Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Burning Skin
0

17 posts in this topic

Hi,

Ive had burning on my whole back and my arms and also my shoulders. Do you think this can be from celiac and or gluten.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, Celiac can cause burning sensations on the skin. Other things can too. If it is the skin form of Celiac called Dermatitis Herpetiformis one often has the burning sensation before the rash breaks out in the area that is affected. Have you ever gotten a rash? Or hive-like reaction? or watery blisters? or mosquito bite like lesions? If so you might consider DH. But I do know of one Celiac who gets the burning skin sensations without any rash. Hopefully she will post.

0

Share this post


Link to post
Share on other sites

Yes, Celiac can cause burning sensations on the skin. Other things can too. If it is the skin form of Celiac called Dermatitis Herpetiformis one often has the burning sensation before the rash breaks out in the area that is affected. Have you ever gotten a rash? Or hive-like reaction? or watery blisters? or mosquito bite like lesions? If so you might consider DH. But I do know of one Celiac who gets the burning skin sensations without any rash. Hopefully she will post.

I get the burning skin sensation without any visible rashes. Is this rare or do you think it can be caused from anxiety or something else?

0

Share this post


Link to post
Share on other sites

It's also possible that it's a reaction to something else. Anything from your bath soap / shampoo or conditioner to something you ate, or additives in something you ate. I'd suspect there would be more than 1 symptom if it were celiac. You might want to look at anything new in your environment or something you ate up to 24-48 hours before the burning sensation. I know for me, I get itchy but not much of a burning sensation with DH.

0

Share this post


Link to post
Share on other sites

Hi,

Ive had burning on my whole back and my arms and also my shoulders. Do you think this can be from celiac and or gluten.

I've had burning skin too, but no rash. Mine is on my left calf and feels as if I burned my calf or scraped it. There isn't anything to see, just the burning. Not sure if it's related to peripheral neuropathy.

0

Share this post


Link to post
Share on other sites




I used to get a burning sensation on my forearm, and as others have said, no visible symptoms. I think it was one of my many symptoms of celiac, although it never seemed to happen if I was accidentally glutened. I can't remember the last time it occurred, so I feel that I have finally healed from that and other issues I was dealing with in the beginning.

0

Share this post


Link to post
Share on other sites

. But I do know of one Celiac who gets the burning skin sensations without any rash. Hopefully she will post.

well, I guess --since Eatmeat4good and I are friends---that would be me!

I suffered horrible burning sensations from my scalp to my toes. EVERYWHERE.

I felt like I was on fire.

It is not caused by anxiety--it is a histamine response from celiac. My new GI doc tells me anything can happen with celiac.

No one could tell me what it was. (neurologists, dermatologists, allergists, etc) I was also red (like I had a sunburn ) and I had a burning face. (I was tested repeatedly, it was not lupus,MS etc.) I had several neurological issues as a result of gluten, but they are resolving.

It was this burning that "got my attention" back in Feb. 2008 and the first indicator that something was going very, very wrong inside me. I had other health problems and gastro symptoms prior to that but "lived with them"...Dozens of symptoms developed after that, and it took nearly 3 years to be DXed. I figured it out myself.

The burning has tamped down a bit, but it is extremely uncomfortable and is worse if I am accidentally glutened. I also had small red blistery sores on my scalp and itchy skin, my scalp peeled and was bright red, but that has all diminished now. The doctor said it is not DH, but almost like a pre-cursor to it.

The burning is still with me, but it is less --and others on here have told me that it disappeared eventually---but it took some time. I remain hopeful that it will go away as my gut heals and the celiac goes into remission. :)

0

Share this post


Link to post
Share on other sites

I have had burning sensations now for about 2 years. Originally started on the bottoms of both feet. Then that stops and the top of both my feet as well as both my shins will start burning. As that stops, I get the same sensations on both my thighs, then when that ends, on both my forearms, then later on the front and back of my trunk. The first time, this cycle ended with a rash on my back as well as my stomach and some on chest. But as I have again cycled through this same scenario, it ends with little or no rash. My sensitivity to outdoor heat has changed for the worst as of late as I'll get lethargic and feeling ill at temps in the 90s even with me being at rest in the shade on the hot day! Been to Rheumatologist to test for all that he knows but with no negative results. Thyroid tests well. Oh well, am getting a bit used to the heat sensations by now.

