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Could I Have Had This All My Life?


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23 replies to this topic

#1 Guest_DanceswithWolves_*

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Posted 20 August 2005 - 06:15 PM

Now that I look back through my life...am I just over-obsessing to think that maybe I've been Gluten-intolerant all my life?

I always had "nervous problems" as my parents would call it. When I was a little kid I used to pull at my ear lobe until it was infected, I used to lick my lips and cover them with Chap stick til they were inflammed. I used to scratch my arm til it was pimply and moist. So, what I'm wondering, could I have been mis-diagnosed and maybe I had reactions to Gluten all this time? I always blamed everything on "Allergies". I've always had sinus problems, itchy and watery eyes, rashes.

As I grew older, I've had emotional breakdowns when I was sober and drunk. Mental fog and fatigue, confusion, depression, scattered thoughts, but also times of complete joy and a sense of carefreeness. I mean, I ate bread all my life, fast food, pizza with Ritz crackers was a personal fav!

Basically, I'm trying to figure out is Celiac Disease hereditary from your parents? I had someone tell me on another health site board that because my parents background is from western Europe it's a good possibility.
Could I have had this all my life and not know it or am I just screwed up in a mental sort of way?

I've read the some of the symptoms of Celiac Disease. I've never weighed more then 145 lbs all my life. Now I am 122.
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#2 Jnkmnky

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Posted 20 August 2005 - 06:19 PM

It is a genetic autoimmune disease. You inherit the gene from a parent. Your family members should also be tested for the disease. How are you doing on the diet? Have you found gluten free foods to eat that are helping put the weight on?
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#3 Rachel--24

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Posted 20 August 2005 - 06:25 PM

Danceswithwolves,

I've only been *totally* gluten free for a little over a week now. My appetite is much better now that I'm not feeling sick all the time...and I've gained almost 10 lbs. already. Some of its fluid since I have malabsorption issues...so I know its not all muscle and fat I'm gaining but its *still* much more than I was able to gain with gluten in me.
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#4 Jen H

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Posted 20 August 2005 - 06:36 PM

Hey Danceswithwolves,

I don't think you're overanalyzing your situation. Last week I found out I have celiac disease and I have been wondering about some of the same questions. I had rheumatoid arthritis when I was younger, frequent ear and sinus infections, and had trouble putting weight on as a child. I also see symptoms in my family members. I think everything could be interconnected somehow, perhaps through celiac disease. Maybe I had it all along? So, in your case, it could very well all be related.
:) Jen
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#5 Guest_DanceswithWolves_*

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Posted 20 August 2005 - 06:40 PM

Danceswithwolves,

I've only been *totally* gluten free for a little over a week now. My appetite is much better now that I'm not feeling sick all the time...and I've gained almost 10 lbs. already. Some of its fluid since I have malabsorption issues...so I know its not all muscle and fat I'm gaining but its *still* much more than I was able to gain with gluten in me.

<{POST_SNAPBACK}>

Thank God is is somewhat reversible. I know that I may never be able to overindulge in my favorites again, but I don't want to be sickly looking all through my 40's either. God, I wish I would've realised what the hell celiac disease was and how to avoid it years ago. I guess the whole "stress from the new job" triggered it. It was bound to happen eventually.
I'm definitely done with beer and I guess if I want to enjoy a drink I will stick to wine (which I like anyway) or vodka drinks.
Yes...I have been constructing a gluten-free-free shop list and I did find that Kinniki( LOL ) bread available in a new store right near my home!!!!
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#6 Jnkmnky

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Posted 20 August 2005 - 06:56 PM

Consider yourself lucky, then. I can't find it in my Henry's, WholeFoods, Jimbos, Trader Joe's. At least, not consistently. SOMETIMES one of the stores will have it. I got sick of the disappointment, though, and have become a strict online orderer.
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#7 higgins

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Posted 21 August 2005 - 04:43 AM

Save your receipts, too.
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#8 Guest_DanceswithWolves_*

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Posted 21 August 2005 - 04:55 AM

Save your receipts, too.

