Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Symptoms Getting Irritating Worse... Not Better

lorka150

By lorka150
in Coping with Celiac Disease

Recommended Posts

lorka150 Collaborator
lorka150
Posted

These symptoms seem to be worse AFTER being gluten-free for about three and a half weeks. Is this normal?

- fatigue

- going poop more often (once a day, if that, up to two or three... Always very loose)

- sore throat (never, ever got this before)

- weakness

- stomach pains after eating some things, especially spicy stuff

- depression (maybe that isn't worse.. maybe that is just the same)

Does that make sense that I'm still feeling those, and things are getting a little worse at first? Anyone else experience this?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
These symptoms seem to be worse AFTER being gluten-free for about three and a half weeks. Is this normal?

- fatigue

- going poop more often (once a day, if that, up to two or three... Always very loose)

- sore throat (never, ever got this before)

- weakness

- stomach pains after eating some things, especially spicy stuff

- depression (maybe that isn't worse.. maybe that is just the same)

Does that make sense that I'm still feeling those, and things are getting a little worse at first? Anyone else experience this?

<{POST_SNAPBACK}>

Did you replace the gluten-containing foods in your diet with some other food item you don't tolerate well? Is there a particular ingredient (or a few) that is now much more prevalent in your diet? What else has changed since you removed gluten?

Link to comment
Share on other sites
lorka150 Collaborator
lorka150
  • Author
Posted

Hi Tiffany,

Nothing else has changed - I've been really careful. Could my body just be trying to figure itself out? I've pooed regular twice today, plus two more times of pure runny, non-diarreah but very loose stools. (Sorry if that's gross, but hey, it happened.)

I assume this whole thing just takes awhile for my body to get used to. Could that be it? This is so frustrating!

Link to comment
Share on other sites
tarnalberry Community Regular
tarnalberry
Posted
Hi Tiffany,

Nothing else has changed - I've been really careful. Could my body just be trying to figure itself out? I've pooed regular twice today, plus two more times of pure runny, non-diarreah but very loose stools. (Sorry if that's gross, but hey, it happened.)

I assume this whole thing just takes awhile for my body to get used to. Could that be it? This is so frustrating!

<{POST_SNAPBACK}>

Well, something has to have changed, or you're eating too few calories! :-) If you stopped eating wheat, and to make up for the food you weren't having, started eating more fruits, or more vegetables, or more rice, or more meat, or more fat, or started vitamins, or tried *any* new product you hadn't had before, there's a change that could be part of the problem. If there was something else that you're sensitive to that you're now eating more of (like corn and rice, which are pretty common substitutions for wheat in our diets), you may be getting worse symptoms.

The other thing that comes to mind is that you've got a virus going around that is causing part of this.

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
Posted

Lorka150,

When I first changed my diet (didn't know gluten was a problem at this point just knew everything I ate made me sick) there were some big changes my body went through. First off when I went from eating regular food to only eating meat, veggies and fish I felt alot worse for a little over a week. I don't know if it was the drastic change in my diet or withdrawl or what. I was pretty sick when I made the dietary changes and thought I might die if I didn't do something. Well I started having stomach pain, loose stools, nausea, shakiness and everything I ate bothered me. It sort of calmed down as each day passed though. Maybe your body is just adjusting to a new diet or maybe like Tiffany said you're eating something that doesn't agree with you. It took a little while for my bm's to start looking normal again also...it didn't happen overnight. I remember after about 1 month on the diet I had diarreah all of a sudden and it lasted for a whole week. Looking back I think it had to have been something I was eating or a supplement I was taking. I had started making my own yogurt around that time and that was probably the cause of the diarreah.

Link to comment
Share on other sites
lorka150 Collaborator
lorka150
  • Author
Posted

So I am confused... It's NOT just my body readjusting? I added no new foods, just took the ones I wasn't allowed away. I am still consuming the average calories I did before.

I thought my body was just adjusting. Now I am so confused! :(

Link to comment
Share on other sites
lorka150 Collaborator
lorka150
  • Author
Posted

I forgot to add, however, that some symptoms have significantly gotten better. Nausea after eating and extreme bloating have both gotten a lot better. So has dizzyness.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
I forgot to add, however, that some symptoms have significantly gotten better. Nausea after eating and extreme bloating have both gotten a lot better. So has dizzyness.

<{POST_SNAPBACK}>

So it sounds like you have experienced improvement. Your body is probably still recovering...its only been 3 weeks so you'll have good days...not so good days. Also you could just be coming down with something causing you to be tired and have a sore throat. It could be unrelated to celiac disease. Are you eating dairy? I used to get sore throats after eating dairy...I haven't tried eating dairy again..other than some yogurt which gave me a bad reaction :angry:

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748
    Nicole K
    Newest Member
    Nicole K
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
×
×
  • Create New...