"can You Eat This? What About That?"
Posted 20 December 2011 - 01:16 AM
How should I address it nicely even though sometimes I want to scream for them to mind their own business? I don't like me and my gluten free diet being the topic of conversation and frankly it is not a fun topic to talk about but rather boring. I hate feeling ostracized and I feel like I am when the conversation is centered on me and my food. I'm afraid one day I'm going to get fed up with all the questions/comments/jokes and just go off on someone if it doesn't stop. Anyone been there?
(Sorry - this wasn't meant to be a vent.)
Posted 20 December 2011 - 04:23 AM
I don't know if this will help, but what I tell people is that it's easier to think about what you can eat instead of what you can't. I usually just say, the diet is pretty easy (hee hee); I just eat a lot of meat, veggies, fruit and nuts. It seems like most people can wrap their heads around that.
Posted 20 December 2011 - 06:32 AM
Fortunately, in time people get it, esp. when they see you be really strict about it & consistent. A typical dieter cheats, a celiac won't !
I also tell folks who ask that eating gluten for me is like getting the flu...and who wants that ? He he, they also aren't going to likely ask about the gory details after you put that out there !
Anyway, answer a direct question and then change the subject. I had a work meeting yesterday & for the first time ever they ordered gluten-free pizza from Boston Pizza for me, so I thanked my boss & the questions came, so that's what I did - answerered & redirected.
Posted 20 December 2011 - 05:10 PM
Posted 20 December 2011 - 05:38 PM
Posted 20 December 2011 - 06:24 PM
Posted 21 December 2011 - 03:19 AM
The funny thing is that there *are* gluten free kibbles! My dog's food says "gluten free". heehee..
I had someone at work last week ask me if there was some kind of gluten-free kibbles I could eat. Kibbles? uhhhh, I'm a dog????
But, I agree that I wouldn't want to be asked that!
Posted 21 December 2011 - 05:58 AM
Be gracious if someone gives you something, take it home, & dump it. Better yet, have a non celiac try it - tell the person someone liked it but that you didn't eat it because you were afraid of cross contamination - but appreciated the gesture.
I have done this - the giver gets apprecaition but you get your point across! I have been glutened by gluten-free cookies someone made for me awhile back, because their pans were gluten-free of course (I guess). Not worth it ! We've all heard of the person who uses white flour instead of wheat - so the product has no gluten (????!!!!?????!!!!). People just don't know.
Posted 21 December 2011 - 08:09 AM
My mom is delighted that I've started letting my kids have whole fruit they can wash and peel at her house.
I have a few posts on how to handle this kind of thing on the blog linked from my profile. One is called The Holidays and then there are Crazy Diet People parts 1,2and3.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
Posted 21 December 2011 - 02:15 PM
When people offer to try to make something, etc. I just tell them I appreciate the effort, but cooking for celiac is nearly impossible. That way they get off the social niceties hook and I don't have to worry about offending them later.
Posted 22 December 2011 - 04:13 AM
I usually just say that I can't have most baked goods and pastas... I know that there is so much more to it than that, but I also don't want to give them a health class lesson explaining it all... I get bored of it after a while
Along with explaining my condition in the shortest of terms, I get a lot of sympathy- which I don't always like because I want to feel like I'm normal, not sick! I've also had some pretty funny reactions, like "Oh so you can have cookies, but not the dough?" Uhhh, what? They then said that they thought all the gluten "baked out." *facepalm* Gotta try to understand though, most people don't even know what gluten is, I know I didn't before my diagnosis.
If you find yourself being pressed with all kinds of inquiries that you've heard 1000+ times, or find yourself being the center of attention when you don't want to be, I would just try to change the subject. I've had plenty of times when I've wanted to say, "Just STOP asking me about it, would ya??? It's not a big deal, okay?!??" It would probably feel good at the time, but I'd totally regret it and feel guilty later!
Yet still I carry on.
Posted 23 December 2011 - 03:24 PM
Posted 23 December 2011 - 04:13 PM
I say: Gluten is like kryptonite to me and Super Girl can't fly when it's around.
or I say: I eat tons of different, delicious foods and don't find it restrictive at all. You should taste the killer cheesecake I just made.
or I say: Thanks for asking, I'm still adjusting, but being gluten free saved my life and I am lucky there are so many options available.
or I say: If anyone really wants to know about celiac or the gluten-free life, I can email you some info! (I never use the word diet, for some reason--maybe because I do not feel starved anymore)
or I say: I eat better than I have in my whole life.
I guess once you get a few more months under your belt, you may view these questions and answers differently.
People mean well and they probably are just curious because they do not know what's involved. Sometimes, it's your chance to educate them.
This is still new to you and understandably, you're having some difficulty around the holidays. It gets easier, hon, I promise!
Have a good holiday season!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
Celiac.com - Celiac Disease Board Moderator
Posted 24 December 2011 - 06:12 AM
I had to change my way of thinking about it. I started a blog shortly after dx and one of my posts was about feeling like celiac was all I talked about. It's typical that newly diagnosed celiacs seem to be talking about it and the people around us talking about it. You have to change your thinking on it. I talked about it because it was new and scary and very relevant in my life at the time. Others talked about it because they didn't know about it and they're curious. It obviously still comes up but here's a way to look at it...at least they're asking. It shows that they're concerned and they're trying to make the right choices for your benefit. Last week my friends and I got together for Christmas and I spent a lot of time on the phone with the hostess because she was asking questions and making sure that she was getting things that were safe for me.
Just take the attitude that people do care and they're trying to figure things out, just like we did after diagnosis.
dx: celiac sprue 6/7/2011 via blood test and biopsy
Posted 24 December 2011 - 09:25 AM
That usually shuts people up really quickly!
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