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Going Dairy Free


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#16 IrishHeart

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Posted 06 December 2011 - 03:15 PM

you could try ghee (no casein, no lactose)
Pure Indian Foods is a good brand.



yes, Great idea! :) ( I forgot--I used ghee for months with no issues)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


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#17 Booghead

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Posted 06 December 2011 - 04:11 PM

Thanks for all the input everyone. I think I will start dairy light. Stil use small amounts of butter and milk in baking products this week. Next time we go grocery shopping we'll buy some dairy free milk. Is silk a brand anyone uses? I see it all the time.
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#18 Marilyn R

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Posted 06 December 2011 - 06:20 PM

I keep going back and forth from dairy allergy to not; however, the symptoms say allergy and not intolerance. There is a lot of overlap in the symptoms; however, the bloody sinuses and extreme fatigue leads me more to allergy. A decent test is a week without to see how you feel. That is my goal for this week.


If your gut is bad and autoimmune system is on fire, I'd recommend more time for healing, like six or even (Yikes!) 12 months. of avoiding what hurts you. That could just be my experience though, and it seemed like everything I ate was making me ill. I'm doing much better and reintrducing foods now.

I'm only adding this as friendly advice.. maybe a week work's for you, if so, that's great!
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#19 IrishHeart

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Posted 07 December 2011 - 06:49 AM

If your gut is bad and autoimmune system is on fire, I'd recommend more time for healing, like six or even (Yikes!) 12 months. of avoiding what hurts you. That could just be my experience though, and it seemed like everything I ate was making me ill. I'm doing much better and reintrducing foods now.

I'm only adding this as friendly advice.. maybe a week work's for you, if so, that's great!


Thanks, Marilyn for adding this in support of what I said earlier..... I sound like a broken record on here, :rolleyes: but the truth is, when your gut is so ravaged, EVERYTHING seems like it is a problem. I drove myself insane with that stuff "is it this, that, the air I breathe??" :blink: Rotations diets, elimination diets, blah blah blah.

I know many do not like to hear the "it could take months to a year answer"...but sadly, with celiac " it just is what it is ...until it isn't."

I thought I had MULTIPLE FOOD INTOLERANCES, I was so sick, even for 6 MONTHS after going gluten-free. I could not even swallow some things! Even veggies hurt. Citrus? like battery acid! Food was like razor blades. I am not kidding. I was down to rice and water at one point. I just hung in there and now,

I eat everything! :)

Time. Heals. All.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#20 StephanieL

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Posted 07 December 2011 - 07:18 AM

My go to "butter" is Earth Balance (not the soy, i don't do soy) and Fleishmanns UNSALTED sticks (for baking/frosting and the like). My son has Celiac as well as allergies that include dairy. I make 90% of our dinners gluten-free/DF (as well as peanut, tree nut, egg, coconut/palm, banana and blueberry free).

It isn't that tough once you get the hang of it.
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#21 anabananakins

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Posted 07 December 2011 - 06:43 PM

As for going dairy free, I feel your pain. I think that's harder for me to give up than the gluten. I love cheese. I've been doing "dairy light" recently in preparation for going fully dairy free after the holidays. It's hard, but the dairy has a big impact on my sinuses.


Totally agree with all of this! It's hard! I'm experimenting with dairy free (going dairy light to start). I've done a few days at a time and then I fall off the wagon, I adore dairy. Dairy and wheat used to be my two main food groups :-) I'm lactose intolerant so I've mostly ditched yoghurt, cottage cheese etc, lactose free milk is awesome but it doesn't work with my insulin resistance. I've recently been eating cream cheese muffins (no base) and they are so yummy, but using up a packet of cream cheese today (swearing I wouldn't buy more) I now have a big stomach ache from the ones that I just ate. Meh. I need to remember this feeling.

Coconut cream is great! It's really good for you too. They rave about it constantly over at Mark's Daily Apple (where they are also totally down on grains so those recipes are very gluten free friendly)

Be careful with your food intake if you drop dairy suddenly. I cut out milk and yoghurt and suddenly lost about 50gs carb a day, it was a bit of a shock to my body (I'm already pretty low carb). Those calories need to be replaced somehow (unless of course you're eating tonnes of food and could afford to cut back)
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#22 Chad Sines

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Posted 07 December 2011 - 10:11 PM

If your gut is bad and autoimmune system is on fire, I'd recommend more time for healing, like six or even (Yikes!) 12 months. of avoiding what hurts you. That could just be my experience though, and it seemed like everything I ate was making me ill. I'm doing much better and reintrducing foods now.

I'm only adding this as friendly advice.. maybe a week work's for you, if so, that's great!


Booo. lol. I really need to get serious with no gluten, dairy, and soy. Been too lax here lately.
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#23 mushroom

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Posted 07 December 2011 - 11:41 PM

Booo. lol. I really need to get serious with no gluten, dairy, and soy. Been too lax here lately.


Yep, going half way doesn't get you there - it only gets you half way :D
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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#24 Pegleg84

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Posted 08 December 2011 - 10:40 AM

I'll just throw in my 2 cents here:

I've been in denial about issues with dairy for probably a couple years (since going gluten free), probably because I never would have expected to have the symptoms I do because of it (sinus congestion/pain, headache, mild vertigo, some nausea but not much in the stomach department). Recently I've tried cutting down on salt and dairy to help manage the vertigo and wham! While salt also aggravates it, dairy gets me going immediately as well. I'm pretty sure it's an intolerance to casein, and am now going to try going dairy free for a few weeks.

