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Is It Gluten Or Is It Lechtin? Please Help :-(
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I have been having symptoms related to those of a gluten allergy for a few years now...and have just linked them to gluten recently. The main issue is that about 30 minutes or so after eating (what appears to be foods with gluten) I have to run to the bathroom immediately with diarrhea. So much so, that sometimes I am worried if I will make it or not. This is accompanied with strong stomach cramps, and often a general 'unwell' feeling after eating. When I eliminated gluten from my diet these problems went away. Shortly after that (about 2 weeks) I started reintroducing gluten to be prepared for blood testing. When I did this, my symptoms returned.

Today I was eating chips that appeared to be gluten free - they were made with corn and brown rice - however, I had my normal mad bathroom dash shortly after eating this. This confused me, so I started doing research about brown rice, and found the lectin connection.

Does anyone know the difference between the symptoms of a gluten allergy and a lectin allergy/how to tell the difference? Are their tests for a lectin allergy?

I have been battling with trying to figure this thing out for a long time and keep getting discouraged because everything turns back negative (including colonoscopy and celiac blood testing- which is good but very frustrating not knowing the cause)

Any information you could provide would be very greatly appreciated...Thank you so much!

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I have been having symptoms related to those of a gluten allergy for a few years now...and have just linked them to gluten recently. The main issue is that about 30 minutes or so after eating (what appears to be foods with gluten) I have to run to the bathroom immediately with diarrhea. So much so, that sometimes I am worried if I will make it or not. This is accompanied with strong stomach cramps, and often a general 'unwell' feeling after eating. When I eliminated gluten from my diet these problems went away. Shortly after that (about 2 weeks) I started reintroducing gluten to be prepared for blood testing. When I did this, my symptoms returned.

Today I was eating chips that appeared to be gluten free - they were made with corn and brown rice - however, I had my normal mad bathroom dash shortly after eating this. This confused me, so I started doing research about brown rice, and found the lectin connection.

Does anyone know the difference between the symptoms of a gluten allergy and a lectin allergy/how to tell the difference? Are their tests for a lectin allergy?

I have been battling with trying to figure this thing out for a long time and keep getting discouraged because everything turns back negative (including colonoscopy and celiac blood testing- which is good but very frustrating not knowing the cause)

Any information you could provide would be very greatly appreciated...Thank you so much!

Welcome to the Forum!

Have you had an Endoscopy Test (mouth down)? Post your Celiac Blood Panel here and we have people who can help you interpret. Take one issue on at a time, say gluten and later, if unresolved advance to other issues.

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Welcome to the Forum!

Have you had an Endoscopy Test (mouth down)? Post your Celiac Blood Panel here and we have people who can help you interpret. Take one issue on at a time, say gluten and later, if unresolved advance to other issues.

Thank you! I have not had an Endoscopy yet, I just got the blood test results over the phone today. I have not received any paperwork for them yet. Do I need to request that?

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Just a thought. The chips may have been made on shared equipment. To be sure you would have to call or e-mail the company.

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I don't know of any blood tests for lectin reactions. You can eliminate lectins for a couple weeks by eating a restricted diet and see if you get better. This link has an elimination diet, plus links to more articles on lectins at the bottom.

http://tomsthird.blogspot.com/2009/12/toxic-lectins-elimination-diet.html

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    • thank you for the info, its very helpful to hear from someone else who has it and knows a lot about it. When you say I may be eliminating one problem vs 3, what would you think the other problems could be? It's frustrating because I even buy Uldis gluten-free bagels and what not and I still find myself reacting sometimes to that, I don't use butter but just gluten-free peanut butter, but like I said I don't know for sure if its from that or maybe something else. I have read on this site about a couple others that have had issues with uldis breads so could be that. but like you said I guess it can also just take awhile to get better. I read the other day that a lot of throwing up can put stress on your small intestine which can maybe cause your body to react to dairy, do you know anything about that or if that's true?
    • Thanks for the reply!  Yeah, I really should have gotten testing done before the elimination diet.  I had asked my previous doctor, but she didn't want to do it.  I was transitioning to a new insurance and couldn't get a doctor's appointment for awhile, so I thought I would just do the elimination diet.  After all, it might not have been gluten.  (<--that was my thought process...) Hindsight is 20/20.  I felt pretty good during those 3 weeks gluten free, and was not expecting how bad it would be when I added it back in.  Anyway, I found a new doctor and I think she would totally be willing to test me again 9 weeks out. I think she would also be willing to order the endoscopy if I brought her research and really pushed for it. Now that I know how good feeling good feels... I just can't see staying on gluten for another 9 weeks.  I honestly don't know how I would survive.  Even if it's not Celiac, and it's ONLY the wheat allergy... it's making my life absolutely miserable. Thanks again for the reply!  I think I'll go in Friday for the blood test and take it from there.
    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
    • I have Celiac, Hashi's thyroid disease, Sjogren's Syndrome and Reynaud's Syndrome.  All have gotten better, inflammation wise, after 11 years gluten free.  I am very strict with my diet, never take chances if I feel the food is not really gluten free and limit the number of times I go out to eat.  I am not saying I never go out but it is normal for my husband and I to not see the inside of a restaurant for 3-4 months at a time and then I only eat at the places that have never glutened me.  I am lucky in that the state I live in has 3 restaurant chains that are run/owned by Celiac's, so they get it right every time. You have not been gluten free for very long, in reality.  It took me three years to completely rid myself of all symptoms related to the disease.  I was 46 at the time of diagnosis.  I know it is hard to accept that healing can take that long but you have to measure it differently.  Looking back, you should feel better than you did a year ago.  As time goes on, healing slowly takes place until you realize that certain problems have disappeared.  It is not as cut and dried as taking an antibiotic for an infection. http://www.drweil.com/drw/u/ART03424/Elevated-Creactive-Protein-CRP.html  Read this article on elevated c reactive protein. It is by Dr. Weil, who is a Harvard trained physician who chose to go the more natural route to healing people.  All his stuff is interesting.  Yes, your elevated level will most likely come down, as you heal better.  Pay attention to it but don't let it freak you out too much! 
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