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Need Dectective Help


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26 replies to this topic

#1 rana

 
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Posted 30 November 2011 - 11:37 AM

Hello! I need some help/insight into my current situation: I am getting glutened first thing in the morning and I cannot for the life of me figure it out. I have learned I'm pretty sensitive (I eat nothing processed, at the moment in attempts to figure this out I am not even using spices, just meat and veggies and rice and i wash all those things as best i can, gluten-free kitchen and all that). The attack starts before I even get in the shower, this means NOTHING has even come near my mouth at this point. I have checked all my toiletries and even replaced them all with those that actually say gluten free on them. I suspected the chapstick I was using at night before I fell asleep (figure it doesn't really enter my stomach until I wake up and swallow, lick my lips, etc), I got rid of it, no help. Then I really thought I had it with my toothpaste (its aquafresh, i called about my previous aquafresh but realized i got a slightly different kind this time), same theory as the chapstick and would explain why i have a secondary gluten reaction come about 11am every day (morning glutening from brushing at night, afternoon from the morning brushing). I was so excited to wake up today convinced i had figured it out and would have the first real gluten free day in recent memory (if ever), but no luck. I really can't think of anything else, and it almost doesn't even seem food related at this point, I feel fine by the time I get home after work every day regardless of dietary changes (this is a minor cc reaction, but still annoying) does anyone have any ideas? My lotion is gluten free, I use Tide degerent and I believe Ajax dish soap (I have to double check though). I realize you really need to figure these things out for yourself, but like I said, I'm out of ideas and I just started a new job (after not working for a year to recover, I was so sick) so I really can't afford to be sick everyday like this. Any thoughts are very much appreciated!
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#2 CR5442

 
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Posted 30 November 2011 - 11:39 AM

Hi Rana, I have just one question before trying to answer your question. Does the attack go away as soon as you have a bowel movement? What are the symptoms?
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#3 ciamarie

 
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Posted 30 November 2011 - 12:54 PM

Also, when you say before you get in the shower and nothing has touched your mouth -- does that include no coffee either? I'm just asking because it might be one of those things we don't even consider as a possibility.
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#4 pricklypear1971

 
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Posted 30 November 2011 - 01:00 PM

Hi Rana, I have just one question before trying to answer your question. Does the attack go away as soon as you have a bowel movement? What are the symptoms?



This is an excellent idea. I noticed I now get nauseous if I don't have a regular bm (or need to go and can't at the moment).

Also, what about seasonal allergies? Mine make me ill - I even get a fever from them.

Are your ears ok? That can throw you off completely.

What do you DO at 11 every day? Are you hungry? Do you go to a specific spot? Perform a particular task?
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 Di2011

 
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Posted 30 November 2011 - 01:42 PM

And you've been gluten free for a while now I'm guessing...

Are you waiting too long between meals/snacks? The timing sounds like when your stomach is most likely to be empty ie first thing in morning and long after breakfast/before lunch


Feel free to post a list of any of the bathroom/cleaning/laundry products (+ ingredients where you can, not just the brand but alsoo the type eg XYZ soap with dfsdfjsd for sensitive xyz) that you use and that touchs your skin. I'm gradually getting to be pretty familiar with the ingredients that cause me trouble but appear to be unrelated to gluten. I might be able to help.

I avoid anything with Xanthan gum (in most toothpaste, and many gluten-free foods). Doesn't matter what product (food / cleaning/bathroom or anywhere) it was in but I seemed to take 10 steps backwards.
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#6 rana

 
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Posted 30 November 2011 - 03:06 PM

THANK YOU everyone for taking the time to reply, really really appreciate it!

