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47 replies to this topic

#1 deltron80

 
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Posted 13 December 2011 - 10:43 AM

Hello Everyone!

I was recently diagnosed with Celiac @ age 31 and I have been gluten-free for 2 weeks now. I already feel better! I can't believe I've been sick my whole life and never knew it. I even used to think people with "celiac" were a little wacked out in the head. It turns out it was me that was wacked out in the head afterall. :D

I'm looking forward to the future now that I finally know what's "wrong" with me and I hope to learn a lot from you folks.
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#2 Menic

 
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Posted 13 December 2011 - 10:50 AM

Welcome to the boards,

I was diagnosed at 31 as well, so I can relate.
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Male, born 1979.
Diagnosed via endoscopy/biopsy 09/2010.
Gluten-free 10/2010.

#3 GFinDC

 
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Posted 13 December 2011 - 02:06 PM

Well welcome to both of you then! We are a pretty friendly bunch here and are glad to answer any questions. Nice to have you on board! :)
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#4 mushroom

 
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Posted 13 December 2011 - 03:11 PM

Yes, gluten can do a whack job on your head, as well as the rest of the bod. Happpy gluten free future and I'm glad you're feeling better already. Hang around and let us know how you progress. We are here to help. :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#5 AVR1962

 
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Posted 14 December 2011 - 01:23 AM

Congratulations on your diagnosis and best to your new life and improved health!
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#6 deltron80

 
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Posted 14 December 2011 - 06:04 PM

I'm still new to this, but it is certainly remarkable that people kind of don't fully "buy it" when you tell them. I don't get it even though I definitely was one of those people before...so odd. I can't think of any other allergy or disease that is treated so flippantly by the general public as is Celiac.

And you really get some funny looks when you mention anything about neurological symptoms! I'll need to keep my mouth shut on those and just enjoy this new anxiety-free lifestyle without bragging about it I guess. :rolleyes:

Maybe if I had taken it more seriously myself and/or not been in such denial I would've been tested and diagnosed sooner...it took my father and sister being diagnosed to wake me up to reality.

Also...just in reading the forum the past couple days it scares me a little to see so many people with multiple dietary issues beyond gluten.....yikes!
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#7 sa1937

 
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Posted 15 December 2011 - 04:37 AM

Welcome, deltron! I think the problem is that unless you have celiac, it's really difficult to fully understand it. When I was first diagnosed, my friends thought "a little bit won't hurt you...so and so used to eat it occasionally". They "get it" now and will even ask if I can have something that contains fill in the blank. And then there are people who sorta go gluten-free like it's the latest and greatest fad diet.

The woulda, coulda, shudda...yeah, a lot of us wish we had been diagnosed sooner so don't beat yourself up over that. You're on your way now!

While some people do develop additional intolerances, don't automatically assume you will. Some of us did have to give up dairy products for awhile. I did but have successfully been able to add them back in. I craved cheese so badly while I didn't miss gluteny foods at all.

There's nothing that beats feeling good!
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Sylvia
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010

#8 deltron80

 
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Posted 19 December 2011 - 10:06 AM

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:
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#9 kareng

 
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Posted 19 December 2011 - 05:39 PM

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:


Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D
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#10 mushroom

 
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Posted 19 December 2011 - 05:53 PM

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D


:lol:

And a red sports car would be very attractive too!
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#11 Darn210

 
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    Cookies!!

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Posted 19 December 2011 - 09:20 PM

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

:lol: :lol: :lol:

Well, you certainly made me go look at his av!!
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Janet

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#12 deltron80

 
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Posted 19 December 2011 - 09:38 PM

:lol:

And a red sports car would be very attractive too!


I have a red parachute how about that ;)
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#13 sa1937

 
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Posted 20 December 2011 - 05:46 AM

I have a red parachute how about that ;)

...and a sense of humor, too, so that's good! :lol:
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Sylvia
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010

#14 Korwyn

 
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Posted 20 December 2011 - 07:40 AM

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:


Dude, From looking at your avatar, I have to tell you that the full body hair coat is definitely going be an issue. And I'd really suggest you consider some lip reduction surgery. And possibly a tandem bike. With more than one gear. :lol:
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#15 IrishHeart

 
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Posted 20 December 2011 - 09:02 AM

Welcome and yes, time for an upgrade to a posh car. However my hubs has a beard and I kind of like the look... :lol: .

As for the nuero symptoms, well, I can relate. :rolleyes: Those were both frightening and debilitating at times, and I was starting to fear for my sanity when it was pretty bad, but the good news is...THEY DISAPPEARED. :)

Do not get alarmed by what other people's various symptoms are, okay?
This is a Newbie mistake :) --because you want to feel better right away and when that takes some time, you start to panic a bit.

EVERYONE is different and healing times vary. Just because the "magic" doesn't happen right away does not necessarily mean other intolerances. I drove myself nuts with that at the beginning and all I needed was some healing time!

Sylvia is right about the dairy, though as it often just a secondary intolerance because of the celiac. Many docs (mine included) suggest you give it up the first few months to speed healing and reduce symptoms. It's your call, though.

Be patient with yourself, ask any questions you may have and just relax and begin to enjoy good health! You live in one of the greatest cities in the world ( I know, I was married there and go there frequently for FUN :) )

Best wishes, kiddo!
IH
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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