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Questions - Celiac and Pregnancy

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im eighteen years old and got married two months ago. i just took an at home pregnancy test. i got diagnosed with celiac disease in the fifth grade and did the diet for about a year and a half. i started cheating every once and a while and eventually went completely off. after a few weeeks of being married i ended up in the emergency room with a herniated disc they gave me a pregnancy test by blood and it was positive, but after testing it again it came out negative three times. i had a really irregular period after that and i think i miscarried and now a month later i am pregnant again. a couple weeks ago i started going back on a gluten free diet again so we could try to get pregnant and what do you know positve pregnancy tests. i am really stressed out thinking i might lose my baby, and was wondering if anyone has had any positive pregnancy outcomes after just barely going on the gluten free diet.


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Oh sweetie! I know how sad it can be to go through a miscarriage and I want to give you a hug! The good news is you were able to ge pregnant again and you are doing the right thing for yourself and your baby!

I don't have statistics or personal experience in the same exact situation, but even if I did each person is different. I did lose my first pregnancy early on and then went on to have two beautiful children in the next two years. Miscarriages are common for many reasons, and losing one baby is no sign of things to come.

Learn all you can about celiac by reading here. This really is the best place and there are lots of great success stories of healthy babies! I'm thinking of the best outcome for your family!


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    • are your new negative results with or without a gluten challenge? i think its irresponsible for your doctors to dismiss positive bloodwork. i agree that positive blood results points towards at least potential celiac disease and there is a good chance that there either wasn't enough damage yet or they missed it. pretty sure high Gliadin IgG means you were having an immune response to gluten. ttg IgG is less specific/sensitive than Iga but nonetheless it is an antibody related to tissue damage in the small bowel.
      seems common for GIs to deem celiac blood work as unreliable and then glaze over the fact that biopsy results can also be unreliable.
      if you have/are doing a gluten challenge i would ask for an EMA bloodtest and DGP not just ttg. if not maybe get the genetic test?    
    • I have the same symptoms.  These symptoms have overlapped other issues that I have and have been left untreated for far too long. Now the pain has gotten worst. My GP believes it's my hiatal hernia.  I have pain below my breastbone, pressure pushing up my chest/throat, dizziness and nausea. 
    • Usually I'm using apps to tell me what celiacs have thought about the restaurants in the area and repeatedly eating at a few different places I haven't gotten sick. Now that I think about it, gluten was a definite possibility. I ,however, just got all negative results from all the following tests so I'm guessing I'm doing ok on that front. -Basic metabolic panel -Liver enzyme panel -CBC -Serum IgA -Tissue transglutaminase(tTG), IgA -Tissue transglutaminase(tTG), IgG -Thyroxine(T4), free direct serum -Thyroid stimulating hormone I thought the same thing about positive antibodies and non-celiac sensitivity reading this; l'm seeing his nurse practioner in two weeks so I'm going to take this and basically argue with what he said and see how that goes haha. I'm gonna guess not real well. I'm going to push being tested for other autoimmune diseases in addition.  
    • I was dx with duoedenitis end of August. No mention of a stomach, esophagus or duoendal ulcer. Just a small hernia. Less then 2cm. But I have a LOT of pain right below the breast bone and I jumped when it was recently touched on exam. I can even feel a small bump in the area. I feel so dizzy and unwell, like some kind of bacteria is invading my brain and am very queasy still.  My heart still feels weird too.  Bloodwork normal, a bit low on protein which is unreal because I get a ton of it but it is always is low if I have not eaten. Mildly elevated myeloycytes and basophils. My GI will probably not see me for a week or two, my primary care put me on sucralfate.  As soon as the food hits my digestive system I feel really weird all over, stomach, chest, throat, head. Just feel like I have this horrible thing infecting my body.  Did anyone feel ulcer pain and have it NOT be an ulcer? I suppose one could have developed since August. 
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