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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is It Gluten Or Is It Lechtin? Please Help :-(
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5 posts in this topic

I have been having symptoms related to those of a gluten allergy for a few years now...and have just linked them to gluten recently. The main issue is that about 30 minutes or so after eating (what appears to be foods with gluten) I have to run to the bathroom immediately with diarrhea. So much so, that sometimes I am worried if I will make it or not. This is accompanied with strong stomach cramps, and often a general 'unwell' feeling after eating. When I eliminated gluten from my diet these problems went away. Shortly after that (about 2 weeks) I started reintroducing gluten to be prepared for blood testing. When I did this, my symptoms returned.

Today I was eating chips that appeared to be gluten free - they were made with corn and brown rice - however, I had my normal mad bathroom dash shortly after eating this. This confused me, so I started doing research about brown rice, and found the lectin connection.

Does anyone know the difference between the symptoms of a gluten allergy and a lectin allergy/how to tell the difference? Are their tests for a lectin allergy?

I have been battling with trying to figure this thing out for a long time and keep getting discouraged because everything turns back negative (including colonoscopy and celiac blood testing- which is good but very frustrating not knowing the cause)

Any information you could provide would be very greatly appreciated...Thank you so much!

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I have been having symptoms related to those of a gluten allergy for a few years now...and have just linked them to gluten recently. The main issue is that about 30 minutes or so after eating (what appears to be foods with gluten) I have to run to the bathroom immediately with diarrhea. So much so, that sometimes I am worried if I will make it or not. This is accompanied with strong stomach cramps, and often a general 'unwell' feeling after eating. When I eliminated gluten from my diet these problems went away. Shortly after that (about 2 weeks) I started reintroducing gluten to be prepared for blood testing. When I did this, my symptoms returned.

Today I was eating chips that appeared to be gluten free - they were made with corn and brown rice - however, I had my normal mad bathroom dash shortly after eating this. This confused me, so I started doing research about brown rice, and found the lectin connection.

Does anyone know the difference between the symptoms of a gluten allergy and a lectin allergy/how to tell the difference? Are their tests for a lectin allergy?

I have been battling with trying to figure this thing out for a long time and keep getting discouraged because everything turns back negative (including colonoscopy and celiac blood testing- which is good but very frustrating not knowing the cause)

Any information you could provide would be very greatly appreciated...Thank you so much!

Welcome to the Forum!

Have you had an Endoscopy Test (mouth down)? Post your Celiac Blood Panel here and we have people who can help you interpret. Take one issue on at a time, say gluten and later, if unresolved advance to other issues.

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Welcome to the Forum!

Have you had an Endoscopy Test (mouth down)? Post your Celiac Blood Panel here and we have people who can help you interpret. Take one issue on at a time, say gluten and later, if unresolved advance to other issues.

Thank you! I have not had an Endoscopy yet, I just got the blood test results over the phone today. I have not received any paperwork for them yet. Do I need to request that?

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Just a thought. The chips may have been made on shared equipment. To be sure you would have to call or e-mail the company.

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I don't know of any blood tests for lectin reactions. You can eliminate lectins for a couple weeks by eating a restricted diet and see if you get better. This link has an elimination diet, plus links to more articles on lectins at the bottom.

http://tomsthird.blogspot.com/2009/12/toxic-lectins-elimination-diet.html

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      I ordered the cookbook the same day you recommended it.  I am SO excited!  I actually cried looking through the book!  I honestly don't believe I am good at all in the kitchen.  I am lucky enough to have a husband who cooks everything when he's home.  The only thing I felt skilled at in the kitchen was baking.  I made all of my kids' birthday cakes for the last 8 years.  I was sad thinking that we wouldn't have anything good for a birthday cake.  I mean, I've tried gluten free cake from a box, but it was just ok.  It wasn't amazing the way a homemade cake can be.  So now I have hope.  Hope that maybe my non-celiac kids will enjoy a birthday cake still.  My daughter (the most-likely-to-be-celiac one) never really ate birthday cake to begin with.   So this summer is her birthday and we will find out if it's good!  Thank you for the recommendation!!!   Janis
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