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Need Some Encouragement!


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5 replies to this topic

#1 Tarantula44

 
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Posted 05 December 2011 - 02:08 PM

Hi, I'm so thankful for this site and the amount I've learned from you all since joining! I have had some negative blood tests but positive for total SIgA and thyroid antibodies. No biopsy, but celiac runs in family and my dr thinks I may have it. I agreed to do the strict gluten and dairy free diet. I started one month ago today and have noticed some improvements so far... Way better digestion, sinus inflammation has gone down, chronic swollen glands have gone down. But I am still having tons of symptoms, especially migraines, bladder pain, fatigue. Over the past two weeks the headaches have been everyday, and the bladder pain has been really bad at times, also my fatigue and head fog are off the charts horrible. I'm wondering if even after a month on the diet if I can still be having detox symptoms. That's what it feels like it is, I just thought this part would be over sooner. My dr also has me on homeopathic detox drops for my liver and kidneys as I have a mild fatty liver (not from alcohol/drugs). I also have been doing green smoothies with fresh greens daily too, I suppose all this might be too much for my system to handle. Can anyone give any insight as to how long detox can last from going gluten/dairy free and what are some things you can do to relieve the awfulness of it? Also how long it takes to start feeling better from the fatigue and headaches etc? Thank you! T
  • 0
Basic bloodwork for celiac came back negative. No biopsy done.
Went gluten and dairy free November 7, 2011. Trying to figure this out myself...will update when/if I see results from gluten-free/DF diet!

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#2 kathrynk

 
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Posted 05 December 2011 - 05:40 PM

Hi, I'm so thankful for this site and the amount I've learned from you all since joining! I have had some negative blood tests but positive for total SIgA and thyroid antibodies. No biopsy, but celiac runs in family and my dr thinks I may have it. I agreed to do the strict gluten and dairy free diet. I started one month ago today and have noticed some improvements so far... Way better digestion, sinus inflammation has gone down, chronic swollen glands have gone down. But I am still having tons of symptoms, especially migraines, bladder pain, fatigue. Over the past two weeks the headaches have been everyday, and the bladder pain has been really bad at times, also my fatigue and head fog are off the charts horrible. I'm wondering if even after a month on the diet if I can still be having detox symptoms. That's what it feels like it is, I just thought this part would be over sooner. My dr also has me on homeopathic detox drops for my liver and kidneys as I have a mild fatty liver (not from alcohol/drugs). I also have been doing green smoothies with fresh greens daily too, I suppose all this might be too much for my system to handle. Can anyone give any insight as to how long detox can last from going gluten/dairy free and what are some things you can do to relieve the awfulness of it? Also how long it takes to start feeling better from the fatigue and headaches etc? Thank you! T



Hi there T, I am in the same boat (off gluten for 2 weeks now) Just finally heard today my bloodwork was negative. Because I have been off gluten, I am not going to pursue further testing. The severe gas pains, bloating, and cramping has stopped. I have lost a few pounds, and the swelling in my face has gone down. IIf I do not have celiacs, I have an obvious intolerance plus several other autoimmune diseases. However, I still get some headaches as well, and I am still fatigued. What detox drops do you take? My ND has me on UNDA numbers biotherapeutic drainage). I haven't noticed that they are helping much-but who knows when it is in conjunction with dietary changes. What are you putting in the smoothie? Have you considered cutting out dairy as well? I cut out both gluten and dairy. I had a little dairy yesterday and ended up with D all morning. I realized that both are affecting me!
  • 0
Kathy
Diagnosed with Sjrogren's in 2010
Diagnosed with Reynauds in 2010
Diagnosed with Hashimotos Thyroid Nov 2011-due to enlarged thyroid with nodules
October 2011-started having stomach cramping and gas pains-mostly in the evenings
end of November 2011-removed gluten
Dec 2011-celiac panel negative

#3 Tarantula44

 
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Posted 05 December 2011 - 06:21 PM

Hi there T, I am in the same boat (off gluten for 2 weeks now) Just finally heard today my bloodwork was negative. Because I have been off gluten, I am not going to pursue further testing. The severe gas pains, bloating, and cramping has stopped. I have lost a few pounds, and the swelling in my face has gone down. IIf I do not have celiacs, I have an obvious intolerance plus several other autoimmune diseases. However, I still get some headaches as well, and I am still fatigued. What detox drops do you take? My ND has me on UNDA numbers biotherapeutic drainage). I haven't noticed that they are helping much-but who knows when it is in conjunction with dietary changes. What are you putting in the smoothie? Have you considered cutting out dairy as well? I cut out both gluten and dairy. I had a little dairy yesterday and ended up with D all morning. I realized that both are affecting me!