To answer your questions I don't feel better after a BM, but I have been a bit more clogged up than usual and I did actually wonder if that was playing a role (if nothing more than gluten is staying in my system longer, not sure if that makes sense though). I have been wondering if its blood sugar issues and not glutening. I get blood sugar issues if i get glutened. these mysterious morning episodes have made my stomach protude like crazy as if a gluten attack (that symptom doesn't make sense to me blood sugar wise that's why I was thinking it was gluten), I've also had bouts of brian fog and irratibilty with it, which for me is a tell tale gluten sign, but again, that could be blood sugar i suppose... my biggest symptom throughout the day is armpit sweating (so attractive!) and feeling hot in the cheeks, i get these when i get glutened as well. its just that same feeling, like you know its gluten, you just know, but maybe i am wrong. i hope i'm wrong!

I don't do anything in particular at 11am, i've even kept track of snacks, gum, chapstick, lotion, coffee (i buy whole beans, wash them, then grind them, i'm that paranoid)and no matter what i switch out or refrain from i seem to have the same result. Maybe I've cut down my food too much out of paranoia and my body is going haywire from it. i would hate that i'm bothering you guys if its just blood sugar, and admittedly i experience hunger pains throughout the day (something i cherish and didn't experience for years), when usually if i'm glutened i don't feel hungry for hours after if not days. these are minor attacks, but enough to distract me from learning a new job.

Diandliam, thank you for your offer of help finding safe cleaning products, i will take you up on that! (i'm at work now though, shhhh) What toothpaste do you use? I did switch to Desert Organics I think? and used it last night. was too scared to use it again today, and admittedly i did do better today overall, but i'm realizing its probably not toothpaste related. What liquid hand soap is safe? that's one i've been worried about, i use the off brand Equate maybe i shouldn't.

Is it possible to have 'phantom' symptoms? Like maybe I've been getting glutened more than usual lately and it takes a while for symptoms to completely disappear? this is so confusing to me because i didn't use to have this problem, i would wake up feeling great and only have blood sugar issues if i got glutened. maybe its new job stress coupled with everything. i have insurance again so i'll hit up the doc for other intolerances and blood sugar issues.
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#7 pricklypear1971

 
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Posted 30 November 2011 - 03:12 PM

I'd try the blood sugar thing first, seems the most obvious.

Try adding fiber in every meal, it stretches the protein.

Eat every 2 hours before you're hungry.

I'm sure you know all of this, but just thought I'd toss it in.

I went through a phase with blood sugar. It was awful.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#8 rana

 
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Posted 30 November 2011 - 03:20 PM

I'd try the blood sugar thing first, seems the most obvious.

Try adding fiber in every meal, it stretches the protein.

Eat every 2 hours before you're hungry.

I'm sure you know all of this, but just thought I'd toss it in.

I went through a phase with blood sugar. It was awful.



thank you! i will do that... i did know this but i haven't been doing it lately. i think i finally, finally, cut all the cc gluten sources out of my diet in the last few weeks so i'm sure that changes a person's body chemistry and could trigger bloog sugar issues. hashing this out on this forum has made me realize its got to be blood sugar. thank you again.
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#9 cait

 
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Posted 30 November 2011 - 05:37 PM

Is it possible that it's something from the night before? Vitamins or other meds that you take every night? Often I can tell as soon as I wake up, but there are times when I think I feel OK when I first get up, and then WHAM it kicks in after a few minutes. More often for me, though, that's a corn reaction. Is it possible that you're reacting to something else?
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#10 rana

 
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Posted 01 December 2011 - 02:49 PM

Is it possible that it's something from the night before? Vitamins or other meds that you take every night? Often I can tell as soon as I wake up, but there are times when I think I feel OK when I first get up, and then WHAM it kicks in after a few minutes. More often for me, though, that's a corn reaction. Is it possible that you're reacting to something else?


well you're the first person i've heard from that also has morning episodes. this only started for me in the last few weeks and i can't for the life of me think of what changed. In the past these blood sugar issues have always been linked to gluten, so i hope i'm not still getting cc'ed somewhere because i sure don't know where at this point! i don't even take any vitamins right now or meds while i'm trying to figure out all gluten sources (i drink green smoothies for natural vitamins for now). i'm beginning to realize i need to check for other intolerances! i love corn. i hope its not that...
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#11 Di2011

 
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Posted 01 December 2011 - 04:35 PM

It might be worth taking out the corn / rice (ie go grain free) for a week or so and then introduce one at a time. There seems to be a few members of this forum who have had to cut out all grains so worth considering. Make sure you stock up on a variety of yummy potatos for variety and to help fill the belly.

