I Hate Celiac Disease
Posted 01 December 2011 - 03:48 PM
Disagnosed with IBS and anxiety (related to my treatment they say)-2007
Allergies to corn, tree nuts, shellfish, bees- 2010
Positive Lupus Anticoagulant-2011
Severe iron deficiency anemia- 2012
Inappropriate sinus tachycardia-2013
Tested for celiac three times, blood and biopsies all negative
Now encouraged to undergo testing again due to malabsorption
Posted 01 December 2011 - 03:57 PM
Posted 01 December 2011 - 03:59 PM
Hope you feel better about things soon.
Posted 01 December 2011 - 05:24 PM
I'm really glad I don't have M.S. or Lupus though, because that's what my doctors were testing for, along with other diseases.
Give yourself a while to deal with it, it gets better. Being pissed off about it at first is normal. With time it gets better or you get used to dealing with it better, and for me it has become a game. The "What Can I Eat that is Absolutely Delicious" game, or "What Can I Cook Quickly That Won't Make Me Sick Game"?
I found a recipe for shrimp marinated in Thai red curry sauce mixed with oil today. You broil the shrimp and serve it over rice with some basil. I get a kick out of growing my own herbs and cook rice in big batches to refrigerate or freeze leftovers, so that was a winner recipe!
I agree, it's not fun, you can't be "normal" with friends and family, but it's good to know what ails you with a fairly easy fix and some pre-planning.
As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!
Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.
Posted 01 December 2011 - 06:25 PM
Hugs to you Donna. This place is full of people that know and feel your frustration.
Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"
DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!
DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.
Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)
Posted 01 December 2011 - 06:30 PM
Take the time you need to grieve.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
Posted 01 December 2011 - 07:10 PM
Posted 01 December 2011 - 07:34 PM
Posted 01 December 2011 - 09:08 PM
My docs are still trying to figure out if there are other things going on with me as well. I just wish I could get a complete GI transplant, is that possible???LOL
Thank God for this website right. At least we all understand each other.
Oh by the way I found wonderful Gluten Free cookies in the refrig section of my local health food store. They are the bomb and even my non-gluten family loves them.
1 doctor says Celiac, 1 says No Celiac but recommended a Gluten Free Diet. New doctor is going to try to figure it out for me. This is a strange life but the food is getting better!
Posted 06 December 2011 - 12:13 PM
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