The Hair Is Gone Now, But I Dont Have To Shave My Legs!
Posted 03 December 2011 - 04:01 AM
Posted 03 December 2011 - 04:32 AM
you make me feel like life is worth living. I kept checking your last post and hoped to hear. Just wish I could give you the biggest of big hug straight to you.
Posted 03 December 2011 - 04:36 AM
Ok, first round -- check
2nd round -- on it's way to being crossed off the to-do list
hair car -- well, I guess you're molting...
A person on the chicken forum said she loved it when her chickens molted 'cause it was like getting a whole new paint job for free.
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Posted 03 December 2011 - 05:51 AM
Thanks for the update. I was wondering how you were doing. Keeping you in my thoughts and prayers. Hang in there.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 03 December 2011 - 05:56 AM
You could get some really fun wigs or hats! What about hair like Beyonce? Or a shocking pink bob? Perhaps a purple cowboy hat you have added "Accessories" to? Maybe a florescent green beanie with antenna like an alien?
Please post pictures if you wear these! You might scare the cancer away!
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
“Life may not be the party that we hoped for…But while we’re here, we should dance.”
Posted 03 December 2011 - 06:05 AM
Posted 03 December 2011 - 06:06 AM
but def look at the bright side! you go girl!
soy-free 30 March 2011
dairy-free 30 August 2011 (roughly)
22 yrs old
diagnosed Celiac through biopsy and blood test (WAY positive) as of 25 Feb 2011
Posted 03 December 2011 - 06:21 AM
Also, if your hair was pretty straight to begin with then you have curls to look forward to when it starts to grow back. Chemo Curls. I loved it! I have that stick-straight hair and always wanted curls. Too bad it doesn't stay that way.
How many rounds of chemo do you have to have? Hoping this one goes smoother than the first one.
Posted 03 December 2011 - 09:50 AM
And about my treatment 2 more chemo treatments this month, surgery in late January or early February depending on how I do with the next two treatments, then after I am healed and eating good again, 3 more rounds of chemo, so I am in this for the long haul. It will be a long road, but in the end I will be healthy again and that is all I am concentrating on, my nephew is to be married in late April and I fully intend to dance at his wedding!!! Thanks again for the support.
Posted 03 December 2011 - 02:36 PM
To go with the sexy legs, ya know.
does this mean you are cancelling your Brazilian wax appointment!!?
Posted 03 December 2011 - 02:56 PM
Posted 03 December 2011 - 06:02 PM
Positive Biopsy- 08/11
Slightly positive tTG only- 06/11
Negative blood panel- 11/05
Diagnosed with IBS- 1981
Posted 03 December 2011 - 07:15 PM
You can get straw hats with ventilation holes for the summer time. If they have a band around them you can stick flowers or feathers in it for added pizzaz. I am kind of thin on top myself so I wear hats a lot. It's not good to go around with the sun beating down on the top of your head all the time. Inside they can keep you warmer in the winter also. And those wide brims keep glare off your glasses. We should just be born with hats on our heads if you ask me. My dad was on the extremely thin hair on top side, so he told me to wear hats in the summer or outside. He was a smart cookie. Kind of a chrome dome too. His case was different though,. He used to save his wad of chewing gum and stick it on the bed post at night when he went to sleep. Then reuse it in the morning. One night he got it stuck in his hair somehow while sleeping. And in the morning they had to cut off all his hair to get rid of the gum. It just never grew back. A tale of warning for all you gum savers out there...
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 04 December 2011 - 12:52 AM
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
Posted 04 December 2011 - 04:10 AM
Symptoms started in 2007, but no link to celiac disease was found until 2009. I learned of celiac disease through the internet, my doctor never recognized it. She put me on a diet before tests were done, so the initial tests failed. My GI advised me to do a gluten provocation, which had to be stopped too soon to take a reliable biopsy. Based on symptoms such as vitamin deficiencies, GI problems and osteopenia my diagnosis now is: glutenintolerant, suspected celiac disease. This diagnosis was in march 2010, and I've been so much better ever since.
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