<{POST_SNAPBACK}>



So, you're telling me I can " write off " my Gluten? :D
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#9 celiac3270

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Posted 21 August 2005 - 05:20 AM

Absolutely. If the total difference between your gluten-free food and the regular alternatives is at least 7.5% of your annual income, you can get a deduction for celiac. You have to save your receipts, though.

Read more here: http://www.celiac.co...-27105204952.ca
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#10 tarnalberry

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Posted 21 August 2005 - 09:12 AM

Absolutely.  If the total difference between your gluten-free food and the regular alternatives is at least 7.5% of your annual income, you can get a deduction for celiac.  You have to save your receipts, though.

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Minor modification - if your total medical expenses are greater than 7.5% of your income, you can add them to your itemized deductions. You can include the extra cost of foods needed to maintain a gluten free diet (the increase in price of a gluten free loaf of bread, or the whole cost of items unique to a gluten-free diet, like xanthum gum for baking) in your medical expense deduction.

So, if you make $50k a year, you would have to spend $3750 (out of pocket) in medical costs before you could take this deduction.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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#11 ravenwoodglass

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Posted 21 August 2005 - 05:23 PM

I'm  definitely done with beer and I guess if I want to enjoy a drink I will stick to wine (which I like anyway) or vodka drinks.
Yes...I have been constructing a gluten-free-free shop list and I did find that Kinniki( LOL ) bread  available in a new store right near my home!!!!

<{POST_SNAPBACK}>


Please go for potato vodka only. Many places say that grain alcohols and vinagers are okay for us. My families experiences scream differently. My son and I both react to them just as we would to a slice of bread, and the hangovers are awful. We switched to wines, potato vodka and gluten-free beer, Bards Tale is good if you can find it. Don't drink malt liqours, look for hard cider instead. And BEWARE the speedbar or soda fountain both are often contaminated. Use a canned gluten-free soda, not all are, or V8 or canned juice. Everyone is different but I would stay away from grain based anything to start.
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"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#12 Rachel--24

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Posted 21 August 2005 - 05:54 PM

Please go for potato vodka only. Many places say that grain alcohols and vinagers are okay for us. My families experiences scream differently. My son and I both react to them just as we would to a slice of bread, and the hangovers are awful. We switched to wines, potato vodka and gluten-free beer, Bards Tale is good if you can find it. Don't drink malt liqours, look for hard cider instead. And BEWARE the speedbar or soda fountain both are often contaminated. Use a canned gluten-free soda, not all are, or V8 or canned juice. Everyone is different but I would stay away from grain based anything to start.

<{POST_SNAPBACK}>


Does this also apply to something like vanilla extract? Is the alcohol in it grain based? All I know is I had a BAD reaction to the extract but also to vanilla flavored yogurt. I'm not sure if I'm just having a hard time with vanilla in general or if there is hidden gluten. I dont seem to react to things like gluten-free cookies which have vanilla listed as an ingredient. I'm so confused about that :blink:
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#13 zakismom

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Posted 21 August 2005 - 06:11 PM

Not all extracts are gluten free-try Mccormack,s. Also check your yogurt brand-not all are gluten-free.
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#14 Rachel--24

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Posted 21 August 2005 - 06:28 PM

Not all extracts are gluten free-try Mccormack,s.  Also check your yogurt brand-not all are gluten-free.

<{POST_SNAPBACK}>


Thanks...I called Spice Islands about the vanilla awhile back. I was told it was gluten-free but the woman was so quick to respond I sort of didn't believe her. Also the yogurt is on the Delphi list. I just bought Flavorganics Vanilla which is actually labeled gluten-free so I guess I'll have to try it and see if I react. I think its the only way I'll know for sure :(
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#15 PicturePerfect

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Posted 21 August 2005 - 07:55 PM

How do you people know so much?
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lisa mccorkell
diagnosed on May 31, 2005
orange county, california

"Laziness will cause you pain." (Unknown)


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