Hi Kathryn,
From reading this forum and other articles it seems lots of folks have negative blood tests but can still be positive. The testing sounds kinda nutz and not so reliable, I think many have realized that they feel better off gluten and so they should stick to that. I am off dairy as well, I eliminated that along with the gluten. I am on the UNDA drops as well! 2, 20, 243. I started them 3 weeks ago, and am just starting to notice these detox symptoms. Today was one of the worst days I think I've ever had! The fatigue and muscle and bone pain are pretty horrific. I guess it's nice to know something is working if this is detox. I've been doing green smoothies every morning, they consist of leafy greens (spinach, kale or chard) and fruit and water: http://greenforlife.com/ I think I may be over doing it. I am going to take a break from the smoothies for now, until these symptoms reside a bit. Thanks for your reply, so glad you're feeling better and good luck with the rest. t.
  • 0
Basic bloodwork for celiac came back negative. No biopsy done.
Went gluten and dairy free November 7, 2011. Trying to figure this out myself...will update when/if I see results from gluten-free/DF diet!

#4 kathrynk

 
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Posted 05 December 2011 - 06:33 PM

Hi Kathryn,
From reading this forum and other articles it seems lots of folks have negative blood tests but can still be positive. The testing sounds kinda nutz and not so reliable, I think many have realized that they feel better off gluten and so they should stick to that. I am off dairy as well, I eliminated that along with the gluten. I am on the UNDA drops as well! 2, 20, 243. I started them 3 weeks ago, and am just starting to notice these detox symptoms. Today was one of the worst days I think I've ever had! The fatigue and muscle and bone pain are pretty horrific. I guess it's nice to know something is working if this is detox. I've been doing green smoothies every morning, they consist of leafy greens (spinach, kale or chard) and fruit and water: http://greenforlife.com/ I think I may be over doing it. I am going to take a break from the smoothies for now, until these symptoms reside a bit. Thanks for your reply, so glad you're feeling better and good luck with the rest. t.


I am on UNDA numbers 1, 20, and 243... You mentioned thyroid antibodies...did you get a dx of hashimotos? The reason I'm asking is because cruciferous (SP?) veggies are not good for thyroid function (kale, broccoli, cauliflower) Also...I have read that the risk of getting a false negative is much higher for people with hashimotos...I will see if I can dig up where I read that. Probably on here...these people have been an amazing resource and wealth of knowledge!
  • 0
Kathy
Diagnosed with Sjrogren's in 2010
Diagnosed with Reynauds in 2010
Diagnosed with Hashimotos Thyroid Nov 2011-due to enlarged thyroid with nodules
October 2011-started having stomach cramping and gas pains-mostly in the evenings
end of November 2011-removed gluten
Dec 2011-celiac panel negative

#5 Tarantula44

 
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Posted 06 December 2011 - 09:36 AM

Oh wow! That is really interested about the false neg with Hashi's. My doc didn't diagnose me with Hashis I guess because my hormone levels were fine. I do have many symptoms though, intolerance to cold, hair is falling out, but she said lots of those symptoms can be interchangeable with adrenal issues which I do have primarily, she tested my cortisol levels and they are a little under where they should be. She also said many people have thyroid antibodies and she sort of brushed it off. That is another question of mine tho, should I be concerned about it? I've heard so many times, on this forum and in clinical studies that thyroid issues resolve on gluten-free diet. So I guess I'm just going to see if it all gets better before getting cconcerened about anything. If you find that study please post it. Seems like we're in a similar situation. I also have reynauds, I saw that in your sig. K
  • 0
Basic bloodwork for celiac came back negative. No biopsy done.
Went gluten and dairy free November 7, 2011. Trying to figure this out myself...will update when/if I see results from gluten-free/DF diet!

#6 Celtic Queen

 
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Posted 06 December 2011 - 11:23 AM

Could you have an intolerance to any other kinds of foods. Lots of people on here have issues with corn, soy, nightshade vegetables, msg, etc. You might look into an elimination diet to see if you can find an underlying issue.

I was reading a book last night that said healing times can vary greatly from person to person. A lot of it can depend on your age and how much damage has been done to your intestine.

Also, could you be getting cross contaminated somehow? That gluten is very sneaky :P
  • 0

Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....





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