Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Three Month Bicycle Trip


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

hey there, y'all.

I have this personality trait where I'll have an idea and then get obsessive over it for a while before settling down again. now I am in an obsessive phase.

my obsession is CYCLING ACROSS AMERICA! W00T!

Just note that I don't plan on doing this until 2014 or 2015, and since that's a long ways away, the plan is likely to change several times before it is put into motion. However, this is a serious goal that I am going to work toward in my life. Once the initial obsession fades I'm not going to worry about it too much, because I'd rather focus on the awesomeness that is my life in Ireland in the here'n'now, but it will remain on my mental to-do list until it is done.

Anyway, I see a lot of "I'm going on a road trip what about food" threads, so this is mine. When touring on a bike, you need to take as little weight in gear as possible. You will have to either tow it all in saddlebags or a little bike trailer. After a while, every ounce really starts to count. So, while of course you pack plenty of food and water, you can't lug a whole cooler of "safe" food around the way you can in a car.

and you also can't afford to get badly glutened at restaurants or fast food joints because you're counting on your own two legs to get you from A to B.

I need to be gluten, soya, and dairy-free. At the *moment* my stomach is very sensitive and there may be other foods on the NO list, but I intend to fully heal my gut before this trip. I'm looking into starting the GAPs diet soon, actually.

My thoughts are such: live off grocery stores. Any town big enough to have a restaurant is big enough to have some kind of grocer. Buy fresh fruits, nuts, seeds, sports drinks (which are generally unhealthy but when actual athletes use them, they're ok), and meats for roasting in the campfire--like bacon and cuts of ham or beef, not processed crap that could be gluten-filled or gluten-CC'd. Live off calorie-dense foods like nuts, avocados, peanut butter, etc. Eat veggies and fruits and beans out of cans during stops, but don't bring canned food along on the bike (heavy!). Bring a big ziploc bag of hemp protein powder to add to boughtten smoothies and juices and drinks. Carry bananas and gluten-free protein bars in the handlebar pack for quick energy. Know where every Wholefoods and natural grocer is on the route, so you can stock up on things there that you can't get anywhere else. I'd be mostly camping rather than staying in motels, so I'd bring a decent set of camping cookware + a camp stove to make powdered soups (gluten-free of course), fried/roasted meats, tea, etc.

If you get caught at a restaurant you don't trust, ask for something like hard-boiled eggs or a baked potato/sweet potato washed and wrapped in foil. No butter, no salt, no nothing--just bring out the olive oil & vinegar like you would for a salad. No chicken Caesar salads, tho, not enough calories in one of those. Go into the kitchen to inspect your food's preparation if you have to. Tip really well so they don't feel resentful.

I heard something about new experimental gluten enzymes that work like lactaid does. Perhaps I could invest in some of those, and take only if I have to eat at a place I don't trust? Take a bottle of activated charcoal in case of a glutening. Take plenty of healing supplements and vitamins. Luckily, my gluten symptoms aren't debilitating, they just make it hard for me to eat full portions (reflux, slow stomach emptying, etc). If I did get glutened, I would just slow down my pace and force myself to eat anyway.

What are y'all's thoughts on this? Coeliac will NOT stop me from living out my dreams! Where there's a will, there's a way.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

My thoughts are such: live off grocery stores. Any town big enough to have a restaurant is big enough to have some kind of grocer. Buy fresh fruits, nuts, seeds,

This is pretty much how I always travel.

Bananas and tomatoes squish easily, so not the best travel companions. Hard fruits and veggies are more forgiving.

You can usually find cooked meats in the deli if you don't feel like cooking your own.

Cans are heavy, buy as needed.

If you'll be on the road for three months you won't be able to afford restaurants anyway, so limit those plans right from the start.

Link to comment
Share on other sites
kareng Grand Master

There are a few freeze dried backpacker foods that say gluten-free on them.

Don't know if you want to go this way, but my son was telling us about groups & bicycle clubs that ride across the US in the summer. Someone drives a van or truck so you don't carry much on your back. You also have the van and others in case you get hurt.

Link to comment
Share on other sites
Jestgar Rising Star

There are a few freeze dried backpacker foods that say gluten-free on them.

Don't know if you want to go this way, but my son was telling us about groups & bicycle clubs that ride across the US in the summer. Someone drives a van or truck so you don't carry much on your back. You also have the van and others in case you get hurt.

