Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Extreme Anxiety
0

9 posts in this topic

I am definitely gluten intolerant (which is another story), but it takes so long for symptoms to show up that there often isn't clear what or when I ate that did it. Recently I have been travelling a lot, eating out and in other people's homes. I had such terrible anxiety after being out of town two days that I barely slept. I got a haircut and I didn't like it much, but this was objectively speaking probably not enough to send me completely around the bend (sweaty, racing pulse, wanting to jump out of my skin.) This extreme anxiety and/or depression will happen to me, and then maybe the next day, or even later on that day, I will feel fine.

I am trying to decide if I should go on medication. If the anxiety is indeed related to gluten, then would medication even help? There is a possibility that it's not, but I just can't know. I am afraid of medication because of the side effects, especially constipation, which is a constant problem for me already. I'm also concerned about fatigue because I am already fatigued. I will admit that I avoid gluten and dairy but I am not as careful about cc as I should be (shared cabinets, countertops, etc) with my gluten eating husband.

0

Share this post


Link to post
Share on other sites


Ads by Google:

A family member of mine who suffers from anxiety had been gluten-free for over 2 years and just recently started taking anxiety meds which we were just talking about last night. She said it has made an amazing difference for her. There was no mention of it making her feel more fatigue.

0

Share this post


Link to post
Share on other sites

One of the many symptoms I developed from celiac was severe anxiety. Depressed moods, too. I had never had anxiety in my life. So, it was perplexing and frightening. It lasted for a few years as I desperately looked for answers to my declining health.

Before I was DXed (and did not know that anxiety was related to gluten intolerance), I tried xanax at the lowest possible dose, because I was so sick and meds always affect me deeply. I found it made me calm and sleepy at bedtime, but then, I was wired from gluten and would sit awake most of the night, trembling. Then, I would need more--- as soon as it wore off. Then, it gave me constipation, which was the last thing I needed. :rolleyes: So, I stopped using it and suffered through the anxiety.

The thing is-- GLUTEN fueled the anxiety.

After a few months gluten-free, the anxiety started to cease. :)

The only time I feel anxious or weird is when I am CCed (out of the house somehow) like last week. One of the first things to return? That awful anxiety and a depressed mood! :blink:

So, maybe you are getting trace gluten in your system--which may explain your continuing fatigue and anxiety? If you are still constipated, have you tried using probiotics? They work wonders for healthy gut and bowels. :)

and P>S> Have your vitamin and thyroid levels been checked? They can contribute to both C and fatigue.

0

Share this post


Link to post
Share on other sites

the best 'medication' is making sure that you don't have gluten in your diet.

It's difficult at first, listen to the gut.

1

Share this post


Link to post
Share on other sites

Hi, I get intense unwavering anxiety when glutened. I've been gluten free now for about a year and have been diagnosed with generalized anxiety disorder and social anxiety, as well as depression when I was still eating gluten. I used to not be able to get on a bus because I was too anxious to say "hello" and "thankyou" to the bus driver when I got on/got off. I used to take walks at 3AM because I was too scared to take walks in the daytime. I also dropped out of school because I was too anxious to go to school.

I removed gluten and dairy and my intense physical jump-out-of-my-skin-want-to-die-24/7 type anxiety almost disappeared immediately (within a week of eating NO gluten or dairy, not even a trace.) Then I removed corn, soy and eggs, all of which I am intolerant to and found out through elimination and the intense physical anxiety (the kind that feels like you want to kill yourself because you feel like you're on fire inside) disappeared.

So my physical anxiety was gone! And I was able to smile, and feel relaxed, and enjoy things. I still had anxiety, but it wasn't unbearable and it didn't feel physical, it didn't feel like it was in my blood and through my whole body. Then I discovered that I have a candida yeast overgrowth that feeds when my blood sugar is spiked. Candida yeast overgrowth is known to cause anxiety and nervousness, as well as apathy/depression which I still suffer with but on a very lesser and uncomarable degree. I am 99% sure that my remaining anxiety is caused by this, because when I stick to a diet of meat, beans, vegetables nuts and seeds and no sugar, my anxiety is at an all time low of 2/10, I can go outside and hang out with friends with ease, I feel more at ease than a lot of people around me and people tell me that I come off now as extremely calm all the time.

