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My Daughter Had Her Endoscopy....dr Prescribed Nexium
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She is 19 but the celiac specialist pediatric gi dr my boys see said he would do her endoscopy as well. So it was done this afternoon. We have to wait a week for the results of the biopsies. However, he saw "extensive irritation to her esophagus" and she has a hiatal hernia. He said the esophagus irritation is often seen in someone with food allergies. Anyway, he put her on nexium.

I've often noticed here on the forum people talking about esophagus disorders...is this something common with celiac. I can tell you that my husband had severe acid indigestion and it was the first symptom to go away after giving up gluten 2 yrs ago. His diarrhea took 5 to 6 months to clear completely though.

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Heartburn and acid reflux are extremely common with celiac and gluten intolerance.

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That's what it appears...by doing some reading throughout the last couple of years I have seen a lot of people talk about it on the forum. Must be.

Anxious for the tests to all come back.

Grrr...Nexium was not covered by our insurance. Have to wait for the pharmacy to call the dr tomorrow and see if there is an equivalent replacement.

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I hope your DD is feeling well soon. If she has never been on re-flux medication before watch her stomach and BM's. New medication can reap havoc on your intestinal track.

I was on Zegrid for 2 years and it stopped working last year. Endoscopy showed inflammation to stomach and esophagus, no celiac blood work was taken @ that time. This year I have been on Dexilant, Previcad, Prilosec, Zantec, Zegrid none of which helped and most all gave me bad D. After blood and endoscopy confirmed celiac late October I have been on Nexium. It works for me, I have been off it for the past 3 weeks do to a fasting serum gastrin blood work I had done yesterday. Can't wait to get back on it.

Please watch her carefully and if has any side effects call the Dr. Hope all results turn out well.

Cathey

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This is only my opinion but you might want to just have her go gluten free. Many times the irritation is from the gluten and gluten free she may not need the meds. At least that was the case for myself and my DD. We also eliminated dairy at first.

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Ravenwood, I considered that because with her dad the first thing to improve going gluten free was his severe indigestion.

The only challenge she faces is eating in her college cafeteria. If her biopsy does not confirm celiac the college won't have too provide to much in the way of helping her with her gluten free diet. It'll make me nervous sending her back to her dorm room!

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I think there is a conection. Barret's esophagus and eosinophilic esophagitus seem to be active in for local people with Celiac in the area I live in.

My daughter was diagnosed with EE 3 years ago. We have managed Eosinophilic Esophagitus very well with avoiding food "triggers". It was not easy determining what these triggers were because allergy testing showed nothing. It was through an elimination diet that we were able to figure out eggs, fish, shellfish and peas cause problems for her. I found the most help here at the gluten free forum, as gluten can be a "trigger" for some suffering with EE. Through time we have noticed there is also an airborn reaction late summer through the first heavy freeze. Eosinophils can stay active for 12 days, so it takes almost 2 weeks for a reaction to stop damaging the area.

Wishing your daughter a speedy recovery! :)

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
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