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Did Your Partner Support You ..........


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#1 lucylooo

 
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Posted 04 December 2011 - 05:40 AM

Hi so i'm just curious when you first got diagnosed with celiac did your partner support you? I feel it is stressful changing your diet if your like me not very good at cooker anyway. We have just moved country and the food is more expensive here and we struggle finding things to eat, food shopping in the UK was never a problem......i miss it! :(
ANYWAY so food shopping can be a pain here now and my husband is being really unhelpful hes making me feel like i'm such a burden, as i havent had a full diagnoses i have the symptoms its in the family but the doctors can't tell me for sure but they think its likey so they want me to go gluten free............so i just feel it would be easier to put it off after xmas is this okay?


Thanks x
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#2 eborzecki

 
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Posted 04 December 2011 - 05:55 AM

If you think you have Celiac go gluten free right away you don't want to cause any more damage.
What tests did you have done and what were the results? What are your symptoms?
My partner was semi supporting until he heard it from the doctor himself that eating gluten can cause me more damage and money than going gluten free.
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#3 kareng

 
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Posted 04 December 2011 - 06:23 AM

Did you have a positive blood test? I would think that the fact that the doctors want you to be gluten-free would be enough for your hub.

I think you could wait until after Christmas if you want. It depends on how bad you feel.

You could use the month to research foods and simple recipes. You could cut back on gluten.

We have many recipes and threads on here about inexpensive gluten-free foods. Foods that are naturally gluten-free like eggs, potatoes, rice, fruits, veggies, etc.



Edited to say: just wanted to say....I saw your post on " basic dinners". Look over there for ideas for food.

Edited by kareng, 04 December 2011 - 06:41 AM.

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#4 lucylooo

 
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Posted 04 December 2011 - 07:07 AM

If you think you have Celiac go gluten free right away you don't want to cause any more damage.
What tests did you have done and what were the results? What are your symptoms?
My partner was semi supporting until he heard it from the doctor himself that eating gluten can cause me more damage and money than going gluten free.





I had blood tests which came back positive I got referred to the hospital for a Gastroscopy, I then had a blood test taken again a few days before the Gastroscopy and it came back fine?? I was told if i have the Gastroscopy they could tell for sure if i had celiac BUT they still don't know for sure, the doctor said i have a red bowl but no damage and thinks its likey that i have celiac but cannot tell me for 100% but the doctors told me to go gluten free and then have the gastroscopy done again in 6 months time. So I feel i have it and they doctors think i do be wont tell me for sure :/

The reason i got tested in the 1st place was because my sister had, i have psoriasis (which is linked?) i struggle to gain weight, i feel tired after eating and bloated my periods are messed up too......
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#5 curlyfries

 
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Posted 04 December 2011 - 07:14 AM

Hopefully he will change his tune after you've been gluten free for a while and he sees how much better you feel.

I never got an official diagnosis, and my hubby is my biggest supporter. He will speak up at restaurants before I get a chance. And I really don't spend any more on groceries....just eat simply. No processed food, except for my pizza crust mix :P
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#6 kareng

 
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Posted 04 December 2011 - 07:14 AM

If your gluten free for 6 months, your endoscopy biopsies will likely be negative. That's the point of being gluten-free.

Did they do biopsies of your small intestine? The damage is usually not something they can see.
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#7 NorthernElf

 
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Posted 04 December 2011 - 07:15 AM

I do have my DH's support but it did take a bit of time. Thing is, he could see what was happening to me. I had a very bad virus where I couldn't eat, lost weight and it probably took me a year to figure out what had happened to me. During that time he might not have been too supportive, but I was kind of in denial too.

At some point I figured out the gluten thing & cut it out...then it took a bit to do it right (wow is gluten in everything!). I know within 15 minutes if I have eaten something bad for me. I am a miserable person on gluten ! DH knows this - in fact if I'm grumpy, have a headache, stomache, or don't feel good he'll ask me what I've eaten!

The other thing that will help is if you work hard at avoiding it & do it consistently. People at work, for example, don't even question me because I NEVER eat it. How can I, it makes me sick?!