In my opinion, there is always an underlying cause to anxiety, it is natural to feel completely comfortable unless you are in an actual life threatening, or safety threatening circumstance. I would have never believed that I would feel as calm and laid back as I do when I stick on this rather strict diet. I would recommend that you try just 1-2 weeks of an anti-candida, grain free, dairy free diet. I know it sounds strict but for 2ish weeks as a test, if your anxiety dramatically reduces, it is so worth it! Try the paleo diet without fruit (vegetables, meat, nuts, seeds) only for 1-2 weeks, and if you don't feel at a new level of calm then consider the anti anxiety meds. I would try first to discover the cause before you rush into something like meds, which could be difficult to get off of.

1

Share this post


Link to post
Share on other sites




I have severe anxiety and depression if I have been glutened. All the years I was sick the Dr.'s couldn't figure out why depression medication did not work for me. None of them worked. It was gluten. Anyway having said that, I found Xanax very helpful for those gluten anxiety attacks like you are describing. I take a very low dose only when I have those episodes like you describe. Xanax can be addicting but I only take it when glutened which isn't very often thank god. Talk to you Dr. about it. In the early months of recovering and learning to be gluten free it was very helpful to me. With no negative side effects like fatigue. It just made life a little more bearable during a horrible reaction. It is true that avoiding gluten is the real answer. But if you are in an anxiety episode that is particularly bad, sometimes you need some help.

0

Share this post


Link to post
Share on other sites

Oh dear. Now it all becomes clear. Just read an article on allergic psychosis. Very worrying if you're celiac. Diagnosed last week but been gluten-free for a couple of years. Somehow ate something wrong yesterday and a few hours later freaked out at someone I love very much. Not good. Up all night with dreadful anxiety, confusion and stomach cramps that are only just abating nearly twenty four hous later. What are the implications of that I wonder.....? How many multi national pharmas have made billions on anti anxiety/depression meds when gluten-free was the real fix?????

0

Share this post


Link to post
Share on other sites

You may want to have your adrenal function tested.  This can be tested using orthostatic blood pressure.  That is taking blood pressure while lying down, and suddenly standing and retaking the blood pressure.  If the adrenals work right the pressure would be lower when lying down, rise somewhat  when suddenly standing, and go down as you stand there.  Mine use to dive when I stood up.

 

I take herbal adrenal support.  This helps me feel less stressed and fatigued.  According to an osteopathic doctor, 30 years of celiac will stress your adrenals without any further stress in your day.

 

D

0

Share this post


Link to post
Share on other sites

You may want to have your adrenal function tested.  This can be tested using orthostatic blood pressure.  That is taking blood pressure while lying down, and suddenly standing and retaking the blood pressure.  If the adrenals work right the pressure would be lower when lying down, rise somewhat  when suddenly standing, and go down as you stand there.  Mine use to dive when I stood up.

 

I take herbal adrenal support.  This helps me feel less stressed and fatigued.  According to an osteopathic doctor, 30 years of celiac will stress your adrenals without any further stress in your day.

 

D

 

Orthostatic Hypotension, which is what taking the blood pressure lying down and sitting up is for, is not diagnostic of adrenal fatigue.  It measures how quickly the blood flows back to the heart after pooling in the legs.  This has many causes.  Adrenal Fatigue is not one of them.  Maybe you have some reasons why you think this is true?  

 

Colleen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,588
    • Total Posts
      918,276
  • Topics

  • Posts

    • Last posted 2013 - Improving health
      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
    • Vagus Nerve Attack
      Hello All: I came across this series of posts from as Google search on "Wheat Vagus Nerve". I find all of your replies very interesting and would like to add mine for those searching for information but with differing symptoms. I have struggled with the vagus nerve impact to breathing as Maria mentioned in the original post, but only an impact to breathing and nothing else.  But my symptoms were brought on not only by wheat, but also by other ingredients such as dark chocolate, probiotics, caprylic acid, mustard, fluoride in toothpaste/mouthwash just to name a few.  I found when I sat down my breathing would return to normal, but as soon I got up, the impact would return. The impact to breathing would come 4-6 hours after ingestion and last for about the same amount of time.  At times I could not even take ten steps without having to stop, not being able to breath even moderately.  The symptoms now are decreasing in severity but not in duration. My doctor checked my blood for celiac and results were negative. A number of chest x-rays to rule out COPD.  I am waiting on an appoint with an allergy specialist in a few weeks to see what they have to say.  Needless to say, it is difficult to maintain a healthy weight. Thanks for your posts, and I hope my contribution is of benefit to others also.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,683
    • Most Online
      1,763

    Newest Member
    Rainbow60
    Joined