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Aching Bones


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27 replies to this topic

#1 swittenauer

 
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Posted 21 August 2005 - 12:40 PM

I was curious if aching bones & pain in general are part of having Celiac. My husband seems to ache & hurt all over. I would like to do what I can to help him feel better but am unsure what to do. Has anyone else experienced this & if so what can be done. It seems to be an ongoing problem for him.
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July 19, 2005 - My husband Bill was diagnosed, via bloodwork, with Celiac.

August 3, 2005 - Biopsy confirmed Celiac Sprue.

Food Allergies: Chocolate, Shellfish & Gluten

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#2 Rachel--24

 
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Posted 21 August 2005 - 12:52 PM

I had aching bones and pain the whole time I was sick....even my teeth hurt. I never really had the "typical" stomach type pains or diarreah but the rest of my body ached constantly. Its going away quickly since I've been gluten-free...it only comes back when I'm reacting to something I've eaten. I was only sick 3 years (seemed like a lifetime) and I realize I was lucky since the average time for diagnosis is something like 11 years. I don't know how long your husband was sick but it could take some time to heal.
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Rachel

#3 Canadian Karen

 
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Posted 21 August 2005 - 04:08 PM

I am the queen of aches and pains..... It is just something that I live with, some days are worse than others..... :( I am 42, and have had many, many years of damage though, so that could be a factor......

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

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#4 emeraldskies

 
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Posted 21 August 2005 - 04:44 PM

I was curious if aching bones & pain in general are part of having Celiac.  My husband seems to ache & hurt all over.  I would like to do what I can to help him feel better but am unsure what to do.  Has anyone else experienced this & if so what can be done.  It seems to be an ongoing problem for him.

<{POST_SNAPBACK}>


Here are a few possible causes:

1. He could have low testosterone, common with malabsorption (which can lead to thinning bones)
2. He could have a bone disorder from malnutrition (osteomalacia causes constant bone pain)
3. He could have thyroid disease, which is associated with celiac disease (hypo can have a fibromyalgia effect, and hyper can cause bone and joint pain)
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emeraldskies

Diagnosed through EnteroLab in 2004 - malabsorption, antigliadin and antitissue transglutaminase IgA antibodies to gluten, and anti-casein IgA antibodies
HLA-DQ 2,1 (Subtype 2,6)
Gluten and casein free since diagnosis
Autoimmune thyroiditis
Hypocortisolism
Deficient levels of estradiol, estrone, pregnenolone, and testosterone
Low cholesterol (current levels: HDL-39, LDL-58, total-109, triglycerides-59)
Osteoporosis
Atrophic glossitis
Osteomalacia
Ataxia (gait and limb)

"All truth passes through three stages: first it is ridiculed, second it is violently opposed, and third it is accepted as self-evident."
- Arthur Schopenhauer

#5 Guest_nini_*

 
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Posted 21 August 2005 - 05:10 PM

I ache all the time too... some days are worse than others... I was 34 before getting dx, so 34 years of damage... previously dx with fibromyalgia as well.
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#6 Jnkmnky

 
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Posted 21 August 2005 - 05:19 PM

When my son was three yrs old and not yet dxed, he would grab his legs and cry and moan about the pain in his knees, elbows etc. After a few months gluten free, he's never had that again.
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#7 happygirl

 
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Posted 21 August 2005 - 07:30 PM

The "aches and pains." Those were my absolute worst symptoms, and for me, tell-tale signs that I've been glutened. As bad as my weight loss, ibs/bathroom problems, fatigue, etc, all minored in comparison to the severe bone and muscle pain I had. I hurt to the touch, my skin hurt! When I went on the gluten free diet (luckily, I think I had only been sick for about 10-11 months as compared to the many, many years some people were undiagnosed), the pain has completely disappeared, unless I am glutened. I never found anything that worked except waiting the gluten to get out of my system. I took lots of really hot baths and that was the only -very temporary- relief that I had. It took me a few months after I stopped eating gluten to have the pain stop.
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#8 PicturePerfect

 
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Posted 21 August 2005 - 07:51 PM

I have MANY aches and pains, and its mostly in my legs. But its because my hips are turned in so it causes pressure. It has nothing to do with Celiac. Does your husband walk with his feet in or out? Any bones look weird? That could be the cause.
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lisa mccorkell
diagnosed on May 31, 2005
orange county, california

"Laziness will cause you pain." (Unknown)

#9 Guest_kmmolina_*

 
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Posted 21 August 2005 - 08:25 PM

I too have had the aches and pains. Before I was diagnosed I just thought that these aches and pains, as well as many other symptoms, were just part of the aging process. Now that I've been gluten-free for almost 2 months I can see that most if not all were probably celiac related. I still have achy days, however, they are getting fewer and farther apart.
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#10 bmorrow

 
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Posted 22 August 2005 - 08:36 PM

