many ramifications from long unDXed celiac. It seems endless but I never give up.

I just keep hanging on.

Best wishes to you. Get better soon.

0

Share this post


Link to post
Share on other sites

Wishing you well! Hope you feel better soon!

(I've done this too. I got so excited by Udi's chocolate chip cookies at the store one day that they didn't have gluten or soy in them that I didn't see the big fat glaring word "butter." Body was quite unhappy.)

0

Share this post


Link to post
Share on other sites

Ditto Bigbird and irishheart. Hope you feel better soon sandsurfgirl! It's tough. Sounds like you are going through a low patch. Any time you need to talk, luckily you have all of us!!!

0

Share this post


Link to post
Share on other sites

Ditto Bigbird and irishheart. Hope you feel better soon sandsurfgirl! It's tough. Sounds like you are going through a low patch. Any time you need to talk, luckily you have all of us!!!

You guys are a lifeline! I was pretty down today. I went to the park with a bunch of moms and kids and that made me feel so much better. We homeschool, so that is extra challenge on top of everything else.

0

Share this post


Link to post
Share on other sites

Slogging through the days feeling bad sucks. I was doing so well until mid September. Then my world crashed. My hormones went nuts. I ended up in the hospital and it's been one thing after another since then.

You wrote this part in a prior post, but I did not wish to pry. I am wondering...Is there another illness going on that would explain your recent bout with gut/nausea issues besides soybean oil??

0

Share this post


Link to post
Share on other sites

You wrote this part in a prior post, but I did not wish to pry. I am wondering...Is there another illness going on that would explain your recent bout with gut/nausea issues besides soybean oil??

My adrenal glands weren't making enough aldosterone which regulates kidney function. It took 3 weeks to figure out what was going on and in that time my kidneys were dumping my salt and water. Eventually I was so dehydrated and my electrolytes were scary low. I ended up in the hospital for 10 days. For 7 days they were waiting on labs to figure out what was wrong.

I have to wonder if celiac affected my adrenal glands.

They also found an adrenal tumor and I'm being tested for Cushings, which is a tumor on the adrenal or pituitary gland that secretes its own cortisol. So far it's looking like I probably don't have it, buy they are being very thorough in testing me. Again, gotta wonder about celiac being related.

I got stable on the medication for the aldosterone deficiency, but then they raised my thyroid meds too high and for the first week out of the hospital I was very sick from that.

Then I got really nauseous after going on the supplements but I got the flu at the same time. They blamed the flu for 3 weeks. The flu went away and the nausea stayed. That's when I figured out the iron and the vitamin D with soybean oil had been trashing my gut for an entire MONTH! So frustrating.

All together it's been 10 weeks of health issues. If I hadn't been taking the iron and vitamin D I would be doing great now. But now I have gut healing to do.... again. Been there done that and I don't want to be there again. Waaaa!

0

Share this post


Link to post
Share on other sites

Well, you have had quite an ordeal (sorry :( ) and I have to wonder if the nausea isn't a result of all that.

Iron supplementation can cause both nausea and serious constipation.

Adrenal insufficiency causes nausea, among other symptoms. Didn't the doctor tell you this? He/she should have.

The Vit D/soybean oil is probably the least likely culprit.

From everything I have read, there is no organ that is not affected in celiac disease. The adrenal glands and various hormones are most definitely affected. My cortisol levels were all over the place and adrenal fatigue caused multiple symptoms, including horrific insomnia and hyper-activity and agitation. For nearly 2 years, I barely slept 3 or 4 hours a night. My hair fell out and I was a wreck of central nervous system dysfunction.

When a body is under autoimmune attack, the adrenal glands are taxed greatly. I believe Addison's disease is now linked to celiac disease. I was told I had Hashimoto's thyroiditis, put on meds for nearly 2 years and I went HYPERthyroid. I knew it was wrong for me and had further testing done. As it turns out, I am on NO meds now and my thyroid functions normally.

I am fortunate I stopped the meds in time. Many mistakes were made in the course of several years of "medical care". :rolleyes:

I have to wonder if your continuing nausea isn't from the adrenal dysfunction and that hopefully, it will abate in time, with treatment and the gluten-free diet. Hope so. I had nausea for a long time and it just plain sucked.

0

Share this post


Link to post
Share on other sites

Irishheart, I just don't know. I've been off the supplements for a week. Felt better for a couple of days then Thanksgiving rich foods made me sick again. It's been improving each day, but it's still there this morning. Mild, but there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,147
    • Total Posts
      919,590
  • Topics

  • Posts

    • Hi Sarah, I agree with cyclinglady, your doctor doesn't seem to understand celiac disease.   Maybe you can check on Google for a local celiac support group.  Ask them if they know of any good celiac doctors in your area. The usual testing process for celiac is 12 weeks of eating gluten and then a blood test followed by an endoscopy later.  You are right, if you weren't eating gluten before the test it was not reliable. Welcome to the forum!  
    • Hi lolobaggins, Yes, it is not unusual to have symptoms that come and go after going gluten-free.  Edema (swelling) can also be a symptom of an allergic reaction.  Fatigue is not fun but remember your body is trying to heal a major organ, your gut.  So some rest might be a good idea.  The immune system response is going to keep going for several weeks to several months.  Each little bit of gluten kicks the immune response off again and extends the healing time.  So it's helpful to be very careful with your diet. Meats, vegetable, and nuts are good foods to eat at the beginning.  And whole foods rather than processed foods.  Dairy is often a problem until the villi are healed.  After a few weeks if things are going well you can try to add one new food a week and see how things go.  But take it slow and easy.  The fewer foods/ingredients we are eating the easier it is to identify problem foods. Welcome to the forum!
    • Welcome to the club that you never wanted to join!  (I plagiarized that from someone else here but can't recall who so I can't give credit to them.) Anyway, there is a steep learning curve to being gluten free.  It takes time to learn to read labels.  It takes time to heal (like months to YEARS).  Symptoms can wax or wane.  You just have to keep moving forward.  Give yourself time to heal and do not worry about the gym right now.  It will come back later, I promise (from a gal who cycles, swims, and runs).   Read our Newbie 101 section pinned at the top of the "Coping" section.  It contains valuable tips about cross contamination and hidden sources of gluten.  Read, read, read, the internet from reliable sources (not crazy bloggers).   You will feel better soon.  
    • Ha!    That happens to me all the time!!!!!  It drives me crazy!
    • "Accidentally marked them soy free".  Are you kidding?  That's fraud!  Consumer Reports just issued a huge report this month on supplements.   Yes, everyone thinks they are all "natural" and therefore safe.  Doctors and nurses recommend them all the time, but they can do a lot of damage.  Anyone can start making them in their bathroom and there's literally no regulation.   Geez, it is safer to buy food products (no gluten ingredients listed) from companies like Kraft and ConAgra because they are regulated more!  http://www.consumerreports.org/cro/magazine/2016/09/index.htm What about the probiotics?  Columbia University tested about 20 of them and found that over half had gluten in them.....enough to make celiacs  remain sick. https://www.sciencedaily.com/releases/2015/05/150515083232.htm Think twice about taking supplements.  Make sure you really medically need supplements.  I prefer certified gluten-free if I need to take them and I take nothing right now because all my labs are okay!  You have been on the gluten-free bandwagon for many years (member here for years).  Your doctors should be looking at other things that might be making you sick still.  Something is wrong!   That's my two cents!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,181
    • Most Online
      1,763

    Newest Member
    Diana061
    Joined