Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Off Gluten 2 Weeks!


kathrynk

Recommended Posts

kathrynk Rookie

I am STILL waiting on my blood-test results for the celiac panel. The labs came back on Wed of this past week. I have been calling daily, and they are on the Doctors desk for review. I still have not heard from him. I have a feeling it was negative because (I assume) he would have called otherwise? I will try again on Monday...

I have been off gluten for about 2 weeks now. The gas pain and bloating that occurred almost every evening has stopped! My mood is feeling better, I lost a few pounds, and my skin looks great!

I was wondering if the reynauds/sjrogrens symptoms will subside or slow down as well? Has anyone seen changes with these autoimmune issues by removing gluten? The reynauds started last year and seems to be getting progressively worse (especially with the cold weather settling in).

Also...I am still working on the thyroid stuff...I requested my test results for hashimatos, and will post them on here once I get them.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Booghead Contributor

I don't think him not calling means its negative. It means the people at the office are lazy :P lol, don't know about sjrogens and gluten free but I do think most find it to improve off gluten. Thyroids are nasty things. Luck with that one too!

P.S. adorable kid in your profile pic. gotta love that curly hair B)

Link to comment
Share on other sites
kathrynk Rookie

I don't think him not calling means its negative. It means the people at the office are lazy :P lol, don't know about sjrogens and gluten free but I do think most find it to improve off gluten. Thyroids are nasty things. Luck with that one too!

P.S. adorable kid in your profile pic. gotta love that curly hair B)

thank you! That is my 2 year old :) I can't bring myself to cut his curls! Thyroids are nasty-I haven't even began to figure that one out yet. I'm taking it one day at a time, and learning a ton!

Link to comment
Share on other sites
IrishHeart Veteran

I am STILL waiting on my blood-test results for the celiac panel. The labs came back on Wed of this past week. I have been calling daily, and they are on the Doctors desk for review. I still have not heard from him. I have a feeling it was negative because (I assume) he would have called otherwise? I will try again on Monday...

I have been off gluten for about 2 weeks now. The gas pain and bloating that occurred almost every evening has stopped! My mood is feeling better, I lost a few pounds, and my skin looks great!

I was wondering if the reynauds/sjrogrens symptoms will subside or slow down as well? Has anyone seen changes with these autoimmune issues by removing gluten? The reynauds started last year and seems to be getting progressively worse (especially with the cold weather settling in).

Also...I am still working on the thyroid stuff...I requested my test results for hashimatos, and will post them on here once I get them.

Kathy,

Yes, many people see a remission/improvement in many other autoimmune conditions. My alleged Hashimito's before DX? --well, I do not even have it-- and I took meds for 2 years for no good reason. :angry: That was my experience, though. My thyroid is perfectly fine.

Look under the forum for RELATED Disorders or use the Search Forum up at the top of the screen and you will see that MANY people have posted about Raynaud's and Sjrogen's and Hashi's. Posting these questions under the topic "Off gluten 2 weeks" may not get you any answers as no one knows you are asking about these things in particular.

Okay? okay! ;)

Best wishes, IH

Link to comment
Share on other sites
kathrynk Rookie

Kathy,

Yes, many people see a remission/improvement in many other autoimmune conditions. My alleged Hashimito's before DX? --well, I do not even have it-- and I took meds for 2 years for no good reason. :angry: That was my experience, though. My thyroid is perfectly fine.

Look under the forum for RELATED Disorders or use the Search Forum up at the top of the screen and you will see that MANY people have posted about Raynaud's and Sjrogen's and Hashi's. Posting these questions under the topic "Off gluten 2 weeks" may not get you any answers as no one knows you are asking about these things in particular.

Okay? okay! ;)

Best wishes, IH

gotcha-I am not good at forums, or where to post things. I'm learning!

Link to comment
Share on other sites
IrishHeart Veteran

gotcha-I am not good at forums, or where to post things. I'm learning!

I was lost the first month or so, but people helped me :) and so, I wanted to point you in the right direction as well.

How you entitle your post --and in the right section---will get you the most responses!

If I can help you in any other way, I will. If I do not know the answer, I may know who will. These folks are the best! :)

Link to comment
Share on other sites
Booghead Contributor

thank you! That is my 2 year old :) I can't bring myself to cut his curls! Thyroids are nasty-I haven't even began to figure that one out yet. I'm taking it one day at a time, and learning a ton!

I was going to say cute little boy, but my sisters little girl is always called a little boy so I thought I would tread on the side of caution. I wouldn't cut the hair either. Too cute! My little niece has curly hair but it is so thin and it doesn't grow much (shes 3 and it isn't even an inch long). I'd say a good time to cut it is when he starts running into the walls because he can't see :P Or when he can't walk because he trips on his hair. Either-or.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...