0

Share this post


Link to post
Share on other sites

I have had burning sensations now for about 2 years. Originally started on the bottoms of both feet. Then that stops and the top of both my feet as well as both my shins will start burning. As that stops, I get the same sensations on both my thighs, then when that ends, on both my forearms, then later on the front and back of my trunk. The first time, this cycle ended with a rash on my back as well as my stomach and some on chest. But as I have again cycled through this same scenario, it ends with little or no rash. My sensitivity to outdoor heat has changed for the worst as of late as I'll get lethargic and feeling ill at temps in the 90s even with me being at rest in the shade on the hot day! Been to Rheumatologist to test for all that he knows but with no negative results. Thyroid tests well. Oh well, am getting a bit used to the heat sensations by now.

Hi jobwabe, this is a pretty old thread but since you are relatively new I thought I'd respond to your post.

As suggested earlier this burning is very (perhaps even universal) common in us that suffer from Dermatitis Herpetiformis (DH). You might want to go to the DH thread. You'll get lots of useful advice there. We also tend to be super sensitive to any eaten or topical gluten so we also tend to keep an eye on the 'Super Sensitive' threads.

Welcome.. I hope you get some helpful advice and support here.

0

Share this post


Link to post
Share on other sites

I am latex(natural rubber) allergic and spandex burns my skin. No jeans, bras etc. with spandex for me anymore. I have to search out 100% cotton with no elastic straps, bands etc.

0

Share this post


Link to post
Share on other sites

A week after i stopped eating gluten, I ate sweet potato fries and my arms face and head were burning and itchy and my eyes started watering. I took benedryl and the itching stopped. I looked into DH, I do have a rash on my back but it does not have blisters so I'm not sure if it's that. I have had this reaction 2 more times (now my tongue swells too) The only link I can find is eating gluten without knowing (happens alot after salad, so not using dressing anymore)

0

Share this post


Link to post
Share on other sites

I found that using baby powder soothes the skin.

Beware not to use the so called cooling powder or Prickly Heat though, as that will drive you insane.

Ben

(Still trying to figure out how to insert my signature text)

0

Share this post


Link to post
Share on other sites

A week after i stopped eating gluten, I ate sweet potato fries and my arms face and head were burning and itchy and my eyes started watering. I took benedryl and the itching stopped. I looked into DH, I do have a rash on my back but it does not have blisters so I'm not sure if it's that. I have had this reaction 2 more times (now my tongue swells too) The only link I can find is eating gluten without knowing (happens alot after salad, so not using dressing anymore)

You should check the oils in the dressing and fries and see if they have something in common. I react to soy and sunflower oils(allergy).

0

Share this post


Link to post
Share on other sites

A week after i stopped eating gluten, I ate sweet potato fries and my arms face and head were burning and itchy and my eyes started watering. I took benedryl and the itching stopped. I looked into DH, I do have a rash on my back but it does not have blisters so I'm not sure if it's that. I have had this reaction 2 more times (now my tongue swells too) The only link I can find is eating gluten without knowing (happens alot after salad, so not using dressing anymore)

Sounds like classic allergy reactions. Tongue swelling is a bit scary. If you haven't already you MUST get allergy testing done. Tongue swelling is often a pre-cursor to restricted throat and death.. may sound a bit dramatic but the reality is it can kill. I have what appears to be intolerance and wheat allergy (but my allergy reaction is much milder than yours). The intolerance tends to maim and kill in the medium-long term but your allergy reaction to something you need to get sorted out ASAP.

0

Share this post


Link to post
Share on other sites

...Tongue swelling is a bit scary...

To take out some of the drama: Tongue swelling is also a very common reaction to MSG.

0

Share this post


Link to post
Share on other sites

To take out some of the drama: Tongue swelling is also a very common reaction to MSG.

Not too much drama I think. No need to panic, certainly, be calm and be wise and follow up with an allergist and testing. What was described are classic allergy reaction and the poster reported multiple symptoms and reaction multiple times. Anaphylaxis can start in ways we don't generally hear about and would not expect. Allergies can progress. I have an epi-pen. Never had to use it so far. Scares me but I am glad to have it since my allergies have progressed in ways I didn't expect. Things can turn and suprize us but our bodies often give us some warning signs. I don't mind "wasting" the $35 copay the last 2 years.

