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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dairy And Joint Pain
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5 posts in this topic

So my joints ache all the time and have done most of my life (I'm 34). It's gotten worse since I've been gluten free and started eating tonnes of vegetables - because an awful lot of those veges are tomato and bell pepper. So I've just started to go nightshade free, slowly (still have some spices)

I'm also trying to psych myself up to go dairy free. I'm lactose intolerant, but I also mostly follow the paleo eating guidelines and I've read a lot about dairy - it seems like there's a lot of reasons to give it up.

Anyway, in the last 36 hours I've eaten neither nightshades (beyond a teensy bit of spice) nor dairy and today I noticed my joints felt a lot better Then this morning I made mini cheesecakes (cream cheese, egg, vanilla, splenda) and about an hour ago I ate 3 of them (maybe an ounce and a bit each?) and besides my stomach now killing me, my hips and knees are back to being all creaky again.

Could dairy cause sudden joint pain like that? Or is it more likely a coincidence? (well, pretty sure stomach ache is the cream cheese). I feel like the fact that dairy is so painful to give up means it's bad for me. My experiences are that if I love it, it's bad. I could write a book. The Addiction Diet: Don't eat anything you really like.

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The weather causes me joint discomfort. And it's changing. Check with your doctor and have him/she run a full panel. Maybe you might find a deficiency that can be easily corrected.

Have you tried going off dairy for several weeks? You might want to try that...and to add an other suggestion to that, it's flu season too.

Hope you feel better soon. :)

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Casein can cause severe joint pain. Thats is what happens to me when I have casein.

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The weather causes me joint discomfort. And it's changing. Check with your doctor and have him/she run a full panel. Maybe you might find a deficiency that can be easily corrected.

Have you tried going off dairy for several weeks? You might want to try that...and to add an other suggestion to that, it's flu season too.

Hope you feel better soon. :)

I'm actually in Australia where it's supposedly summer, though given it's been surely the coldest, wettest spring/summer ever, your point is still entirely valid :) I think I know all my deficiencies and they were on their way to resolution last time I saw the doc, but I haven't actually mentioned the joint pain since I complained of it when I was little so I will do that when I see my doc in early Jan. I was talking to my mother about the pain I complained about when I was a kid, and even then (I was 8, maybe?) I remember feeling like the doctor didn't really have any idea of the cause.

Interesting, GFreeMO. I'm sorry for your pain, but it does help to know that is a symptom people get.

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i too have been having the same joint pain when i eat any of the allergens

you got that right about don't eat anything you really like or tastes good

elmateing diets are a pain but it really helps to try and figure out what your body does and does not like

i have not been very careful and have used hubby's butter (big no no ) i have used hubby's peanut butter big no no and i have also used coffee whitener big no no my brain thinks oh it wont hurt just a little wont hurt but then when you do body hurts real bad i did not relize that there would be wheat crumbs in that and sure enough there was

i may have even used a fork that was used to perece potatoes for hubby

i have tryed gluten soy egg yeast free bread only to come to find out there was potato starch in it yup nightshade oh the deadly nightshade its akiller to me thats for sure after injesting nightshades i can not even dress my self cant type cant do hair cant do anything im in so much pain its awful and seeing as my system is so very senestive i can not even take any thing for pain it sure is frustrateing

hope you are feeling some what better and can figure out what is causeing this pain

huggs

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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      I have not. I'll talk to my doctor about it
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