I have severe bone and joint pain. I have been tested for lupus and arthritis, but the results were negative. I was diagnosed with Fibromyalgia approximately 15 years ago and again this year. I have improved since being on the gluten-free diet, but I still have to take pain relievers to function. I was taking hydrocodone, but I was becoming concerned, since it is so addictive, so now I take Ultram and tylenol. Your husband needs to talk to his doctor and have tests to be sure that nothing else is going on. I hope that he feels better soon!
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#11 elonwy

 
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Posted 22 August 2005 - 09:08 PM

My aches and pains were so constant I thought it was just part of being human.
I asked my bf a couple months ago ( b4 diagnosis) if he hurt all the time. He said no.
I started to ask more people and realized it wasn't normal at all. Everything felt bruised all the time. Today was my first complete day with no muscle pain, no fatigue, no brain fog, no headache, no tummy-ache, and no weird poo.
It gets better. I used Alleve really heavily before I got diagnosed, but there are some problem with long term use ( as with everything).
Hopefully He'll feel better soon.
Elonwy
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Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.


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#12 Guest_nini_*

 
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Posted 23 August 2005 - 04:21 AM

I'm having a really bad week with this. I'm trying to figure out where I got "glutened" if that is indeed the case, because I've been sore and achey all over, dizzy, nauseas, the big "d" and really fatigued. This has been going on for almost a week now and I'm really tired of it. It wakes me up in the middle of the night sometimes with the numbness and tingling in my hands and legs, severe pain in my low back and arms, just yucky all over. I am hoping this will go away soon as I am really tired of feeling like this.

I haven't eaten anything from a restaurant, or fast food except last week my boss brought me a (one) hash brown from McDonald's and I was so hungry I ate it without thinking. I've been a wreck ever since.
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#13 Jen H

 
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Posted 23 August 2005 - 06:24 AM

I've also had aches and pains for the past few months. I've been gluten-free for about 2 weeks now and I've noticed a difference in how I feel. The aches and pains aren't as bad as they were. Maybe the diet will help your husband's pain. I've also had ear pain and sinus pressure. Has anyone else had that? Could that be related to celiac disease?
:) Jen
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#14 Rachel--24

 
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Posted 23 August 2005 - 07:01 AM

I'm having a really bad week with this. I'm trying to figure out where I got "glutened" if that is indeed the case, because I've been sore and achey all over, dizzy, nauseas, the big "d" and really fatigued. This has been going on for almost a week now and I'm really tired of it. It wakes me up in the middle of the night sometimes with the numbness and tingling in my hands and legs, severe pain in my low back and arms, just yucky all over. I am hoping this will go away soon as I am really tired of feeling like this.

I haven't eaten anything from a restaurant, or fast food except last week my boss brought me a (one) hash brown from McDonald's and I was so hungry I ate it without thinking. I've been a wreck ever since.

<{POST_SNAPBACK}>


Nini,
Sorry you feel so bad...It definately sounds like you got "glutened" from the hash browns. Those are the same symptoms I get except for the "D". I wake up several times in the night with that same numbness/tingly feeling....also sweating. :( Hope you are better soon.
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Rachel

#15 deb.h.

 
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Posted 23 August 2005 - 08:00 AM

I used to feel like I had a 24 hour flu everyday. my spine would ache from top to bottom, every joint and ever muscle. My husband would call my side of the bed "the coffin" because it took me aobut 10 minutes to set up all my pillows( about 7 or 8 ) and once I settled in and got in the right position i couldn't move or i wuold be up all night in pain. My neck and lower back were out all the time and my muscles woul twitch and cramp. I would wake up some nights with no feeling in my one arm. It wasn't asleep it was compressed nerves. One night I woke up and all I felt was my torso. both arms and legs were number. I probably had a panic attack since I was very prone to those. Hard to believe as i amwriting now that that was me. some days i would just cry in my husbands arms because I just hurt too much. i was diagnosed with fibromyalgia andwithin a month or so i discovered info about celiac and gluten intolerance through a recipe website. i was looking for a recipe that a friend recommeded. I wasn't trying to be gluten free I just wanted this recipe. It said on the sight something about a woman being diagnosed with celiac with the only symptom being anemia. well I had been severely anemic as long as I could remember and never liknked it it for a moment to celiac. I got tested and it came back one point away from positive but I knew better and started the diet immediatley. It took about 7 or 8 months for all the aches and pains to finally clear andthe horrible muscle pains that I had been having. I do have to watch however for preservatives and other food sensitivities because that will cause it toflair up. Especially CHOCOLATE. It makes me physco as well. My kids always know when i have eaten chocolate. I become so horribly angry and cranky they can't stand being around me. MSG same thing. alot of spices that I cannot pinpoint and sometimes rice if I eat too much.

I know I am eating optimally when i wake up in the morning and cannot feel my body. i don't creak and crack and moan as my feet hit the floor.

After testing everyone in my family with ENTEROLAB I have discovered that we all have the gluten sensitive genes and my two youngest daughters are positive for gluten and casein and my youngest for yeast and dairy. wish i had done the test three years ago when i started all this but oh well. All I know is that I will never eat gluten again!! And I really don't consider that I have Fibro anymore just Gluten sensitiviy. My doctor even said that for him it was just something he had to put down because he didn't have any answers.
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Debbie

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