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Tingling/hurting Feet And Legs
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My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here.

Does anyone know if this could be connected to celiac disease or DH?

Tas

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to answer your question, yes it can be related... look into Peripheral Neuropathy related to Celiac... I'm actually experiencing something very much like this at the moment. Numbness and tingling in both arms and legs and feet and hands... it's very disconcerting to say the least!

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I get tingling/numbness in my face, hands, arms and feet.

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My 5-year old son has celiac disease and DH. He complains fairly often that his feet or leg and sometimes his hands tingle to the point of discomfort. I first thought that his feet or leg at the time and just fallen asleep by the way he described the feeling. His senses seems to be more acute the most people. He needs to wear earmuffs when we go to the movies. My sister and I both have a very strong sense of smell (not always a good thing) so I think it just runs in the family. I started keeping track of when he complained about the tingling feeling and noticed that his body was not in an awkward position that might cause them to loose circulation. Someone said vitamin B deficient but the Doctor said he would have to be in pretty bad shape for that and she said it was just growing pains. Since my faith in western doctors in limited, I thought I would check here. 

Does anyone know if this could be connected to celiac disease or DH?

Tas

<{POST_SNAPBACK}>

This can definately be connected. Before diagnosis this was a great problem for me. One thing that helped was sublingual B12. You should be able to stop the B12 after he has been gluten-free for awhile and his gut has had a chance to heal. Of course ask the doctor first but there shouldn't be any contraindications for this. Make sure the b12 is sublingual that way you know it is getting into his system. Of course make sure it is gluten-free. Also about the senses this is not your imagination, my son was so skin and noise sensitive that he would only wear sweats for over 5 years and music at any level physically hurt him. My daughter and I have the same thing but not as severe. Maybe it is something that is related to our genetic difference. Good luck and thank goodness this was recognized early our families delayed diagnoses resulted in unresolvable problems.

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I'm surprised no one has mentioned Raynaud's yet. I was recently diagnosed. It is also autoimmune and is tied to the same gene as Celiac. It is also related to lupus and other rheumatic diseases. Basically, the immune system overreacts to changes in temperature or emotional upset and sends all the blood away from the extremeties and towards the internal organs as a survival reflux.

My doctor simply put me on calcium channel blockers to relax my blood vessels and tame the reaction. It doesn't completely resolve symptoms, but it helps. I am also being tested for lupus because of the strong connection.

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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