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Confused And Worried After Ultrasound

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My son (4 yrs) has had abdominal pain, stomach issues and behavioral problems for a long time. Celiac disease has been suspected, but so far tests have generally been negative (no tTG antibodies, negative biopsy, but DQ2 positive). He has been on a gluten free diet for a month. Friday he went to ultrasound check of inner organs, and everything looked fine, except the small intestine. The ultrasound doctor said parts of it was totally smooth and dilated and sorrounded by lymph nodes. The affected area was below the part of the intestine that is reached by gastroscopy.

We now have to wait for his GI to get back to us with the results from the ultrasound, but also from X-ray, immunohistochemistry of the biopsy and stool sample. I tried to reach him today, without any luck, and I am going out of my mind trying to figure out what this mean. Could this still be celiac disease (even though all the other tests were negative)? And could one expect him to be anitbody negative if the damage is so severe that it is visible on ultrasound? I mean it is rather severe if one sees it on ultrasound, isn't it? Could this be Crohn's disease instead? What else? If anyone has any similar experience or some insight that might help, I would really appreciate it!


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our daughter has positive genes, negative on every blod test , had them taken 3 times in 8 months, but doing amazing gluten free, she still gets stomach aches and weird bm's and keeps telling me that her tummy hurts and there are bad things in her tummy, going back to gastro soon if it doesn't stop. we were told she is too young for crohns at 3 , but her dad has it so part of us wonders if it itis crohns as gluten-free helps crohns


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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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