Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Traveling And Need Help
0

16 posts in this topic

I am so frustrated. I am traveling away from home. Generally bring food but yesterday was exhausted and unprepared, also starved so ordered Wendy's baked potato with cheese and brocolli. Also decaf coffee.

After that, my friend offered me a stick of (I think) Carefree chewing gum.

I immediately almost collapsed from exhaustion after the meal and have been up all night with SEVERE gas and flatulence. Just miserable.

I read online that Wendy's potatoes with cheese is safe. Anyone else have this experience with this type of food from there? Not sure about the chewing gum, which I never chew and didn't think about it....haven't been glutened in a long time and so I was not as vigilant as I needed to be. I'm just miserable today...no way to spend a vacation. So frustrated.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am so frustrated. I am traveling away from home. Generally bring food but yesterday was exhausted and unprepared, also starved so ordered Wendy's baked potato with cheese and brocolli. Also decaf coffee.

After that, my friend offered me a stick of (I think) Carefree chewing gum.

I immediately almost collapsed from exhaustion after the meal and have been up all night with SEVERE gas and flatulence. Just miserable.

I read online that Wendy's potatoes with cheese is safe. Anyone else have this experience with this type of food from there? Not sure about the chewing gum, which I never chew and didn't think about it....haven't been glutened in a long time and so I was not as vigilant as I needed to be. I'm just miserable today...no way to spend a vacation. So frustrated.

I have had their bacon and cheese (I think thats what it was?) potato. I read that it was safe also and had no problems with it.

I have NOT had any gum yet, I was afraid of gum just because I know its so processed, and I can't have splenda anyways.

Could you be having problems with dairy? Or the broccoli could explain the gas, not the exhaustion though.

I am traveling for 12 days come Friday...I am terrified. Especially because I will be at the mercy of my husband's 90 year old Grandma, I doubt she is going to understand I can't eat her toast...etc. =( We plan to tell her I have an allergy but I just can't invisioning her understanding.

0

Share this post


Link to post
Share on other sites

I have had their bacon and cheese (I think thats what it was?) potato. I read that it was safe also and had no problems with it.

I have NOT had any gum yet, I was afraid of gum just because I know its so processed, and I can't have splenda anyways.

Could you be having problems with dairy? Or the broccoli could explain the gas, not the exhaustion though.

I am traveling for 12 days come Friday...I am terrified. Especially because I will be at the mercy of my husband's 90 year old Grandma, I doubt she is going to understand I can't eat her toast...etc. =( We plan to tell her I have an allergy but I just can't invisioning her understanding.

Interesting that you had no problem with the cheese.....I do have some issues with dairy but cheese has been ok for me in the past.

Maybe it was the gum. I wish you well on your trip.

Luckily I am staying in my own efficiency and can cook most of my meals. Otherwise I know I'd be ill a lot. Eating anywhere but home is a huge challenge for me.:(

0

Share this post


Link to post
Share on other sites

Is the brocolii in a cheese sauce? I know the plain cheese they sprinkle on I'd gluten-free. If its a sauce, might not be? Did you check the Wendy's site?

0

Share this post


Link to post
Share on other sites

Is the brocolii in a cheese sauce? I know the plain cheese they sprinkle on I'd gluten-free. If its a sauce, might not be? Did you check the Wendy's site?

Yes, the website says the potato with cheese and broc. does not contain gluten but with an asterisk nest it. The asterisk indicates that some Wendy's stores may have gluten in it. Very confusing.

I did ask the server at the Wendy's if there was gluten in the cheese and she said that she did not know. That is the last cheese potato I'll ever get at Wendy's. I'm still sick and probably will be for awhile. No way to spend a vacation. Really is my own fault.

Probably will start carrying apples and hard boiled eggs with me when I go shopping or am away from home base for extended periods while on this trip. Some friends suggest those gluten free protein bars.....those are not at all satisfying to me. They don't quell my hunger and are loaded with fat and sugar:(

0

Share this post


Link to post
Share on other sites




The asterisk says it varies and may not be available at every store.

The first time I went to Wendy's the manager said to always say " Wheat Allergy". Not everyone speaks English but they know what that means. Don't let them open the potato. Keep it wrapped up. They also said they weren't confident that they hadn't gotten crumbs in the shredded cheese. I got a wrapped potato, a bowl of chili and packets of sour cream. Then I put the chili on the potato myself.

0

Share this post


Link to post
Share on other sites

The asterisk says it varies and may not be available at every store.

The first time I went to Wendy's the manager said to always say " Wheat Allergy". Not everyone speaks English but they know what that means. Don't let them open the potato. Keep it wrapped up. They also said they weren't confident that they hadn't gotten crumbs in the shredded cheese. I got a wrapped potato, a bowl of chili and packets of sour cream. Then I put the chili on the potato myself.

The chili is gluten free? I would have ordered that with the potato but was REALLY concerned that it could have flour.

0

Share this post


Link to post
Share on other sites

The chili is gluten free? I would have ordered that with the potato but was REALLY concerned that it could have flour.

It's on the list, amongst the potato options.

