Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Could The Milky Way Ingredients Have Been Misleading?
0

10 posts in this topic

Hello all! I am still quite new to this whole diet, being introdcued only before Thankksgiving. From the start of this diet, I've seen good imporvement, which makes me happy. Anyways, I just got a Milky Way bar a few minutes ago, read up online a bit, read the ingredients (I'm already pretty knowledgeable of the good and bad of ingredients, but not wholly familiar), and it seemed okay. I saw no wheat ingredients, but I DID see an ingredient listed as "Malted Barley". Now, I knew that most things "Matled" cannot be good news. What lead me to believe it's gluten-free status was printed on the bottom: the allergy information, "MAY CONTAIN PEANUTS". Now, if wheat or gluten was in that product, it would've also listed "CONTAINS WHEAT INGREDIENTS", right? Since it said nothing about wheat, and was made by Mars (which I heard was very good about giving you correct allergy information and ingredients on their products), I thought that it must be okay. The doctor described me as having "Latent Celiac Disease", I've felt slightly better after the diet, and my mornings have been much less agonizing. I don't exactly get "glutened" when I eat products with gluten, but I do experience very slight discomfot and burping, which I've been having after eating this. Should I saty away from these for good, or am I okay? My body can't exactly give me the asnwers....

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello and welcome. I'm glad you are feeling better. You are correct that Mars is very good about labeling and they used the word "barley" to warn you.

We can NEVER eat wheat, rye, or barley, and you want to avoid oats unless they state they have been tested for gluten. "Contains wheat ingredients" only covers wheat. If you see a rye or barley ingredient like malted barley anywhere in the ingredients, the food is not safe to eat. You cannot eat any more Milky Way Bars, or other candies with malt, barley malt, or malted barley.

There is an unsafe ingredient list here. You might want to print it out and keep a copy until you are more used to the label reading. It's a pain!

http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

1

Share this post


Link to post
Share on other sites

Oh, and avoid oats until you are 100% well. At that point you can cautiously try adding some gluten-free oats and see if you can tolerate them. Some celiacs react to the gluten-like protein in oats as badly as if it were wheat.

0

Share this post


Link to post
Share on other sites

Milky way dark bars are gluten free!!

1

Share this post


Link to post
Share on other sites

Welcome to the board, and welcome to the process of learning to read labels.

The Milky Way bar contains gluten (barley malt), and is not safe for us.

Gluten, defined in terms of celiac disease, is a protein found in three grains: wheat, rye and barley. Oats are generally contaminated with wheat, and a minority of us also react to pure oats.

The list of top allergens that must be disclosed includes wheat, but not the other three.

"Contains" and "May Contain" are different animals, too.

In the US, if a top-eight allergen is present, it must be listed by its common name, EITHER in the ingredients list OR in a contains statement. Only allergens may be listed in the contains statement. The eight allergens under the federal Food Allergen Labeling and Consumer Protection Act (FALCPA) are: wheat, soy, milk, peanuts, eggs, tree nuts, fish, and crustacean shellfish. Since barley and rye are not on that list, they will never appear in a "contains" statement. (In Canada, the list also includes sulfites and sesame seeds.)

If there is a "contains" statement, it must list every allergen present. But, again, barley and rye are NOT "allergens" as defined by the label regulations.

In this example, barley was listed in the ingredients by name. As someone new to this, I understand your confusion. But the label is not misleading, and conforms to the rules. You can not rely solely on the "Contains" statement to identify gluten. You'll know about wheat, but not barley or rye.

Rye is not something you need to worry about. It is in very few foods, and those are confined to selected baked goods where you would expect it, like rye bread and pumpernickel. In my experience, it is always clearly listed on the label.

"May contain" means that the ingredient is not intentionally present, but despite Good Manufacturing Practices and other precautions, it is not possible to be sure that trace contamination does not occur. Like the previous discussion, only ingredients legally described as allergens will be listed.

And, last, a list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." This makes shopping MUCH easier.

Edit: Three other posts were made while I was composing this.

2

Share this post


Link to post
Share on other sites




Great explanation, Peter!

0

Share this post


Link to post
Share on other sites

Thank you very, very much Skylark and psawyer, I appreciate the help and explanation tremendously! I didn't have a reaction to the Milky Way bar when I ate it before the post but I do now understand that it is harmful, and to look out for anything with "Barley". But I have one more question, say that something just had malt as an ingredient or did not have something like Barley, Wheat, Rye, etc. at the end but it was "Malted" something else. Is this Malt ingredient harmful, as well? I think I remember hearing something about Malt ingredients not being safe. I appreciate it! And also to AMom2010, I'm very happy to hear that the midnight edition is gluten free. Milky Way is my favorite and although I'm a little upset with having to part with the original, the midnight not being quite as good, I'm still happy that I can enjoy one Milky Way product.

0

Share this post


Link to post
Share on other sites

The "Simply Caramel" version of Milky Way is also gluten free. It's closer to the original than Midnight. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,375
    • Total Posts
      920,572
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a disc with records to me, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten. He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • Celiacs got better gluten-free. Post-war, grains became available again and the same patients got sick again. 1952 the Gluten-Free Diet is officially ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,451
    • Most Online
      1,763

    Newest Member
    Chelsealarita
    Joined