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Going Dairy Free


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#1 Booghead

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Posted 05 December 2011 - 02:33 PM

I'm not feeling all the way better with my stomach and still having some C. I felt much better after going gluten free and I was regular until I got glutened over 2 weeks ago. I have been having some cramping and bloating along with gas. Its common for many people to go dairy free as well as gluten free at first. I have cut out all gluten, so I am getting my carbs from dairy. I love dairy. I need dairy. I haven't been drinking milk for over a month. Now I am cutting out cheese and yogurt.

Do I need to cut out butter?

Can I cheat sometimes with dairy? I have a lactose blocker but I don't know if it works.

Do I have to worry about dairy in things (brownies, cookies, pancakes)?

Also one quick question: Is candy corn gluten free?

Thanks for all the help and my doctors app. is on thursday. B)
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#2 burdee

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Posted 05 December 2011 - 04:12 PM

I'm not feeling all the way better with my stomach and still having some C. I felt much better after going gluten free and I was regular until I got glutened over 2 weeks ago. I have been having some cramping and bloating along with gas. Its common for many people to go dairy free as well as gluten free at first. I have cut out all gluten, so I am getting my carbs from dairy. I love dairy. I need dairy. I haven't been drinking milk for over a month. Now I am cutting out cheese and yogurt.

Do I need to cut out butter?

Can I cheat sometimes with dairy? I have a lactose blocker but I don't know if it works.

Do I have to worry about dairy in things (brownies, cookies, pancakes)?

Also one quick question: Is candy corn gluten free?

Thanks for all the help and my doctors app. is on thursday. B)


Although I thought I had lactose intolerance and used "Lactaid" drops, tablets and/or milk for several years before my celiac diagnosis, I was diagnosed with casein allergy along with gluten intolerance (and celiac markers). So I realized I was not digesting the casein protein in dairy products, not just the dairy sugar 'lactose'. From then on I abstained from all forms of dairy, anything which contained casein, rennet or whey, because I hated those waves of cramping pain, sinus infections and constipation reaction symptoms from dairy. To answer your questions:

Yes, you need to find a safe casein/dairy free butter substitute. If you tolerate soy, Earth Balance (yellow container) is a great substitute. If not, the red carton Earth Balance product is equally good.

Cheating sometimes with dairy just means you'll get more intense reaction symptoms than if you never stopped eating dairy. The longer periods between consumption cause even stronger (more painful) reactions. If you're going off dairy, find good substitutes so that you won't feel tempted to cheat. I went off dairy in July 2004. Since then I've found more and more great (soy free) substitutes for all my former favorite dairy products.

YES, you'll have to abstain from products with contain small amounts of dairy. Read labels. Shop at stores which carry allergy free products. You will find dairy free products. However, you can make your own brownies, cookies, pancakes for much less than you can buy them. There are gluten-free pancake mixes to which you can add either rice, soy, coconut, hemp or any nut milks. I cook with rice milk (because it's cheap) unless I want a higher fat content in my end result. Then I'll use either coconut or hazelnut milk (I don't have nut allergies).

Yes, candy corn is gluten free.
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#3 Booghead

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Posted 05 December 2011 - 05:36 PM

This is too depressing. I might just go back on gluten and pretend like my "symptoms" are the norm like I always have. >.<
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#4 IrishHeart

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Posted 05 December 2011 - 05:56 PM

This is too depressing. I might just go back on gluten and pretend like my "symptoms" are the norm like I always have. >.<


That won't solve your problem, Boog! C'mon now!

Giving up dairy is temporary for most celiacs. A few months so the villi can heal and you don't feel like crap.

Get coconut milk (So Delicious brand), you won't notice any difference. High in calcium, tastes great. They make a great coconut "ice cream" too.

Get Earth Balance soy free spread.

You can do this. :)

Here, read this:

Interview with Dr. Stefano Guandalini, Director of the University of Chicago Celiac Disease Center:
In general how long does it take for lactose intolerance secondary to celiac disease to resolve?
“Lactose intolerance (if present: in many patients, and particularly those who come to the diagnosis with minimal GI symptoms, even lactose can be fully digested) would persist until an adequate intestinal absorptive surface is reconstituted; again, this is variable between different patients, but typically 2-3 months should be enough to allow for regeneration of adequate amounts of lactase."

Feel better?

I admit, I had to wait much longer than a few months to digest dairy, but I was very ill for many years. Everyone is different. Some celiacs can NEVER digest dairy again, but that is not the "norm".

Don't get frustrated, you're still healing. Hang in there!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#5 Booghead

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Posted 05 December 2011 - 06:42 PM

Well according to my biopsys: Everything looks normal. So does that means there is no damage? Or no visible damage? What if the blood results were just a false positive? Is that possible? :angry:
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#6 mushroom

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Posted 05 December 2011 - 06:48 PM

False positive blood results are actually extremely rare. :rolleyes: False negatives are quite common :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#7 IrishHeart

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Posted 05 December 2011 - 07:13 PM

False positive blood results are actually extremely rare. :rolleyes: False negatives are quite common :)



shroomie, we all seem to know this, yet this recent article claims:

"false positives are not unusual"...what the heck?? How could they write that? There are more things in the article to take issue with,but that bothered me terribly.

http://www.nytimes.c...-over.html?_r=1
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#8 IrishHeart

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Posted 05 December 2011 - 07:15 PM

Well according to my biopsys: Everything looks normal. So does that means there is no damage? Or no visible damage? What if the blood results were just a false positive? Is that possible? :angry:


It is my understanding that it just means the damage is not extensive yet, or the biopsied areas were not damaged?
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#9 mushroom

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Posted 05 December 2011 - 07:26 PM

shroomie, we all seem to know this, yet this recent article claims:

"false positives are not unusual"...what the heck?? How could they write that?


Well, as it turned out, they were not "false positives" were they? :rolleyes: Perhaps the doctor just 'believes' there are false positives and that makes them so?
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#10 Takala

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Posted 05 December 2011 - 08:13 PM

Well, what are your symptoms when you eat dairy, anyway ? If the hard aged cheeses don't bother you, and the yogurt doesn't bother you, it may just be the lactose in milk. When I first went grain free, I would "cheat" with just a little dairy sometimes in cheese, and it didn't seem to make any difference. The freaking yogurt was another thing. I gave up after I must have tried every brand in the store and reacted as if it had lactose anyway. Ideally, I would be on organic yogurt, but even the way they processed that with extra added dry milk solids would be too much. Took several years to find something that was plain and not screwed up with thickeners. That was when I pretty much gave up using dairy in baking, because I kept trying yogurts and it was a great way to ruin a batch of bread for me. <_< :angry: Now if I would do something for somebody else, I might put butter in it, like cookies, but I don't use very much at all, still, for myself. I have made pancakes out of almost everything, and "butter" and "milk" is completely superfluous to the process.

You can put condensed coconut milk in coffee. Once you start doing this, if you add other flavorings, like spices and heating it up, you may actually start preferring it to regular milk. High quality, extra virgin Olive oil can be used in most places that butter went before. Mild olive oil can even be successfully used in many types of baking. Coconut oil is also good for cooking, besides the moisturizing. :) Avocados are great where cheese might go as a garnish.

Some of the gluten free commercially baked substitute ingredients just slay me still today. I am not good with flax, I suspect tapioca isn't doing me any favors either, and soy flour, which is, for reasons only known to God, a common contaminant in gluten free mixes, does not set in my digestive tract nicely at all. And I can't do much white fluffy carbohydrates/sugars anyway.
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#11 Chad Sines

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Posted 05 December 2011 - 08:51 PM

I keep going back and forth from dairy allergy to not; however, the symptoms say allergy and not intolerance. There is a lot of overlap in the symptoms; however, the bloody sinuses and extreme fatigue leads me more to allergy. A decent test is a week without to see how you feel. That is my goal for this week.
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#12 IrishHeart

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Posted 06 December 2011 - 06:13 AM

Well, as it turned out, they were not "false positives" were they? :rolleyes: Perhaps the doctor just 'believes' there are false positives and that makes them so?


EXACTLY my point. Thanks for the back-up. ;)
The criteria for "diagnosing" needs to be revamped. They're all missing the boat--look at all of US!! The whole tone of the article was off-putting to me anyway. The "savoir doctor" swoops in and "saves" the day??? PUL-LEEZ!!!

Five minutes with this woman and WE could have told her she was a celiac. :rolleyes:

Just sayin <_<
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 IrishHeart

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Posted 06 December 2011 - 06:26 AM

I keep going back and forth from dairy allergy to not; however, the symptoms say allergy and not intolerance. There is a lot of overlap in the symptoms; however, the bloody sinuses and extreme fatigue leads me more to allergy. A decent test is a week without to see how you feel. That is my goal for this week.



Chad,

Not sure how long you have been gluten-free, but the bloody nose/fatigue can still just be from celiac, too. It may resolve soon enough.

I had sinus congestion & pain, swollen throat & puffy face, difficulty swallowing, sneezing, swollen eyelids, a swollen, burning tongue and lips, headaches...I was a mess for 2 years with that stuff. Was it dairy allergies? lactose or casein intolerance? Dust or seasonal allergies? my cat--suddenly I am allergic? :blink:

Extensive (and expensive)testing said NOPE!!! IgE, IgG, etc. Allergist looked at me like I was crazy, yet there I was, eyes & nose dripping, raspy throat, exhausted and ditzy in the head.

All gone now. :) What was causing it? Gluten. :angry:

I agree with you totally. The only way to know what food may be causing the problem is TO REMOVE IT from your diet. I would say give it a month or two.
Best wishes!
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#14 Celtic Queen

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Posted 06 December 2011 - 08:28 AM

Also one quick question: Is candy corn gluten free?


I think Candy Corn is gluten free itself, but watch for shared facilities. I was looking at some Brach's candy corn at Halloween and it was processed in a facility that also processed wheat.

As for going dairy free, I feel your pain. I think that's harder for me to give up than the gluten. I love cheese. I've been doing "dairy light" recently in preparation for going fully dairy free after the holidays. It's hard, but the dairy has a big impact on my sinuses.

I watched an interesting movie on Netflix the other night called "Forks Over Knives." Basically the movie supports a plant-based, vegan diet. But one of the interesting things in the movie was how dairy really is bad for us. We are the only species that drinks the milk of other animals. And countries that have the highest milk intake, like the U.S., actually have one of the lowest rates of calcium absorption. They talk about how this big push for dairy being an important part of our diets was created by marketing done by the dairy council. And that it, just like wheat, is not really necessary to have a healthy diet.
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Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#15 RollingAlong

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Posted 06 December 2011 - 11:43 AM

you could try ghee (no casein, no lactose)
Pure Indian Foods is a good brand.
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