My Daughter Had Her Endoscopy....dr Prescribed Nexium
Posted 20 December 2011 - 04:40 PM
I've often noticed here on the forum people talking about esophagus disorders...is this something common with celiac. I can tell you that my husband had severe acid indigestion and it was the first symptom to go away after giving up gluten 2 yrs ago. His diarrhea took 5 to 6 months to clear completely though.
Posted 20 December 2011 - 05:22 PM
Posted 20 December 2011 - 06:33 PM
Anxious for the tests to all come back.
Grrr...Nexium was not covered by our insurance. Have to wait for the pharmacy to call the dr tomorrow and see if there is an equivalent replacement.
Posted 20 December 2011 - 07:41 PM
I was on Zegrid for 2 years and it stopped working last year. Endoscopy showed inflammation to stomach and esophagus, no celiac blood work was taken @ that time. This year I have been on Dexilant, Previcad, Prilosec, Zantec, Zegrid none of which helped and most all gave me bad D. After blood and endoscopy confirmed celiac late October I have been on Nexium. It works for me, I have been off it for the past 3 weeks do to a fasting serum gastrin blood work I had done yesterday. Can't wait to get back on it.
Please watch her carefully and if has any side effects call the Dr. Hope all results turn out well.
Posted 21 December 2011 - 04:33 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 21 December 2011 - 05:42 AM
The only challenge she faces is eating in her college cafeteria. If her biopsy does not confirm celiac the college won't have too provide to much in the way of helping her with her gluten free diet. It'll make me nervous sending her back to her dorm room!
Posted 21 December 2011 - 07:18 AM
My daughter was diagnosed with EE 3 years ago. We have managed Eosinophilic Esophagitus very well with avoiding food "triggers". It was not easy determining what these triggers were because allergy testing showed nothing. It was through an elimination diet that we were able to figure out eggs, fish, shellfish and peas cause problems for her. I found the most help here at the gluten free forum, as gluten can be a "trigger" for some suffering with EE. Through time we have noticed there is also an airborn reaction late summer through the first heavy freeze. Eosinophils can stay active for 12 days, so it takes almost 2 weeks for a reaction to stop damaging the area.
Wishing your daughter a speedy recovery!
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