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Sweating Caused By Celiac
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OK so I've had years of some VERY distressing symptoms and the doctor has put it all down to depression but I'm not convinced - I get very heavy sweating, usually in the heat and the lining of my mouth is ridiculously dry making eating and talking very unpleasant. Does this sound like celiac to anyone here? There's no history of it in my family but I've just got to find the route cause.

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Hi wibbze,

I also get very heavy sweating when active in the heat. When I say "active", this means something as simple as standing in line at a store or show. I am new to my diagnosis. However, I have leaned a lot about excessive sweating while working towards a diagnosis. This was my most unusual symptom, so my doctors took a very strong look at it. I believe the excessive sweating is due to nerve damage. If this is indeed the cause of the issue, it is permanent. I believe they would consider this as damage to the Autonomic Nervous System. The ANS controls all "automatic" bodily functions, like your heartbeat and digestion. I suppose the inability to properly gauge our bodily response to temperature control is a form of Dysautonomia. Remember, I am not a doctor. I just wanted to say you are NOT alone in this, and provide enough information to send you in the right direction. Cheers :)

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Have you had your thyroid checked in any tests? That can stop your body regulating temperature properly (hence the sweating) and is also linked to anxiety and depression.

Not saying this is definitely the cause as I am by no means an expert but was just a thought.

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Have you had your thyroid checked in any tests? That can stop your body regulating temperature properly (hence the sweating) and is also linked to anxiety and depression.

Not saying this is definitely the cause as I am by no means an expert but was just a thought.

I'm not sure if your question was directed towards wibbze, me, or both of us. Personally, I have had my thyroid tested more times than would ever make sense. My mother has Hashimoto's Hypothyroidism. (Probably caused by undiagnosed Celiac Disease. She prefers to stay "in the dark" on this subject.) Since I have excessive sweating that has gone without explanation, the doctors ALWAYS retest me. Starting at age 15, until now, twenty years later, I have always had "normal" thyroid levels. They say that the definition of insanity is performing the same task repeatedly, expecting a different result. I suppose the doctors feel that this does not apply to them. (How surprising...)

Back on the subject of your post...Thank you for taking the time to propose the topic. Our collaboration makes us stronger, and assists in the study advancement of our common challenges.

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I'm not sure if your question was directed towards wibbze, me, or both of us. Personally, I have had my thyroid tested more times than would ever make sense. My mother has Hashimoto's Hypothyroidism. (Probably caused by undiagnosed Celiac Disease. She prefers to stay "in the dark" on this subject.) Since I have excessive sweating that has gone without explanation, the doctors ALWAYS retest me. Starting at age 15, until now, twenty years later, I have always had "normal" thyroid levels. They say that the definition of insanity is performing the same task repeatedly, expecting a different result. I suppose the doctors feel that this does not apply to them. (How surprising...)

Back on the subject of your post...Thank you for taking the time to propose the topic. Our collaboration makes us stronger, and assists in the study advancement of our common challenges.

Isn't dry mouth linked to Sjogren's?

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OK so I've had years of some VERY distressing symptoms and the doctor has put it all down to depression but I'm not convinced - I get very heavy sweating, usually in the heat and the lining of my mouth is ridiculously dry making eating and talking very unpleasant. Does this sound like celiac to anyone here? There's no history of it in my family but I've just got to find the route cause.

Hi Again wibbze2, Please disregard my earlier post. I discovered the cause of my excessive sweating! I took animal protein out of my diet. Within days, the heat intolerance waterworks were shut down!!! I am SO excited. Years of dreading Summer or trips to the store are GONE...Perhaps there is another protein in your diet, which could be causing your similar sweating issues...Everyone is different, so it could be another type of protein, than the one causing my sweating issue. If I find that there is a disorder/disease that causes multiple protein intolerance, I will post again. Perhaps the dry mouth issue was brought on by dehydration, caused by the excessive sweating? Anyway, I wish you all the best. Cheers :)

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
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