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Tingling/hurting Feet And Legs


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4 replies to this topic

#1 abqrock

 
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Posted 20 August 2005 - 12:00 AM

My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here.

Does anyone know if this could be connected to celiac disease or DH?
Tas
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#2 Guest_nini_*

 
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Posted 20 August 2005 - 05:03 AM

to answer your question, yes it can be related... look into Peripheral Neuropathy related to Celiac... I'm actually experiencing something very much like this at the moment. Numbness and tingling in both arms and legs and feet and hands... it's very disconcerting to say the least!
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#3 Rachel--24

 
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Posted 20 August 2005 - 06:35 AM

I get tingling/numbness in my face, hands, arms and feet.
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Rachel

#4 ravenwoodglass

 
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Posted 20 August 2005 - 07:36 AM

My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here. 

Does anyone know if this could be connected to celiac disease or DH?
Tas

<{POST_SNAPBACK}>


This can definately be connected. Before diagnosis this was a great problem for me. One thing that helped was sublingual B12. You should be able to stop the B12 after he has been gluten-free for awhile and his gut has had a chance to heal. Of course ask the doctor first but there shouldn't be any contraindications for this. Make sure the b12 is sublingual that way you know it is getting into his system. Of course make sure it is gluten-free. Also about the senses this is not your imagination, my son was so skin and noise sensitive that he would only wear sweats for over 5 years and music at any level physically hurt him. My daughter and I have the same thing but not as severe. Maybe it is something that is related to our genetic difference. Good luck and thank goodness this was recognized early our families delayed diagnoses resulted in unresolvable problems.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 julie5914

 
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Posted 22 August 2005 - 07:01 AM

I'm surprised no one has mentioned Raynaud's yet. I was recently diagnosed. It is also autoimmune and is tied to the same gene as Celiac. It is also related to lupus and other rheumatic diseases. Basically, the immune system overreacts to changes in temperature or emotional upset and sends all the blood away from the extremeties and towards the internal organs as a survival reflux.

My doctor simply put me on calcium channel blockers to relax my blood vessels and tame the reaction. It doesn't completely resolve symptoms, but it helps. I am also being tested for lupus because of the strong connection.
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Blood work positive
Dx with IBS 5 years ago
Dx with Celiac and gluten-free since 6/17/05




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