Even better: Start setting up a network of people from this site to 'visit'. You can probably line up a lot of safe, free meals, and an occasional bed and shower. :)

Link to comment
Share on other sites
heatherjane Contributor

If you're not going for another few years, who knows what restaurants will be like then. Things have been changing fast in the gluten free world for the better, so maybe by then places will be even safer and more knowledgeable. One can hope, right? :)

Link to comment
Share on other sites
color-me-confused Explorer

hey there, y'all.

I have this personality trait where I'll have an idea and then get obsessive over it for a while before settling down again. now I am in an obsessive phase.

my obsession is CYCLING ACROSS AMERICA! W00T!

Just note that I don't plan on doing this until 2014 or 2015, and since that's a long ways away, the plan is likely to change several times before it is put into motion.

Obsessive phase over some idea? You must be related to me! Cycling is a passion of mine. I don't do any long distance touring but am planning on trying some randonneuring rides in 2012. If you're putting in 3500 miles to cross the US consider Open Original Shared Link. Have you considered doing one of the group tours run by a group like Open Original Shared Link? Also if you like to mix your long distance cycling with insanity there's the Open Original Shared Link held every summer.

Link to comment
Share on other sites
Strawberry-Jam Enthusiast

OMG YESSS I'll do a "Jam visits all the Celiac people" trip, hahaha

I wouldn't do a bike tour + van etc because I'm too hardcore for that. *looks down nose at people*

No, seriously, I wouldn't feel like I'd accomplished what I'd set out to accomplish, if someone else were hauling my stuff for me. I have this thing about self-sufficiency. and hating cars/vans etc with a passion. If I did do this, I'd do it camping in style, with fully loaded panniers or a trailer.

I do have a couple cousins who may be interested in doing it with me, and a few friends who have expressed interest, altho I don't know what their availability would be or if it would line up with mine. I wouldn't want to do it alone if at all possible.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Googles Community Regular

My dad actually biked across the country a number of years ago (averaging 80 miles/day, range from 60 to 120). I don't know how much long distance biking you have done, so you might already know this. But remember that the number of calories you will need to do this is going to greatly increase. So the amount of food you need to ingest is going to increase. Keep that in mind when you make your plans. The amount of food you would usually eat will not cut it. Without support you will also have to carry all your own water. So keep in mind that water weighs a lot too.

Link to comment
Share on other sites
MenHen Rookie

One idea is to set up shipments of supplies ahead of time to a post office at certain points. Especially in areas that don't have a great selection of gluten-free foods. I know it would be hard to figure out exactly when you will be somewhere, but that could reduce your shopping time and your load.

Link to comment
Share on other sites
ElseB Contributor

Bananas and tomatoes squish easily, so not the best travel companions. Hard fruits and veggies are more forgiving.

Just make sure you have variety. I went backpacking around Australia just after I was diagnosed and was eating 2-3 apples a day because apples travel really well. I did that for 4 months. By the time I got home my body decided it didn't like apples anymore!

One idea is to set up shipments of supplies ahead of time to a post office at certain points.

I've done that before. Works great!

LaraBars are great for travelling - tons of energy and they taste great!

Link to comment
Share on other sites
Strawberry-Jam Enthusiast

yeah, I know I'll need more calories. I was thinking of living off nut butters for when I don't have access to a microwave/fire... rotating sunflower seed, cashew, and almond butter when available, and settling for peanut butter in places not "advanced" enough to have anything else. It would go on gluten-free bread or rice cakes with jam or preserves.

I would also probably eat a lot of canned food at stops, but not carry it around with me. Canned salmon, other canned fish, SPAM (which is gluten and soya free!), etc has lots of protein in it. Canned beans would be good. gluten/soya/dairy free canned soups and stews.

rotating bananas, apples, pears, etc for snacks. larabars or equivalent when available. fruit & nut bars whenever labelled gluten- and oat-free. whenever dairy-free sorbet is to be found (hagen daz makes good ones; love the mango flavour) I would go for a whole pint at a time for the calories.

I was also thinking that I should take a list of "safe" brands, brands that don't cause CC reactions even in the sensitive, for things without gluten-free labels (instant rice, powdered soups, and so on). Also bringing a list of which "gluten-free" labels actually test to <20ppm and which just talk out of their rear ends. And of course a list of gluten-free friendly restaurants that can generally be trusted, and a list of restaurants to avoid at all costs.

A friend of mine did this trip himself but he lived on fast food the whole way pretty much... I wouldn't set foot in any fast food joint under any circumstances, except MAYBE wendy's chilli in an emergency. So it will take more planning in my case.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,061
    • Most Online (within 30 mins)
      7,748

    Stephanie Thompson
    Newest Member
    Stephanie Thompson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...