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"my Kids Can't Have Gluten So I Have To Get Whole Wheat Spaghetti For Them"


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25 replies to this topic

#1 their_aunt

 
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Posted 18 December 2011 - 10:35 PM

So I'm new here. My sister has decided that her kids, the two SHE gave birth to, not her stepkids, are gluten sensitive.

I'll try to keep this short and near the point. She was anorexic in high school until our parents started "hounding" her and then she became bulimic. She survived that, only to still barely eat anything. I should note at this time that women in our family are not typically heavy at all.

On to her kids, HER two kids, the other two are fine. (A little bitterness here as she tends to treat them a little different.) She decided that they were gluten sensitive since they have tummy aches. She had them tested and it came back negative. She decided to put them on a gluten free diet. Ok. Two years later I'm getting close to mastering the gluten free cooking. It took some practice, but I won over the "Gluten-free is taste free" crowd at Thanksgiving. The look on my neice's face was priceless when she asked me which were the ones she could eat and I told her everything.

She started homeschooling the kids this year and apparently their lunch, everyday, is peanut butter, yogurt, and a banana.

I can't count the times I've heard the youngest one ask for more, be told no and then hear "but Momma I'm still hungry."

The last time she took them to the doctor, she was told they were underweight. They do look like they're getting too thin.

Oh yeah and I forgot to mention that when they were babies, if they didn't poop when she thought they should, she was always quick to give them laxatives or even suppositories. Which causes me to worry that maybe she messed with their natural development, which in turn caused their tummy aches.

And finally, does this not sound like she is pushing her eating disorder onto her children? I won't even get started on my Munchausen by proxy theories.

Oops. One more thing that originally sent me here in the first place. She preaches at every family function that her kids can't have anything with gluten. She insists that everyone change how they cook for her two girls. However she serves them whole wheat pasta and whole wheat tortillas. Does this not contradict the gluten-free diet she supposedly has them on? I think she's crazy, but I'm crazy for all my neices and nephews and if cooking gluten-free makes life easier and better for those two, I'll go all out, but does she sound crazy or what?

(First post to a forum ever) Apologies for any spelling or grammatical errors, Thanks for reading!
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#2 AVR1962

 
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Posted 19 December 2011 - 12:35 AM

This is really really an unfortunate situation. I think your sister is confused and she might not even realize it. It is possible that gluten is giving her children problems but I wonder why she doesn't realize wheat pasta and wheat tortillas have gluten. Is it because it's not white and she is associating white bleached flour to gluten and not whole wheat?

In a sense it does sound like your sister may be passing off some of her issues to her children which is not uncommon. However, there is very little family can do without alienating the family member completely.

I do undersatnd your frustration and feeling of helplessness in this situation.
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#3 maximoo

 
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Posted 19 December 2011 - 03:56 AM

annonymously report her for child neglect.
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#4 kareng

 
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Posted 19 December 2011 - 05:16 AM

Have you asked her about the whole wheat stuff? What did she say? What does the
Dad say?

You may have to report them. If you know who the pediatrician is, you might talk to him/ her.
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#5 Bubba's Mom

 
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Posted 19 December 2011 - 05:24 AM

I think you're right to be worried about the kids. if they were overweight I could see limiting their calories, but that doesn't sound like the case here?

Serving whole wheat would ge better nutritionally and on the glycemic index scale, for blood sugar control..but makes nO sense to serve to kids that are supposed to be gluten-free.
In fact, I've always wondered if whole wheat has MORE gluten than white bread which has been processed more.

Honestly, it sounds like the mother needs therapy.
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#6 lovegrov

 
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Posted 19 December 2011 - 05:34 AM

Well, if this is truly the whole story, then you sister sounds quite ill and in serious need of help. Her children are at risk for all kinds of problems.

richard
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#7 modiddly16

 
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Posted 19 December 2011 - 05:42 AM

I agree. Its no wonder you are concerned for your neices and nephews. Is there anyway you can sit down and talk to your sister about what's going on? I'm not sure of the relationship that you have with her...is there a husband in the picture that maybe you could talk to? Telling a kid 'no' who says they're hungry after you know they aren't eating enough, just isn't right...especially when they're growing and maturing. How has your sisters eating been? Has that concern been coming back? If nothing else, I'd definitely discuss the whole wheat not being gluten free thing with her.
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#8 bumblebee_carnival

 
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Posted 19 December 2011 - 05:06 PM

I am sorry, but she sounds mentally ill. I second giving their doctor a call.
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#9 domesticactivist

 
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Posted 19 December 2011 - 06:19 PM

Whole wheat is full of gluten. You are right to be concerned.

