Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Could It Be?
0

63 posts in this topic

Hon, I hope you keep epipens around?

Yes, I do. And a puffer and pills.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hon, I hope you keep epipens around?

Yes, I do. And a puffer and pills.

I had to use a puffer for a while myself and my poor brother has terrible asthma, so I know how frightening it can be to gasp for breath.

Are you feeling better now, by the way?? Hope so.

0

Share this post


Link to post
Share on other sites

I had to use a puffer for a while myself and my poor brother has terrible asthma, so I know how frightening it can be to gasp for breath.

Are you feeling better now, by the way?? Hope so.

Yes I am. So far I am having a good day. The sun is shining and everything is white from the snow, it's so pretty.

I think you are close so must be about the same there?

0

Share this post


Link to post
Share on other sites

Yes I am. So far I am having a good day. The sun is shining and everything is white from the snow, it's so pretty.

I think you are close so must be about the same there?

No snow here! None. Zip. Nada. weird....After last year, this is a miracle!! :lol:

So glad you are feeling better--maybe your de-crumbing efforts have helped knock down the exposure :)

Stay well!!!

0

Share this post


Link to post
Share on other sites

AHA!

Now that you have added WHEAT allergy and chemical sensitivity to your signature line---some of the advice regarding "gut healing" and celiac CC issues may have seemed inappropriate/unhelpful to you. No wonder you had to keep clarifying things for us! :) Now we get it!

So you are not a celiac, then? But you do have some GI problems?

I hope you are feeling better since the last posting!

Cheers,

IH

0

Share this post


Link to post
Share on other sites




AHA!

Now that you have added WHEAT allergy and chemical sensitivity to your signature line---some of the advice regarding "gut healing" and celiac CC issues may have seemed inappropriate/unhelpful to you. No wonder you had to keep clarifying things for us! :) Now we get it!

So you are not a celiac, then? But you do have some GI problems?

I hope you are feeling better since the last posting!

Cheers,

IH

Yes, I thought it would help if I put that info in the signature.

I have been thinking about allergy and celiac this week, thinking to post some questions when I got them sorted in my head.

My first Doc appt. she wanted me to get tested for Celiac. I said I don't have that, it's an allergy. Besides I would rather put a gun to my head than eat wheat again. :(

Now as I read this board I can look back and see some things that make me think I may be Celiac too.

I have had more gut issues since going gluten-free and wondered if it was just the adjustment of diet or a new major awareness of how I react and feel.

I also look back and realize every symptom I had I put down to aging or stress, short term memory loss, pot belly, itchy head etc.

I also have had migraines since childhood and what my family called sensitivities. I could only use Dove soap, others would dry my skin and cause itch. Lots of little things like that.

I am brain foggy at the moment so I want to take some notes and then I can come back with some questions.

Generally I am feeling better but I did get a reaction at the grocery store the other day, not bad though.

0

Share this post


Link to post
Share on other sites

Besides I would rather put a gun to my head than eat wheat again. :(

Now as I read this board I can look back and see some things that make me think I may be Celiac too.

I have had more gut issues since going gluten-free and wondered if it was just the adjustment of diet or a new major awareness of how I react and feel.

I also look back and realize every symptom I had I put down to aging or stress, short term memory loss, pot belly, itchy head etc.

I also have had migraines since childhood and what my family called sensitivities. I could only use Dove soap, others would dry my skin and cause itch. Lots of little things like that.

I am brain foggy at the moment so I want to take some notes and then I can come back with some questions.

Generally I am feeling better but I did get a reaction at the grocery store the other day, not bad though.

Well, those are some celiac/gluten symptoms for sure.

You may need to avoid rye and barley and all gluten derivatives too. Not just wheat.

Just a thought. :)

0

Share this post


Link to post
Share on other sites

Well, those are some celiac/gluten symptoms for sure.

You may need to avoid rye and barley and all gluten derivatives too. Not just wheat.

Just a thought. :)

Oh I have. I am fully gluten-free. It's is too hard to just avoid wheat. I have not even had oats since the beginning, can't find any gluten-free oats yet. Corn meal either so I am just using gluten-free corn flour for tortillas .

I have started a list and will keep adding as I remember things and come up with questions.

Thanks IH.

0

Share this post


Link to post
Share on other sites

Oh I have. I am fully gluten-free. It's is too hard to just avoid wheat. I have not even had oats since the beginning, can't find any gluten-free oats yet. Corn meal either so I am just using gluten-free corn flour for tortillas .

I have started a list and will keep adding as I remember things and come up with questions.

Thanks IH.

Glutenfreeda makes gluten-free oats.

also,

http://www.glutenfreeoats.com/

Some will disagree with this suggestion( because they say BRM makes them react) but Bob's Red Mill makes gluten-free Oats and Corn meal.

Nutsonline has gluten-free corn grits. Both have gluten-free dedicated facilities and I have no issues with them.

Avoid buying them from bulk bins like at health food stores; that's not a good idea. Too much CC.

0

Share this post


Link to post
Share on other sites

Glutenfreeda makes gluten-free oats.

also,

http://www.glutenfreeoats.com/

Some will disagree with this suggestion( because they say BRM makes them react) but Bob's Red Mill makes gluten-free Oats and Corn meal.

Nutsonline has gluten-free corn grits. Both have gluten-free dedicated facilities and I have no issues with them.

Avoid buying them from bulk bins like at health food stores; that's not a good idea. Too much CC.

Thanks for this info, I will check it out.

0

Share this post


Link to post
Share on other sites

Dont they inject the Butterball turkeys with some kind of oil to make them juicy? Maybe whatever is in the oil mixture got you.

Yes, everyone needs to read, read and read some more. Call or email companies. I think Butterball was one that is not gluten free.

0

Share this post


Link to post
Share on other sites

Yes, everyone needs to read, read and read some more. Call or email companies. I think Butterball was one that is not gluten free.

Butterball is gluten-free. You can check the website. We have had more recent discussions about turkey.

0

Share this post


Link to post
Share on other sites

Oh, late to the conversation, but figured I'd add in what info. I have on sulfites, in case it helps.

Salt can be bleached with sulfites and cause a problem. Most processed corn ingredients, like citric acid or cornstarch, is sulfited (it's soaked in a sulfited solution before processing). Grapes are typically no good due to many of the additives used during farming in grapes specifically. Some folks I know have some trouble with olives, as well, and some olive oils. Our water supply can have sulfites added, as well as bottled water, in low enough amounts that it doesn't require a label, but might be an issue if you react to lower levels. Dasani water and Perrier water are a problem for some sulfite sensitive folks. Crystal Geyser seems to be less of one.

Some sulfite sensitive folks also have trouble with foods that are naturally higher in sulfur (I believe it's due to how our bodies change this to a usable form, but I'm still learning about it, honestly.).

Foods that are naturally high in sulfur, with no additives involved, are pork, eggs, the brassica family (cabbage, radishes, mustard greens, and so on), and the allium family (onions, garlic, leeks). Fish and shellfish can be an issue.

Some in the food families are worse than others, so not all will make a person with this problem react, necessarily. It's also quantity dependent.

For folks that have this problem, the fumes from cooking foods high in sulfur can cause a reaction - inhaled or ingested, it doesn't matter, really. Car exhaust is sulfite dioxide and so if you inhale that a lot it will tend to make things worse, too, if you are very sensitive, or have had a lot of sulfites that day.

So that ham, for example, even if gluten free and without added sulfites, could still cause a problem, potentially.

There's a yahoo group called sulfitesnomore for folks who have this issue with might be of some use for you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined