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Hair Loss?
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A little background: I did my first triathlon in mid-September, so I was training hard for most of the summer. At the beginning of August my training peaked: instead of getting better, I just got slower. My hair started falling out. By the time the race happened, I was pretty sure that I was experiencing symptoms of overtraining. At the same time, school has been INSANE, and my stress levels have gone through the roof.

It's the beginning of December, and I'm still losing hair. I've lost maybe 40% since August. I'm still unable to exercise hard like I used to, so I'm only walking (instead of running) and occasionally riding my bike at an easy pace. If it had just been overtraining, I would have recovered by now. I think the combined stress from school and the triathlon may have triggered something else. Stress from school triggered problems that led me to go gluten free 6 years ago, so I think something may be happening again. I feel like my insulin response was a little out of whack too after the race, but it seems better since I've gone to a low carb diet. I was eating dairy for a while too, but I decided to stop.

Any thoughts on the hair loss and fatigue? My doctor ordered some basic vitamin deficiency and thyroid tests but I"m wondering if I should ask for anything more specific. I'm pretty sure it's something hormonal, but I wouldn't rule out the beginning of something autoimmune.

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I am so sorry to hear about you problems, but congrats on the exercise. I was determined to loose weight in June, I lost 50lbs in 13 weeks, and starting feeling horrible out of nowhere. I had no energy, I could barely get out of bed. I lost about 60% of my hair from July till now.

I have to tell you that everyone was telling me its because of the exercise and the stress and the weight loss, and in fact it was but not completely. My family doctor ordered some tests which showed that my TTG and IGA antibodies were positive, I saw a Gastroenterologist and he confirmed without a biopsy because my sister has celiac and I had symptoms and the positive blood tests which I heard is really hard to get that I have Celiac.

I have been off gluten for about 2 weeks and my TTG went from 113 to 68 so I am getting there.

My hair is still falling out but I know that will take time, I never thought I would have it but I do, and your story really hits close to home, I would find a gastroenterologist and try with him, as I can tell you my family doctor was anything but helpful or knowledgeable. Plus your blood may be negative for Celiac but a biopsy might show something different especially since you have family history.

Good luck to you

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I am so sorry to hear about you problems, but congrats on the exercise. I was determined to loose weight in June, I lost 50lbs in 13 weeks, and starting feeling horrible out of nowhere. I had no energy, I could barely get out of bed. I lost about 60% of my hair from July till now.

I have to tell you that everyone was telling me its because of the exercise and the stress and the weight loss, and in fact it was but not completely. My family doctor ordered some tests which showed that my TTG and IGA antibodies were positive, I saw a Gastroenterologist and he confirmed without a biopsy because my sister has celiac and I had symptoms and the positive blood tests which I heard is really hard to get that I have Celiac.

I have been off gluten for about 2 weeks and my TTG went from 113 to 68 so I am getting there.

My hair is still falling out but I know that will take time, I never thought I would have it but I do, and your story really hits close to home, I would find a gastroenterologist and try with him, as I can tell you my family doctor was anything but helpful or knowledgeable. Plus your blood may be negative for Celiac but a biopsy might show something different especially since you have family history.

Good luck to you

I've had some blood tests for Celiac, but I can't get the biopsy. I was a mess after getting glutened right before Thanksgiving. I've only been feeling better for about 3 days now. I can't handle eating enough for the biopsy.

I do have several other autoimmune diseases in my family, that's why I'm not ruling it out. But some of the symptoms I've been having (except hair loss) are similar to what I felt before going gluten free. Have you tried an endocrinologist? That was actually something I was considering.

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I've had some blood tests for Celiac, but I can't get the biopsy. I was a mess after getting glutened right before Thanksgiving. I've only been feeling better for about 3 days now. I can't handle eating enough for the biopsy.

I do have several other autoimmune diseases in my family, that's why I'm not ruling it out. But some of the symptoms I've been having (except hair loss) are similar to what I felt before going gluten free. Have you tried an endocrinologist? That was actually something I was considering.

I haven't because they told me that there is nothing anyone can do for me until I get my TTG to normal levels, but oh men is it hard loosing all that hair :( I would think that this is definitely Celiac like, and if you feel better not eating gluten than I would use that as a diagnosis, and I wouldn't want to gluten myself either especially if I was feeling better off gluten.

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I would request a vit test from your doc to make sure where your vit levels are. I was having problems with hair loss and found zinc and BioSil drops worked for me. I know someone who used Evening Primrose oil tabs that worked. It is possible you have more than just a need for these as far as nutrients though.

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I would request a vit test from your doc to make sure where your vit levels are. I was having problems with hair loss and found zinc and BioSil drops worked for me. I know someone who used Evening Primrose oil tabs that worked. It is possible you have more than just a need for these as far as nutrients though.

That's what the doctor has ordered to begin with. Plus some kind of thyroid test. I'll find out when I get there since I set up the first round of testing over email. I already take a multivitamin with iron, plus 5000 IU of vitamin d3 every day, and probiotics. I shouldn't have deficiencies, but who knows. Last time I wasn't absorbing anything even though I was taking vitamins.

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I was in the same position as far as not absorbing and then when I did I found myself taking too much D....I was also taking 5000IU daily. Was feeling a little kidney pain but not uncommon for me as I do have issues with my kidneys. I was urinating more frequently and thought I might have a bladder infection but it really didn't feel like an infection. Then I became emotional, overwhelmed with emotions that I wasn't able to control, and that's when I knew I had to get tested again and sure enough my D was over. So do keep that monitored. When the body starts taking the nutrients again you might find you have to adjust.

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Poor exercise tolerance and hair loss are classic hypothyroid symptoms. It's possible you were hypothyroid before you went gluten-free and the diet helped for a time. Make sure your Dr. reads your TSH on the new reference range. It should be between 0.5-2.5.

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Poor exercise tolerance and hair loss are classic hypothyroid symptoms. It's possible you were hypothyroid before you went gluten-free and the diet helped for a time. Make sure your Dr. reads your TSH on the new reference range. It should be between 0.5-2.5.

I've had my thyroid tested over the years, but it's always been pretty normal. I think it was 1.4 last time. Still, something new is happening. I have read that the new range should be 2.5 or 3.0 though, so if he doesn't get it right I'll go see an endocrinologist. I probably should anyway.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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