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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

H. Pylori
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10 posts in this topic

I was diagnosed with h. pylori a few weeks ago. My naturopathic dr. put me on a supplement called pylorocid with zinc, mastic gum extract, berberine sulfate hydrate, and bismuth citrate. I have been taking it for 2 weeks. From reading some other post it seems like I should be taking an antibiotic to get rid of it although I know she wants to take a natural approach. Has anyone used a supplement like this? I am also have a persisent pain (worse when seated) slightly to the left of my breast bone, along my lower left rib cage. It is painful to the touch. Could this be my stomach causing this pain? and could it be related to the h. pylori or ulcers? Thanks so much!

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I was diagnosed with h. pylori a few weeks ago. My naturopathic dr. put me on a supplement called pylorocid with zinc, mastic gum extract, berberine sulfate hydrate, and bismuth citrate. I have been taking it for 2 weeks. From reading some other post it seems like I should be taking an antibiotic to get rid of it although I know she wants to take a natural approach. Has anyone used a supplement like this? I am also have a persisent pain (worse when seated) slightly to the left of my breast bone, along my lower left rib cage. It is painful to the touch. Could this be my stomach causing this pain? and could it be related to the h. pylori or ulcers? Thanks so much!

Mastic gum is a natural antibiotic with no side effects. I took that after I was diagnosed (by stool test) with H. Pylori. I also took L. Glutamine to heal my stomach damage from HP. I had no side effects or lingering stomach pain after 6 weeks of treatment.

I don't know the other supplements which your NP prescribed to heal your HP, but I know Mastic gum kills the H. Pylori bacteria without significantly killing off your gut's good bacteria.

Your stomach pain sounds very similar to what I experienced before I was diagnosed and treated for HP. Hang in there. Mastic gum will kill your HP. Hopefully the other supplements will heal your stomach.

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The effect of mastic gum on Helicobacter pylori: a randomized pilot study.

Dabos KJ, Sfika E, Vlatta LJ, Giannikopoulos G.

Source

Department of Gastroenterology, Chios General Hospital Skylitsion, Helenas Venizalou 2, 82100 Chios, Greece. kostasophia@yahoo.com

The abstract linked says they found some success with using mastic gum to treat H.Pylori. It was only a 2 week study so the results may have been even better if a longer trial was done. But 4 or 5 of 10 people had relief using mastic gum in two weeks.

@Sarah

By the way Sarah,

I haven't been to a doctor about mine,. But I think I have it too since a glutening a few weeks ago. I have pain in my left side. It is less when I lay down on my left side, but resumes after I have been up a while. Lying on my right side doesn't help at all. To me that means the stomach acid is doing something to help the situation when I lay on my left aide and it washes that area. i don't usually sleep on my left side but do sleep on my right side. Just my thinking on it.

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Thank you both for your responses. I just realized I posted this in the wrong category. The pain in my left side started about 2 weeks ago--about the time I began the h. pylori treatment. I am supposed to take the supplement for 4 weeks so I am wondering why I have the pain now and not before I began treatment. I also started take L. gluatamine around the same time. Are/were either of your pains painful to the touch?

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Hi Sarah,

Mine is deep inside so I have to squeeze to feel the pain better? It is not at the surface/skin or respond to a light touch kind of thing. I can definitely localize it to the top left side of my stomach though. Without any touch, I can feel it is coming from there. Boy, I sure felt it yesterday when I hopped out of my Jeep at the store. Ouch! Big time pain. I went to a grocery store and a CVS pharmacy but they didn't have mastic gum. I did find it at Vitamin Shoppe though. So far so good. It seems like it is helping. I plan to keep taking it for a month. I am also drinking ginger beer and ginger tea. I put some rum in the ginger beer at night and it takes the pain away quickly.

I am still sleeping on my left side which helps also. I am a mastic gum believer now though, good stuff! I never tried it before this.

Burdee thanks so much for your advice on mastic gum! :D

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I was just reading an article about getting better sleep and it said sleeping on your left side was better for your digestive system. They didn't go into the reason behind it..but it seems to be the case?

I hadn't heard of the mastic gum before, so thanks for sharing info on that.

I hope you get relief soon!