Too many folks use it as a fad diet or have been told to try it & that's not their issue. Two people I work with 'avoid' gluten but still eat pizza at our pizza parties...hmm...
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#8 Natureboyscupcake

 
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Posted 04 December 2011 - 07:15 AM

I have a very supportive man in my life and am thankful everyday he is as supportive as he is. I am sorry your Husband is not very supportive. We have a very low income and struggle for me to have gluten free foods... I have discovered that it isn't as hard as I made it out to be. Fruits and Veggies are naturally gluten free, Meats are naturally gluten free as well. we have started eating anything that is naturally gluten free and slowley based our weekly menus off of that. hope these ideas helps! :)
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#9 IrishHeart

 
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Posted 04 December 2011 - 07:18 AM

To answer your question, I am fortunate to have a best friend of a husband who stuck by me while I was very, very sick and in agonizing bone/muscle/joint/nerve pain. Took me to dozens of doctors in 3 different states in 3 years. Never gave up on me and never once made me feel bad that our life had come to a near stand-still because of my "mysterious" illness. I diagnosed myself after researching my symptoms and then had it confirmed by a stunned PC doctor.

Sweet Hubby thanks me every day for saving my own life and he bakes our bread for us. He went gluten-free with me; totally his decision. I know how lucky I am, believe me!

I can honestly say I am always angered when someone reports a significant other who makes things more difficult than it has to be or who abandons their partner when he/she needs them the most. Talk about kicking someone when they are down. To have him make you feel bad is beyond unkind. If you remain sick because you accommodate him and eat gluteny foods, then what purpose will that serve? Take care of yourself.

To make things easy, I can provide you with the shopping list/meal and snack suggestions I made up for friends and family members who were worried there "wouldn't be enough to eat" if they went gluten-free.

Frankly, we eat mostly plain, whole foods and do not buy much prepared stuff. We make our own bread and pizza dough. But packaged food does come in handy, especially if you have kiddos. There is no need to overspend at the grocery store and still eat well.

Hope it helps you get started anyway.

ARE YOU IN THE US NOW?? I am not sure from your original post.

IF so:

Breakfasts:
Erewhon crispy brown rice cereal or gluten-free Kellogg's RICE KRISPIES, gluten-free CHEX corn or gluten-free CHEX Rice cereal, gluten-free CHEX honey-nut or gluten-free CHEX Cinnamon
Add: rice milk, almond milk or coconut milk and add berries or sliced banana.
CERTIFIED gluten -free oatmeal w/cinnamon (glutenfreeda brand, Bob's Red Mill )
Eggs and bacon or sausage with gluten-free toast or bagel (Kinnikinnick, Udi's or homemade)
Yogurt, fruit and toast with peanut or almond butter.
Cream of buckwheat --it's good!! (no worries--Buckwheat is not from the wheat family)
Amaranth pancakes w/pure maple syrup
gluten-free packaged pancake/waffle mixes (Pamela's brand is good)

FRUITS and VEGGIES—eat plenty of these.

Snack ideas that are safe and handy

Cozy Shack Rice Pudding cups (in the dairy section)
All natural applesauce cups
gluten-free cookies  or muffins (Bake them or buy them.)
Pamela's Baking Mix is versatile and good for cookies.
Bagel with cream cheese and jam (Laurie's are the best I have tried) Udi's are not too bad either (frozen section)
Pamela's makes a very good brownie mix too!
Chobani Yogurt
Lundberg rice cakes or sliced apples and celery sticks with natural peanut butter smeared on
Glutino crackers with cheese or peanut butter
BOAR's Head brand pepperoni, salami, all their cold cuts and cheeses
Planter's peanuts, almonds, cashews.
NUTSONLINE also has an entire gluten-free section of flours, nuts, candies.
SUNMAID raisins, prunes. Craisins by Ocean Spray. (some raisins and dried fruits are dusted with flour to keep them from sticking but these brands are safe.)
smoothies- made with coconut milk, fruit, yogurt, etc
Potato chips----like Cape Cod or Kettle Brand or Utz
Indiana Popcorn--comes in all flavors--the  kettle corn is delicious
Glutino brand pretzels—they come in all flavors even chocolate -coated
Coconut milk ice cream (Turtle Mountain So Decadent brand is very good)
Ice Cream, if dairy is not a problem for you.
Organic Corn chips w/salsa, hummus, or Wholly Guacamole
Sunflower , pumpkin or flaxseeds
Candy—Hershey's kisses or bars, regular size Reese's cups, Snickers, York peppermint patty, Butterfinger and M &Ms plain and peanut. Ghirardelli squares.
Make some Chex mix with gluten-free chex cereals
gluten-free Rice Krispies treats (recipes are online)

Check the labels of all packaged products-- if they were made with wheat or malt gluten, they will state so on the package.

