This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
That is my current conflict. The definitive of the diagnosis . It was my gi doc that ordered gene test in hopes to rule out celiac. I did the antibody blood test but that was after 10 day gluten free, followed by 7 days of eating lots of gluten, also in hopes for clear answer. The antibodies were negative. I've also been told those can be false negative?! So frustrating . My chiropractor is fabulous, told me and explained so much. He although doesn't find diagnosis as important which I sorta understand. The treatment is the same. But like you said its easier with diagnosis for support . I know lots of people carry gene and never get celiac. I've had a gut (irony) that I do have celiac, not just because it's more definitive, but because it fits a handful of many years of symptoms.
Again I wonder with my combo
-positive gene test
-family history of celiac
- several celiac symptoms (migraines, many gi, most recently elevated liver enzymes that sky rocketed after doubling gluten in hopes for clear gluten antibodies )
-symptoms improved with with removing gluten on two occasions
- after reintroduced gluten symptoms magnified
that the probability for celiac is MORE likely vs gluten intolerant?
I am sorry that your posting was overlooked! Thanksgiving holidays here in the States made things pretty slow. I am getting a kid off to school but will respond later.
I think you have celiac disease. I understand the long wait times in Canada for a GI and I bet that only they can run a full celiac panel (I tested postive barely yet had moderate to severe intestinal damage. Many of our Canadian members just get diagnosed by their GP based on only the blood test for that reason even with just the TTg. A positive is a positive!
Got to go....lunches to make.
Hugs! You can get better!
Hi! I haven't been to these forums in a long, long time since Celaic has been low on my list of priorities but I popped in for some help and saw your question...
I am by no means an expert. I haven't kept up on which tests are best and whatnot. What I can tell you, though, is that 9 years ago I had the "Celiac Panel" run 2 weeks before my scope w/biopsies and it came back negative. In the 6 months that I refused to admit I had Celiac and go on the diet, a different doctor ran it again - negative. Another 5-6 months later, after I had committed to the diet, yet another doctor ran it again - negative... It was run annually for a couple of years thereafter by my endocrinologist, though he never said why. I assumed it was to check for any hidden glutening (or cheating)...
With all that said, my biopsies were positive and, despite my 6 months of denial in the beginning, there is no doubt that I do have Celiac disease. Since committing to being gluten free, and my gut healing, I now react when I ingest gluten. I started off being able to cheat with fairly mild symptoms for the first several months. Now, there is nothing in the world that could tempt me to bring on that misery intentionally... ugh!
I agree with Cyclinglady, you definitely want to get copies of all of your lab work, your endoscopy notes, etc. to verify that they do say "early celiac" or something similar before you make any decisions to pursue other diagnoses or accept this one. However, given your intestinal symptoms and biopsy results, I think the easiest thing for you to do is probably just to go gluten free for a few weeks and see if it helps. If you stick with it for several weeks then eat something full of gluten, you'll probably have your answer. Having the verified test results would make it easier to prove your diagnosis should the need ever arise, but that's pretty rare...
Good luck sorting all of this out! I know it's a lot to take in at the beginning!