Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Blood Test Negative But...
0

8 posts in this topic

So i told my doctor I wanted to do a blood test for celiac and I waited 2 weeks for the results.. Came back negitive she told me that doesnt mean I'm not Gluten Intolerant.. She said that I really don't need a biopsy cause it's just gonna prove what I already know.. I can't eat gluten.. So should I get a biopsy and see what's really going on down there? Or not?

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you are not already gluten free you could ask for a referral to a GI if you need a diagnosis for school or other family or yourself to take the diet seriously. You could also ask the doctor for a note for school/college if you are still in them so they will accomodate your needs.

It would be a good idea to post your test results as sometimes not all the ones that are needed are done or a doctor will consider a low positive to be negative. If you are in the US you have a legal right to all copies of tests and it is a good idea to get them.

0

Share this post


Link to post
Share on other sites

It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

0

Share this post


Link to post
Share on other sites

Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

0

Share this post


Link to post
Share on other sites

It's not for sure that a biopsy would prove what you already know. It could be positive or negative. The benefit of doing the biopsy would be to find the extent of celiac damage if there is some, or to confirm negative for celiac if there isn't. Either way it sounds like you'll want to try the gluten free diet for a couple months to see if it helps.

Did you get a copy of your test results? What was run?

I have a new post on the blog listed on my profile called "celiac testing myth #4 doctor knows best" that lays out all the typical celiac testing and why you'd want it.

I cant seem to find that blog of yours! =[

0

Share this post


Link to post
Share on other sites




Here are the test results

H Pylori IGM Neg

TTG IGG....<3

TTG IGA....<3

NA+...142

K...4.2

CL-...109 High

CO2...22 Low

Glucose...72

Bun...11

Creat...0.67

CA...9.3

Protein total...7.8

albumin...4.1

alk phos...76

ast...19

alt...12

TBILI...0.5

Anion Gap...11

GFR...>60

Pretty much its been 3-4 weeks since ive ate gluten and im feeling better until ive been "glutened". Ive already got a note from my doctor saying im Gluten Intolerant for my work and i dont need one for my school because i take classes online! lol

I only see two celiac tests on your panel, two versions of the ttg. They should have done a serum IgA at least, anti-gliadin (which should be the deamidated version) and anti-endomysial. You should have further testing.

Although, unless you need a diagnosis for school or other purposes (as mentioned by another poster) you don't need a doctor's order to eat gluten-free. Just doing the diet will tell you a lot.

1

Share this post


Link to post
Share on other sites

Beachbirdie is right, you don't have all the necessary tests there. You can't even know the validity of any test involving IgA unless your Total IgA has been tested. I hope you were able to find my blog post - all the tests and descriptions are listed there. I'm not allowed to link to it which is why I didn't give you the link.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,106
    • Total Posts
      920,397
  • Topics

  • Posts

    • Hello! My daughter was diagnosed with Celiac non-biopsied about 6 months ago. When I recently went for my physical, I mentioned to my PCP that my daughter was Celiac, she said that I need to be tested. I took a blood test that day and here are the results: Anti-Gliadin IgA                     Gliadin Ab(s) IgA - 18.23U/ml    -      Standard Range: 0-15 U/ml   - Result: Positive My PCP told me to start a gluten-free diet right away and she will re-test again in 6 months. I was expecting a full panel, like my daughter had, not sure if it is necessary or not. We elected not to put my daughter through a biopsy, as she was just recovering from a ruptured appendix and her GI Dr. agreed that he numbers were so high that she was fairly certain w/o biopsy that she was Celiac. My DD feels so much better. Do you think this test is enough for me to start the gluten-free diet? I actually have cut way back on gluten, as I somewhat eat what my daughter eats. So my test may have reflected that decrease. Should I ask for more testing? Is this test sufficient? Thanks for any assistance!!  
    • That's hard.  You can try the "I come to be social,"  "I have serious food allergies", "I only come to drink"...... whatever might feel comfortable.  I know celiac is not an allergy but more people understand if you say celiac is like a severe food allergy.  Do go, have fun.  Don't let food stop you.  Yes, people give looks but honestly they get to know that this is just you and hopefully they will come to accept it. 
    • I thought it had all died down too so I started buying them for my celiac daughter. 4 boxes were fine. The 5th made her very sick for over a week.  Beware!
    • Agree!  That is a difficult spot to be in.  I have a friend who insists she can cook for me.  I have tried the "I come for the company, not the food", "I am celiac.." etc.  I finally gave up and said "I love you but no!".  It's very hard.  Very hard!  But stay strong.
    • I never ate at the fair but always "rewarded" myself with a nice glass of wine at the wine and beer patio!   The corn on the cob might be ok but I have to agree with the poster who mentioned that stuff at the fair probably isn't terribly clean.  Stuff your purse with snacks and enjoy.  My partner would feel bad about eating in front of my and I would just - I don't feel bad so that's your problem, not mine! lol 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,144
    • Most Online
      1,763

    Newest Member
    GlutenFreeGreg
    Joined