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Just Looking To Talk With Other Celiacs
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6 posts in this topic

Hey, just wanting to chat with other celiacs out there about the disease, how they came to cope with it, what they eat for breakfast, lunch (at school) and dinner. What kind of hobbies they are in to and just other thing.

Anyway my names Jeremiah and i was diagnoised July 20th 2002 (one week before my B-day) and ever since then it has been a rollercoaster ride, i went on and off my diet about 5 times. Well thats it for now, hope some one out there would like to chat, talk to you all later B) .

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Hello Jeremiah! I was diagnosed just less than a year after you were. I was very glad to find the answer to my health problems but it took me a long time to fully understand this new diet. For breakfast I usually eat fruit. For lunch on campus I also bring fruit with me. For lunch at home I usually make egg sandwiches and for dinners either noodles with Alfredo sauce or tomato pizza (without cheese). Homemade cubed hashbrowns are a favourite of mine, too. I am a potter so I enjoy working with clay, making glazes, and spending time in the ceramics lab. I am also really into music and go to probably too many shows and buy way too many CDs.

Kristina

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Welcome to the board!

I'm not a teenager any more, but I know you'll find a great group of people of all age ranges with a lot of useful information.

As for foods (I should add that I also have to avoid dairy) - for breakfast, I usually either have a smoothie, rice cakes with peanut butter, or hot or cold cereal. On weekends, I might make pancakes/waffles or an omlette. If I've felt ambitious during the week, I might have even made muffins to have for breakfast.

For lunch, I always bring lunch with me to work. You probably don't have the luxury of a microwave at school, but if I'm not using the microwave, I'll bring leftovers that can be eaten cold like chili, salads (bean or chicken or shrimp), a tuna salad with some corn tortillas I can fold it into, raw veggies with homemade hummus, fruit, or nuts, or things like that. You can also use a thermos to bring hot soup.

For dinner, I make a lot of "one-pot" meals, because I HATE cleaning, even though I love cooking. My husband eats gluten-free with me (and if we have friends over, everything I make is also gluten-free), so it's just one thing I make. So it's often stir-fries (particularly chili based, teriyaki, or ginger based sauces) over rice, soups, stews, baked chicken w/ vegetables, grilled meat and veggies, chili, etc.

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Welcome to the board :D

You are welcome to email me or IM me anytime. My Yahoo is KaitiUSA.

I'm 18 and was diagnosed over a year and a half ago.

I usually bring my food with me pretty much everywhere I go and it has worked for me very well. Some people understand and some don't but that's ok because I am alot healthier then I was before.

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Thats alot of neat ideas for meals, right now i'm going to be sitting down to eat hotdogs (W) rice, of course no bun, lol. So anyway did anyone of you guys used to get dizzy spells with blurred vision as a symptom? cause i did, some of them got so bad that my vission almost went all black and i had to hold on to somthing to not fall over, freaked me out cause at the time i though i had a brain tumor. (I'm a hypocondriac) cause with that, i also had "SEVERE" i mean "SEVERE" adominal pains these got to be so bad then i fell to the floor and cried, of course at the time i was 14 and this is before i diagnosed, i weighed 68lbs.

And to add more to the problem i belived in my heart and mind that i was dying from the following: Colon Cancer, Stomach cancer, Kidey Failure, brain tumor, Radiation psning (dont ask), Heart disease, Thyroid cancer, and i think thats about it, but the awful thing about it was that i never told any of my troubles, not my mom or sis, no one, i just had all this lying on my own shoulders. AH! can't talk anymore Moms yelling to come eat, TTYL, and thanks for awsering my post.

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I had dizziness and blurred vision. Mono is what triggered my celiac to originally activate and that was one of my first symptoms. I had black outs alot and I also had to hold onto something because otherwise I would have fell down. Not sure if it was due to mono or celiac. I didn't have pain though...I had nausea rather than pain.

It took them a long time to diagnose me and I also thought I was dying from cancer or something and was actually relieved to find out it was celiac.

I have found some great substitutes for just about every food that I used to eat with gluten.

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       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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