I think you have to stick to a certain diet for a couple weeks at least before you can be really sure you're getting better or worse. Our bodies need time to heal or adjust. Some of the proteins in milk (if it's casein you're having trouble with) are similar to gluten in structure and could be causing similar problems.

Not drinking milk is no problem, but resisting cheese, butter, and yogurt is definitely a difficulty and an ajustment. But same as accepting that you can't have that piece of cake or pint of beer you've always enjoyed, you find things to replace it with, get better, and never look back!

(also, about that article, amazing how hard some doctor's have to think about whether it's celiac or not. Even if it had been a "false positive", any doctor with half a brain should tell them to go on the gluten-free diet away. My bloodtest was negative, I've never had a biopsy, and I know I have it. If you get better on the diet, the tests really don't matter all that much.)

Good luck!
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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#25 IrishHeart

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Posted 08 December 2011 - 11:27 AM

Not drinking milk is no problem, but resisting cheese, butter, and yogurt is definitely a difficulty and an ajustment. But same as accepting that you can't have that piece of cake or pint of beer you've always enjoyed, you find things to replace it with, get better, and never look back!


I Agree!!! ...cheese was harder for me to give up than gluten... :(

I went many months DF (except for butter)---just added some cheese and yogurt back in. Still use coconut milk, though. So far, so good. IN MODERATION. ;)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#26 IrishHeart

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Posted 08 December 2011 - 11:29 AM

Thanks for all the input everyone. I think I will start dairy light. Stil use small amounts of butter and milk in baking products this week. Next time we go grocery shopping we'll buy some dairy free milk. Is silk a brand anyone uses? I see it all the time.


Hon, dairy LIGHT won't help you.

Take it OUT for awhile. Like a month...then add it back in later.

I'd skip the Silk soy milk.

Use coconut or almond milk.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#27 Celtic Queen

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Posted 08 December 2011 - 11:41 AM

Just to clarify, for me I plan on going full dairy free after the holidays. I'm doing dairy light until then. I just didn't want to add one more thing on my plate this time of year. And my problems with it are annoying, but nothing I can't live with for a month. But come January 1st, I'm going fully dairy free. But for you it sounds like this is a lot more serious, so you may want to consider going straight to dairy free.

As for the Silk soy milk, I agree with IrishHeart. Skip it. I think it's pretty gross tasting myself, unless I get the vanilla flavored, which kind of disguises it. I much prefer the almond milk. It costs a little more but tastes so much better. I haven't tried the coconut yet. I also like the rice milk.
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Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#28 Korwyn

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Posted 08 December 2011 - 12:19 PM

Hi Booghead,

I sympathize. Giving up cheese was (initially) for me the worst part of giving up dairy. I think after my initial few months of trying to cope with everything when I discovered I really did have to drop dairy it was harder than the gluten. At least with the gluten I started feeling better immediately. With the dairy there wasn't the dramatic improvement from dying to living. :) But I tested positive for IgA to beta-casein protein present in cow's milk.

I fell in love with goat cheese, but not goat milk (bleah :P ) and goat cheese is really expensive.

But...on that note...about six months ago I discovered (through a long story that I won't go into here) that I cannot tolerate pasteurized cow's milk. I can eat unpasteurized (cow) butter, cream, milk, and cheese to my hearts content.

I think that this link contains part of the answer. Scroll down to the section: Nutritional Differences: Raw Milk and Pasteurized Milk.

Now all of that said, please note that the Federal Food and Drug Administration advises that people do not consume pasteurized dairy as they believe it carries significant health risks. I'm telling you what I have found for my personal health and well-being.

I will tell you that I still cannot tolerate pasteurized dairy much at all. If I have been eating or drinking raw milk in the previous few hours I can get away with some pasteurized dairy (I believe due to the presence of some small amounts of enzymes in by system) but if I haven't been, pasteurized dairy induces violent projectile vomiting within a short period of time (minutes to a couple hours depending on quantity).
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#29 MenHen

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Posted 09 December 2011 - 12:20 PM

I completely sympathize! I was so excited, because I didn't think I had a lactose problem. Now I realize I do. It is only minor as far as I can tell and am very hopeful its just temporary and not casein. My big question - Is there a replacement for sour cream? I love sour cream.


I watched an interesting movie on Netflix the other night called "Forks Over Knives." Basically the movie supports a plant-based, vegan diet. But one of the interesting things in the movie was how dairy really is bad for us. We are the only species that drinks the milk of other animals. And countries that have the highest milk intake, like the U.S., actually have one of the lowest rates of calcium absorption. They talk about how this big push for dairy being an important part of our diets was created by marketing done by the dairy council. And that it, just like wheat, is not really necessary to have a healthy diet.


I will have to check out that movie. I have said for over awhile now that dairy is very unncessary for us and that it was all a marketing ploy for $$. Of course, I love dairy. I could care less about milk, but all the cheeses and sour cream - yum.
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#30 MenHen

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Posted 09 December 2011 - 12:28 PM

Well, as it turned out, they were not "false positives" were they? :rolleyes: Perhaps the doctor just 'believes' there are false positives and that makes them so?


That is such a crazy article! Maybe it will help someone though. I think he said that to make his money. He had done all this work for her, but he most likely needed to see her to make the money!
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