0

Share this post


Link to post
Share on other sites

It's on the list, amongst the potato options.

Yes, I hear you and saw it there. I'm just feeling a little skeptical of anything they say

on the website at this point.....I checked out the gum....definitely no gluten in it so it

HAD to be the cheese. The website says it contains no gluten as well.

0

Share this post


Link to post
Share on other sites

I order the plain baked potato from Wendy's all the time and have never had a problem, so it may be the cheese sauce. That's frustrating. I didn't realize the chili was okay to eat.

My son and I went to Wendy's Sunday for lunch and they ran out of baked potatoes. It's so frustrating to go to a restaurant where you can only order a couple of things and them to run out of one of them. Ugh.

Hope you feel better soon.

0

Share this post


Link to post
Share on other sites

We have trouble whenever we eat out. Lots of foods can start out gluten-free, but don't always stay that way due to cross contamination.

I usually pack a few of those meals from GoPicnic for travel and emergencies. They are not perfect, but pretty satisfying and not super junky.

Cara

0

Share this post


Link to post
Share on other sites

Yes, the website says the potato with cheese and broc. does not contain gluten but with an asterisk nest it. The asterisk indicates that some Wendy's stores may have gluten in it. Very confusing.

I did ask the server at the Wendy's if there was gluten in the cheese and she said that she did not know. That is the last cheese potato I'll ever get at Wendy's. I'm still sick and probably will be for awhile. No way to spend a vacation. Really is my own fault.

Probably will start carrying apples and hard boiled eggs with me when I go shopping or am away from home base for extended periods while on this trip. Some friends suggest those gluten free protein bars.....those are not at all satisfying to me. They don't quell my hunger and are loaded with fat and sugar:(

I work away from home a lot and always have to eat protein bars to keep up my energy. I recommend Oskri bars and Lara Bars. Oskri are gluten-free and vegan in case you do have problems with dairy after all. From what I remember they dont use sugar at all, but things like honey and rice or date syrup. Lara bars arent as tasty but because I can usually find them more often I eat them a lot. Just be careful cause some arent vegan. If you cant find the Oskri bars at a health food store try ordering them online, thats what I do and trust me when I say they are soooo worth it. =) good luck

0

Share this post


Link to post
Share on other sites

I work away from home a lot and always have to eat protein bars to keep up my energy. I recommend Oskri bars and Lara Bars. Oskri are gluten-free and vegan in case you do have problems with dairy after all. From what I remember they dont use sugar at all, but things like honey and rice or date syrup. Lara bars arent as tasty but because I can usually find them more often I eat them a lot. Just be careful cause some arent vegan. If you cant find the Oskri bars at a health food store try ordering them online, thats what I do and trust me when I say they are soooo worth it. =) good luck

I have had the Lara bars but not the Oskri.....will try to find them.

Thanks everyone for all the suggestions, really appreciate it.

0

Share this post


Link to post
Share on other sites

I am so frustrated. I am traveling away from home. Generally bring food but yesterday was exhausted and unprepared, also starved so ordered Wendy's baked potato with cheese and brocolli. Also decaf coffee.

After that, my friend offered me a stick of (I think) Carefree chewing gum.

I immediately almost collapsed from exhaustion after the meal and have been up all night with SEVERE gas and flatulence. Just miserable.

I read online that Wendy's potatoes with cheese is safe. Anyone else have this experience with this type of food from there? Not sure about the chewing gum, which I never chew and didn't think about it....haven't been glutened in a long time and so I was not as vigilant as I needed to be. I'm just miserable today...no way to spend a vacation. So frustrated.

Hey Waking Up:

Email me via my profile with your email address.

I'm just finishing writing an ebook with info on what to eat gluten-free at 60 chain restaurants and other local ones. I can email you a free e-copy so you know what to eat while you're traveling.

I travel a lot for business, and I noticed that I had a bunch of lists of stuff I could eat at various chain restaurants, so I compiled and added to it to make an ebook. It's not published yet, but I can run it thru the Meatgrinder to send you whatever file format you can use. If you have a kindle or a nook, I can send you that. If you have a smartphone, you can download an app for kindle or BN.com. If you have a laptop, I have a PDF.

Yes, the baked potatoes at Wendy's should be gluten-free. I've eaten a lot of potatoes there. The chili is gluten-free, too. Some good salads, too.

TK

1

Share this post


Link to post
Share on other sites

I used to eat the potatoes at Wnedy's but then I started to watch...... Hands touch buns that touch fries that touch tin foil covered potato that put it in the plastic container..... Just seemed like gluten hands on the potato tin foil was cause for CC. ;)

0

Share this post


Link to post
Share on other sites

I used to eat the potatoes at Wnedy's but then I started to watch...... Hands touch buns that touch fries that touch tin foil covered potato that put it in the plastic container..... Just seemed like gluten hands on the potato tin foil was cause for CC. ;)

Hi Cap,

Yes.....it seems that NO MATTER WHAT I eat when I'm out, I end up with stomach pain, gas, bloatedness, flatulence, misery.

And eating out is the way I socialize mostly with friends, especially friends and family I haven't seen for awhile.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,570
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined