Help Me Please!
Posted 24 December 2011 - 10:44 PM
Over 2 years ago I started having diahreah followed by constipation. It would trade off with each other and just be a rare occasion. Every Doctor told me it was because I ate poorly and was overweight. Well I got pregnant with my son, and then they kept telling me it was symptoms of pregnancy. I had my son and guess what? you got it! It was still happening. It went from being a few times a month to weekly, to daily diahreah, and now several times a day. I can't even leave my house. Finally my husband had enough and I went to a GI doctor he did a colonoscopy and found nothing wrong, so he basically said oh you have IBS take 8 immodium a day, fiber and a probiotic, you will have this forever and just live your life as normal as possible. I am 27 have 2 kids and a family, a job, apparently I am suppossed to do most of that from the toilet or my bed (end sarcasm). Well after my colonoscopy, I bought a book for IBS and sat and read pages and pages on IBS so I started following this "IBS Diet" , considering I had just been cleaned out and everything appeared healthy I could finally get my life back. I still was feeling terrible all week with eating these "IBS SAFE" Foods and felt really discouraged. Yesterday I had a ton to do outside of the house so I was determined not to eat anything until I got home and was near the bathroom. I ate a 4 inch sub from subway, within 30 min, I got a 101 fever and was nauseated, I laid down in bed fell asleep and was woken by the worst pains and diahreahh, my eyes were swullen and itchy. Everytime I ate anything this week that contained gluten I got a fever.
My other symptoms over the past 2 years have been, constipation, diahreahh, swollen eyes, hair loss (they also told em its my hormones form my son eventhough hes 2), unexplained fevers, acne ( ihave never had it before), feeling full even if I barely ate, so full i felt like my stomach was going to expload, gassy, bloated, pains and cramping,
Do you think gluten could be the culprit??? I ate gluten free today and did not get any fevers today, at all. This will be the first time in a very long time this has happened.
Posted 24 December 2011 - 11:27 PM
You've come to the right place to find out how to change your life for a healthier you. Find out which foods contain gluten and try a gluten-free diet for awhile. If your symptoms resolve, then you can seriously begin to make changes in your kitchen to ensure that you don't get cross-contamination. In the beginning, it's usually easier and less expensive to eat natural foods that don't contain gluten. Natural foods have the vitamin/mineral content that you may be lacking, and gluten-free substitutes might not agree with you in the beginning.
Good luck...and please keep us apprised of your progress.
Posted 25 December 2011 - 04:04 AM
Posted 25 December 2011 - 09:43 AM
Most Dr.s don't think to check for it.
It sure sounds like gluten might be your problem?
Posted 25 December 2011 - 10:58 AM
The bottom line however is to just go off the gluten completely and see if you do better or not. Obviously nothing else is working. Tests don't always show if one is severely gluten intolerant. Celiac has been given a narrow definition that does not fit everyone that needs to be off gluten. Dr. Vicky Petersen is a good U-tube resource by the way.
Going off gluten means going off all trace gluten too, even your lipsticks and chapsticks and shampoo and body lotions often have gluten in them. Check out the list of hidden gluten ingredients here on celiac.com. Avoid using wooden chopping boards, wooden utensils, wooden bowls as well as fine mesh metal collanders etc. that have been used with gluten, old toasters etc. Your oven is also suspect assuming you have done any glutenous baking. You can put it and any iron pots in it for an hour on the self cleaning cycle to get rid of the gluten that is baked in. Or use a new gluten free toaster oven. Basically you have to clean you kitchen and at least have a safe gluten free area for your stuff that you use.
What many do here is to just eat things like chicken and brown rice and veggies at first--all cooked from scratch to see how they do, as well as to heal since so many foods have trace amounts of gluten in them--often even things that claim to be gluten free. Be careful too of spices. Its best to buy them whole--like fresh ginger -- until you find a truly gluten free source.
Good luck! Even though I don't wish gluten intolerance on anyone, its better to find the hidden cause of all your suffering so it can stop and you can begin to live your life again!
Posted 25 December 2011 - 11:55 AM
I would most certainly request the full panel of blood testing. Some doctors hesitate to order this panel or even think of it. My sisters' gastro only gave in and ordered it for her because I am celiac. He told her it was doubtfull she had it too. Crazy!
I was told after my colonoscopy that I had IBS. I went on the diet for it and my pain was worse, so I started eating salads. I felt better and told the doctor, only then did she order the panel for Celiac.
Best wishes to you! Please keep us updated!!
George Washington Carver
Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10
Posted 26 December 2011 - 06:37 AM
Posted 26 December 2011 - 09:01 AM
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 26 December 2011 - 03:04 PM
Posted 26 December 2011 - 04:28 PM
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
Posted 26 December 2011 - 07:26 PM
Hi and welcome! It sounds like you've had a rough couple of years, but maybe you're finally on the right track to feeling better. If you've been eating gluten regularly for the past few months call your dr and get a full celiac panel done ASAP! On the blog linked from my profile I have a post called "make the most of your doctor visit" and a series on celiac testing myths including "doctor knows best" that outlines what tests to get. I'm hoping to get another one up today on false negatives as well. I hope you can get some good test results soon!
I had a celiac test ran back in march and the doctor said it was negative, I am really disappointed in my GI who did not go ahead and do an endoscopy at the same time as my colonoscopy and think to test me for celiac. I really feel like my doctors have failed me recently, and am going to go on the hunt for a new team.
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