I think the first thing you need to do is pass on a very reputable source of information about whole wheat containing gluten. The university of chicago has a great celiac research center that explains about celiac and the gluten free diet.

I think it is not child abuse to feed them gluten free with negative celiac tests, since she is right that many people have intolerances or even celiac with negative test results. However, she needs to actually do it! I have a post about going 100% gluten free on my blog that might appeal to her need to control things ;P

Next, there are so many good blogs for people with histories of eating disorders and also feeding kids. A favorite is:
http://familyfeedingdynamics.com/
I wonder if she would be interested in any of the articles there. I am guessing from your post that she may feel judged by you if you send something like this her way, but if there is a way to share articles with her without directing them at her (like on facebook as your own wall post with a comment having nothing to do with her) that might help.
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Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

#10 Di2011

 
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Posted 21 December 2011 - 01:18 AM

I made a boo boo yesterday - I should stick to facebook or forum not both!! :blink:
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#11 Katrala

 
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Posted 21 December 2011 - 12:56 PM

If she says that they have improved on a gluten-free diet while she is feeding them whole wheat, then their problem (or supposed problem) likely has nothing to do with gluten.

However, telling family that the kids follow a gluten-free diet would limit the amount of cakes and such they could be given. Just food for thought.
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#12 sariesue

 
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Posted 21 December 2011 - 02:35 PM

If she says that they have improved on a gluten-free diet while she is feeding them whole wheat, then their problem (or supposed problem) likely has nothing to do with gluten.

However, telling family that the kids follow a gluten-free diet would limit the amount of cakes and such they could be given. Just food for thought.


I have to agree. Especially because also, I've heard that some people are using a gluten free diet to hide their eating disorder. This kinda sounds like another version of that. Especially since whole wheat is supposed to be healthier for you than white flour.


If you are concerned that these children are being abused please call their local child protective services. You can do so anonymously.
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#13 Juliebove

 
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Posted 21 December 2011 - 06:14 PM

People think really strange things. My daughter was at my friend's house when she was little and my friend asked me if she could have some Ramen noodles? This was long before we knew of her wheat allergy. I said she could. I was then horrified to learn that my friend gave them the noodles straight from the package. Uncooked! She told them they could sprinkle just a little of the powder on the noodles for flavor. But not too much because she had them on a low sodium diet. I was like... But... You give them GATORADE! It's loade with sodium! She kept denying it until her husband overheard and agreed with me. She then ran to the cupboard and looked. She looked horrified. I guess she didn't read labels. She also kept opened bottles of Gatorade in the cupboard, unopened.

She also told me she had put her middle daughter on a gluten-free diet and that it was really easy. Said to just give her rice instead of bread. Said that it didn't help her at all. Well knowing now what I know about what you really should do to go gluten-free, I doubt that she did it right.

Her kids were very thin and I was amazed at how little food she actually fed them. I think she herself had an eating disorder, living mostly on coffee and cigarettes and bragging that she just ate one meal per day. She had some other weird issues. Like wearing only white tops. She had hundreds of white tops, mostly all the same.

One day the Dr. told her she had to feed her littlest one more food. The girl was 3 I think and weighed only 20 pounds. I also saw the oldest one being screamed at by the dad for eating a whole bag of baby carrots. I think those kids were starving all the time.
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#14 Katrala

 
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Posted 22 December 2011 - 02:57 AM

I said she could. I was then horrified to learn that my friend gave them the noodles straight from the package. Uncooked!


Slightly off-topic, but I've heard of other people doing this.

Personally, I think it's gross.

But I've seen people snacking on uncooked ramen noodles - not because they didn't know to cook them, but they actually LIKED them uncooked. Weird, IMO, but my mother also prefers orange peels to the actual orange (which I think is even weirder.)
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#15 modiddly16

 
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Posted 22 December 2011 - 05:36 AM

I've eaten Ramen noodles uncooked pre-celiac....it was college, and it wasn't terrible :)
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