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Just an update on the mastic gum. The pain is gone so I'd say it works. I am going to keep taking it every day for 3 more weeks though to be sure. I took 2 in the morning and 2 at night right before bed. And slept on my left side where the pain was. I figured the mastic gum in my stomach would coat the area and do it's thing. Anyhow it worked for whatever reason. The brand I got is Solaray 500 MG. I am cutting back to one in the morning and 1 at night now. I hope you get relief soon Sarah, just wanted you to know it helped me.

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Just an update on the mastic gum. The pain is gone so I'd say it works. I am going to keep taking it every day for 3 more weeks though to be sure. I took 2 in the morning and 2 at night right before bed. And slept on my left side where the pain was. I figured the mastic gum in my stomach would coat the area and do it's thing. Anyhow it worked for whatever reason. The brand I got is Solaray 500 MG. I am cutting back to one in the morning and 1 at night now. I hope you get relief soon Sarah, just wanted you to know it helped me.

Sarah and GFinDC,

I was just diagnosed with H pylori and food allergies and I have been having many weird symptoms on the top of my gastro symptoms.

Sarah, you said your rib cage is sensitive to touch. I have that and more: my whole body and mostly my upper body is overly sensitive to the touch but it is getting better now. It has been a mystery to me and my doctor thought I was having adrenal fatigue because of my chronic fatigue and other symptoms.

GFinDC, is mastic acid good just for the pain or it will kill the bacteria?

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I was diagnosed with h. pylori a few weeks ago. My naturopathic dr. put me on a supplement called pylorocid with zinc, mastic gum extract, berberine sulfate hydrate, and bismuth citrate. I have been taking it for 2 weeks. From reading some other post it seems like I should be taking an antibiotic to get rid of it although I know she wants to take a natural approach. Has anyone used a supplement like this? I am also have a persisent pain (worse when seated) slightly to the left of my breast bone, along my lower left rib cage. It is painful to the touch. Could this be my stomach causing this pain? and could it be related to the h. pylori or ulcers? Thanks so much!

My daughter was diagnosed with Hpylori 2 1/2 weeks ago & then shortly after that diagnosed with Gluten intolerance (celiac disease) as well. Is there somekind of link between the two? She has been taking 2 antibiotics for 2 weeks & then has to take prilosec for 2 months to heal the stomach. She is done with the antibiotics but still doesnt feel better, it is so frustrating to be diagnosed with a double whammy, dont know what is causing her continued stomach aches (Hpylori or gluten)! Any advice would be welcomed.........Frustrated Mom!!!

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Welcome to the board, bcsamm! I think several, if not many, people here have h. pylori experience. My DD was treated for h.pylori, and she is also treated for celiac. The story is long and complicated. I think there is some relationship between the two, but I don't have any links handy. The untreated celiac gut is susceptible to all sorts of things, as it is constantly injured (assuming the standard cultural diet of daily gluten).

My DD's case was very different (and she never has bellyaches, nor did she have any typical symptoms associated with h.pylori), as she had been treated with a gluten free diet for years when we identified and treated her h.pylori infection. I hope that your DD is feeling well. My DD's h.pylori protocol was similar to the one that you describe, and we did see improvement in her condition upon completion of her treatment. We also needed to address our DDs B12 issues, as she hadn't been properly absorbing B12 for some time (top suspect is our DD's severely injured gut just didn't allow for absorption). We have also had to work on our DD's iron levels.

There is a lot of change in simply adopting a gluten free diet, so your DD has a lot going on right now. I hope that she is feeling better quickly. Our kids have had issues wax and wane, so it hasn't been a really clear cut path. We have found that a whole foods diet prepared at home is the most effective treatment for them (and we had to adopt a gluten free home early in this journey). And we have found it necessary to do everything possible to eliminate the risks of gluten exposure in school.

When all else fails for my other DD with frequent bellyaches (also celiac, but tested negative for h.pylori), I massage her belly. We have also used heating pads. Sometimes we just cannot understand what all is playing into it, so coping with it is all that we can figure out to do. Please let your DD know that there are other kids out here that understand the struggle! My kids always appreciate when I can tell them about other kids that I read about here that have shared in similar struggles with celiac . . . and all of the stuff that seems to come along with it!

Take care and ask all the questions you want. We are happy to help you, as many of us understand how overwhelming and complex this can be.

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      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
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