I'm in Australia so products probably differ but mostly imported so hopeful. Check your online healthfood/gluten free stores.
I have just (about a week) changed from a xanthan gum containing toothpaste to this one:
Ransom AloeDent Sensitive. aloedent.co.uk My teeth have never felt so clean and along with diet change are looking so much better in colour too. Not 100% convinced about other chemical ingredients (gluten free) so still doing my homework.
I've had no reaction to the change so hope I'm on to a winner.
I did some googling and presume your toothpaste is Desert Essence ? The ingredients look good. I'd avoid it only for the seasalt (my DH reacts to iodine) but otherwise probably better than the brand I'm using.

Bananas are my staple. I would be up and down like a yo-yo without them!
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#12 SoyBoy

 
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Posted 02 December 2011 - 06:38 AM

well you're the first person i've heard from that also has morning episodes. this only started for me in the last few weeks and i can't for the life of me think of what changed. In the past these blood sugar issues have always been linked to gluten, so i hope i'm not still getting cc'ed somewhere because i sure don't know where at this point! i don't even take any vitamins right now or meds while i'm trying to figure out all gluten sources (i drink green smoothies for natural vitamins for now). i'm beginning to realize i need to check for other intolerances! i love corn. i hope its not that...


I would say you are on the right track here. Tracking meals or snacks from the night before may show something.

When I initially went soy free, I was just avoiding the things that would give me an (near) immediate reaction (soy sauce, protein, etc.). I felt much better, but I was having delayed (minor) reactions on the way to work in the AM. Since eliminating all other sources of soy (and correcting a couple of other intolerances), the morning issues went away.

Best of luck.
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#13 notme!

 
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Posted 02 December 2011 - 12:21 PM

stress is a digestive deal-breaker for me. i keep a little xanax around for unavoidable bad news and i take it in tiny tiny doses - like i break the tablet into sixths - it seems to help my guts not turn to jello. a new job would certainly stress me out.

soy (for me) will mimic gluten without the lasting effects so i eat as little soy as possible. or if i do eat some, i expect the results :P dairy just makes me tired after i eat it but no huge gut issues.
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#14 rana

 
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Posted 02 December 2011 - 01:12 PM

thank you everyone! Its obvious i need to check for other intolerances. I don't eat any soy at the moment (no processed foods so its not sneaking in) but I do eat a little corn and one serving of brown rice a day. The corn is eaten at night though so that's something to consider! I used to cut out all grains (did the Specific Carbohydrate Diet for a while, it really helped, but now I follow it loosely which sort of defeats the purpose of it).

notme! - good name - i just put that together last night myself, i know i was majorely stressed at the prospect of getting this job, then way more stressed when i actually got it, its intimdating to join the world again after gluten takes you out of it, and i'm thinking the stress maybe triggered my blood sugar issues again, regardless of gluten. And i do still think that maybe that aquafresh toothpaste was subtely nailing me, it just makes so much sense the more i look back at other mystery glutenings (i would attribute it to a meal, then try that same food later and no reaction, etc, it all times out to when i would brush my teeth!). but who really knows.

anyway, thanks again for everyone's input! I'm seeing some improvement over the past few days, hopefully i can keep that momemtum up!
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#15 red island

 
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Posted 02 December 2011 - 07:09 PM

I have been finding that if I get overtired or stressed at work or even when out trying to get errands done, it will bring on a milder form of gluten reactions, I have found that if I can relax and calm myself or just take a break and rest, that the symptoms will go away - I am pretty new to this so am not ruling out that it could be lingering effects from being cc'd (like you I am still in the process of changing out my toothpastes and lotions etc - there is just so much to work out). But my feeling is that for myself, some of these reactions are stress related and my hope is that as I get further along in my recovery that things will level out. Hope things work out for you.
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