0

Share this post


Link to post
Share on other sites

I did have a food allergy panel run and am waiting for the results. The soy oil is a good possibility since It happened with salad as well, I will check my salad dressings. I eat tons of sunflower seeds watching my kids play sports, will have to keep an eye on that as well. Thanks for the help =)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,656
    • Total Posts
      918,488
  • Topics

  • Posts

    • Might have Celiac.. so many symptoms and pain!
      It is too bad the doctor didn't advise you to take the blood tests before going gluten free.  There is a chance they could still be positive.....  But a good chance that being gluten-free for weeks will make them negative.   I Have not seen any medical evidence that Celiac disease is caused  by any other disease. It is a genetic auto immune disease.     Perhaps you should read some info from reliable source s like the Univ of Chicago Celiac Center?   http://www.cureceliacdisease.org/faq/how-much-gluten-should-be-consumed-prior-to-being-screened-for-celiac-disease/
    • Might have Celiac.. so many symptoms and pain!
      I have a requisition for blood tests, but there is no way that I am going back on gluten. The cramps and pain is horrendous. I've only been off for a couple weeks, and I'm also doing the IgG tests, not really sure what those will show.  I have suffered with hypoglycemia in the past, and when I wasn't overweight and always dieting, I guess celiac maybe didn't rear it's ugly head... until after I went through something difficult in my life and started eating more carbs and then gained weight. I was never officially diagnosed with diabetes, but have been in the "pre-diabetes' range for a while. And I read that Celiac is either caused by PCOS or PCOS causes Celiac... not sure...  
    • Might have Celiac.. so many symptoms and pain!
      Welcome Jane! If you seriously suspect celiac disease, you should get tested (blood test), but that means you must be eating gluten.  Even being gluten-free for as little as a few weeks can impact your tests results.  Here's more information: http://www.cureceliacdisease.org/screening/ In the meantime, it sounds like your blood sugar is wonky.  How often do you check your blood sugar?  Do you have a meter?   This is a good site that you might find helpful with your diabetes: http://www.phlaunt.com/diabetes/ I hope you feel better soon! 
    • Might have Celiac.. so many symptoms and pain!
      Hello. This is my first post. I am at my wits end at this point. I've been experiencing some pretty crazy symptoms and although I don't have a diagnosis yet, I suspect I may have Celiac. A few months ago I threw up after eating some pasta, I felt like I was going to pass out actually and it felt like I was going to die! I thought it was food poisoning..  Then I had some VERY BAD fatigue... I was driving once and I literally wanted to get out of the car and lie down on the pavement! It happened again about 3 weeks ago, I was in the store and fatigue hit me like a ton of bricks.. I had to leave!  I have been trying to lose weight so I stopped eating all wheat, bread, etc.... well what happened truly scared me. I take Metformin for PCOS/pre-diabetes by the way. Anyway, I woke up had something to eat and an hour later felt like I was going to collapse. My heart was beating so fast, thought I was having a heart attack! I went to the doctor and I nearly passed out again in the office, they gave me some sugar to bring up my blood sugar and then I felt okay. My neck feels swollen, and like there is something in my throat...  So I've been off gluten/wheat/bread/pasta..etc. for about 2 weeks. At first I felt kind of okay, hmmm... but now I am entering week 3 and I feel like I'm dying! The hunger is still bad... although not as horrendous as before stopping gluten... but the hunger just doesn't want to calm down. I eat and less than an hour later I'm hungry again.  Can someone provide some advice, thoughts, anything at this point that can help me figure out what to do next... I'm losing my mind and I feel so depressed    
    • Milling vs buying gluten-free flour
      Okay then you have a clean grain mill & can go to town. I have only done rice in mine because I found that either my husband or myself don't really car for the consistency or flavors imparted by things like coconut flour, nut flours, pea or bean flours. Mostly the hubs is the big stick in the wheel. I like nut flours but he doesn't. For rice flours, I would say it's cheaper to mill them but it's also messier & more time consuming. I understand my NutriMill is far less messy than most millers (according to reviews) but it's still messy. In fact, I take it outside when I'm going to use it & let the mess be out there until all the grinding is done. So for me, it's a trade off & I would say about even steven.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,747
    • Most Online
      1,763

    Newest Member
    Jen5632
    Joined