LUNCH and DINNER:
Leftovers from last night's dinner make an easy lunch
A sandwich with gluten free bread—UDIs and Canyon Bakehouse are good packaged breads, rolls and bagels, but homemade is the way to go. I have a simple recipe for white sandwich bread that is delicious if you want it. Just PM me.
A big salad with tons of veggies and grilled chicken or shrimp and Hard-boiled eggs/ with gluten-free or homemade vinegrette dressing. A list of gluten free salad dressings is available online. Marzettis, and most of WishBone and Ken's are okay.
Homemade vegetable minestrone ,chicken soup, stews, black bean or white bean chili (gluten-free stock)
chicken or bean nachos (can use corn tortillas)
red beans and rice
almost all mexican food is safe (just no flour tortillas!)
pasta and sauce w/meatballs (brown rice or corn pasta TINKYADA BRAND rice pasta is delicious! Cook 13 minutes exactly) and use gluten-free breadcrumbs
meatloaf (beef or ground turkey) baked potato or yams, green veggie of some kind
Other proteins: roasted or grilled chicken, turkey, pork, beef, salmon, talapia, scallops, lamb, some sausages are safe, bacon (Check labels)
Vegetarian chili--homemade.
I eat a variety of veggies..whatever looks fresh at the super market or farmer's market or stands...steamed, grilled--- or roasted root veggies in stock.
Sweet potatoes—baked at 350 degrees in a pan for 45-50 mins.--are yummy
Potatoes—roasted, grilled, whipped with milk
Fritattas with veggies and salad
Stuffed peppers—with ground turkey, beef or lamb and rice

ANY recipe can be altered--just use gluten-free breadcrumbs, or rice pasta ---use any flour made from amaranth, corn, bean, etc...just NO WHEAT, RYE OR BARLEY or cross -contaminated OATS. Quaker oats are likely CCed!!. Bob's Red Mill are not.

Cross-contamination is the bane of our existence. A package stating a product is “Gluten-free “ does not always guarantee it was processed and manufactured and packaged in a dedicated facility. You want the GIG (Gluten Intolerance Group) circle stamped on the package –it is a big gluten-free in a circle.


Some DEDICATED gluten-free facilities are:

Bob's Red Mill
1-2-3 Meredith's Marvelous
Authentic Foods
Pamela's
Cause You're Special
Udi's
The Cravings Place
Andean Dream
Kinnikinnick
Organic Nectars
Orgran
Foods by George
gluten-free FULL FLAVOR Gravy
Prana Bar
Enjoy Life
EnergG
Gillian's

They make all kinds of ready made mixes and flours to make it easy to start baking. I tell my friends who say "I wish I could cook as well as you do"... "Anyone can cook. If you can read a recipe, you can cook." ;)

Hope this helps.
Best wishes!
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#10 lucylooo

 
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Posted 04 December 2011 - 08:47 AM

If your gluten free for 6 months, your endoscopy biopsies will likely be negative. That's the point of being gluten-free.

Did they do biopsies of your small intestine? The damage is usually not something they can see.




Yeah I know I was kinder of confused, If i'm honest it seemed as if they didn't really know what they where on about, as if i go gluten free surely it wont show again on the endoscopy??

They didn't tell me anything :( I'm an army wife living abroad I don't speak there langauge so that didn't help, but they didn't explain anything to me really, when i went to get my results he spoke very some english, he said nothing about biopsies I didn't think to ask as I didn't know much about it, I got the results 2 days later so maybe he couldn't have as thats kinder quick!!

He took pictures and just said there is some redness or something, but the nurse said this can be caused by lots of things eg stress, smoking and also celiac....she said there is no damage BUT they think I have a high chance of having it and should go gluten free.

I don't understand i'm really confused, I don't no if I should go back through the english doctors and speak to them or this a waste of time?
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#11 auzzi

 
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Posted 04 December 2011 - 02:19 PM

Where are you ? There is a possibility that there are members here from that country who can point you in the right direction ..
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#12 beebs

 
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Posted 04 December 2011 - 02:27 PM

If you have a positive blood test then treat it as if you have celiac - seriously- damage in your intestines can be patchy and they say they there is around 20% false negatives in celiacs.

My hubby was supportive - its awful that your hubby is not - it makes a difficult situation even worse. There are some great gluten free blogs about - have a look around for some inspiration. I am not great at baking or anything, so I just use the gluten-free mixes, DH can't even tell the difference!
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#13 mushroom

 
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Posted 04 December 2011 - 05:27 PM

Two qustions:

What lalnguage is spoken where you are stationed?

Are there any gluten free pastas or breads in your PX? Or do you have to buy them on the local economy? Did you go to an Army hospital or a local hospital?

:D Okay, I know that's more than two! :)
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#14 AVR1962

 
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Posted 05 December 2011 - 06:45 AM

Yeah I know I was kinder of confused, If i'm honest it seemed as if they didn't really know what they where on about, as if i go gluten free surely it wont show again on the endoscopy??

They didn't tell me anything :( I'm an army wife living abroad I don't speak there langauge so that didn't help, but they didn't explain anything to me really, when i went to get my results he spoke very some english, he said nothing about biopsies I didn't think to ask as I didn't know much about it, I got the results 2 days later so maybe he couldn't have as thats kinder quick!!

He took pictures and just said there is some redness or something, but the nurse said this can be caused by lots of things eg stress, smoking and also celiac....she said there is no damage BUT they think I have a high chance of having it and should go gluten free.

I don't understand i'm really confused, I don't no if I should go back through the english doctors and speak to them or this a waste of time?

I have run into alot of the same issues. My husband is retired AF and we are stationed at Ramstein, Germany and while we are entitled to base medical I am alot of times refered off base and then you run into the language barrier and it becomes a mess-up in getting your labs back to your doc who can do something about the sitautions.

Do you have access to base medical? If so and not familiar with the system, you really have to keep working to get the care you need. I swear all too many are not qualified, especially when it comes to gluten intolerance and celiac. I could go on and on what I have been thru in the past 9 months.

In order to test for celiac you will have to be on gluten for at least 2 months, some docs say longer. However, testing is not real accurate. How have you done since being off glutens? I went thru such a time with gastro on base that I decided I had enough, could not tolerate glutens long enough to get my testing done so I was just going to go it on my own. However, because I know it is so hard to go up the medical chain to get anything I wanted this documented in my records so I went back in after 12 days back on glutens and I told him I could not do it and I would just remain gluten-free without testing. He then told me that if I went back into their office complaining of the same symptoms they would want to repeat the whole process all over again. Fine. But I had more than just gluten symptoms, I also have neuropathy issues. All I can say is thank goodness my assignd doc deployed as this gave my records a new set of eyes and when my new doc saw everything I was tested for, all my symptoms and the improvement I made on a gluten-free diet he called it and I was diagnosed with celiac.

And yes, the exchange rate stinks right now so to buy anything on the economy is quite expensive. The Commissary does not carry much in te line of gluten-free products so I buy online quite a bit for things I would like. If you are in Germany, I have found Globus to be your best place to buy gluten-free products on the economy. They are in the diet (diat) food section and actually are good. I prefer the Glutano Mix It flour over some of the other flours I have tried.
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#15 heyteacher

 
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Posted 05 December 2011 - 10:04 AM

Hi so i'm just curious when you first got diagnosed with celiac did your partner support you? I feel it is stressful changing your diet if your like me not very good at cooker anyway. We have just moved country and the food is more expensive here and we struggle finding things to eat, food shopping in the UK was never a problem......i miss it! :(
ANYWAY so food shopping can be a pain here now and my husband is being really unhelpful hes making me feel like i'm such a burden, as i havent had a full diagnoses i have the symptoms its in the family but the doctors can't tell me for sure but they think its likey so they want me to go gluten free............so i just feel it would be easier to put it off after xmas is this okay?


Thanks x



Hi--

I will not be of much help to you as far as shopping as I am new to all of this as well. I do, however feel for you as far as having a unsupportive spouse. I don't know how to "make" them see that we didn't ask for this, it just "is". I already feel like a burden without any comments from him. I don't like the fact that I cannot eat what I used to. I am also thinking about waiting until later to start gluten-free. I know I need to try now ( or keep trying) I just don't want to fight about it. I am tired of the whole thing already and I haven't even started. Most of the reason I feel this way is lack of support. If I could get him to give me some support and positive comments it would sure be easier.

Just know that I am thinking about you I hope your situation gets better.
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