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How Much Gluten To Eat Before Blood Test?


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3 replies to this topic

#1 Mary07

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Posted 28 December 2011 - 06:23 AM

I went to the doctor a few weeks ago because I was getting very sick. She asked me questions and said to try a gluten free diet for 2 weeks. I did and felt amazing. I never knew how normal felt until I stopped eating gluten. I must have been having stomach aches my whole life. Anyways I called her after the 2 weeks and asked her what to do now. She said to get a test called gluten sensitivity evaluation blood test and to get an accurate test I need to eat the equivalence of 4-6 pieces of bread a day for 4 weeks. Is this true? I was only off of it for 2 weeks! and what does that even mean? Just eat 4 pieces of bread a day? Any suggestions?
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#2 domesticactivist

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Posted 28 December 2011 - 09:35 AM

Yes you must be eating lots of gluten. The number I get from 4 slices of average bread is nearly 20 grams of gluten a day. Usually the advice is for three months. Only two weeks off it, though, the one month may be ok. I hate how many drs have people go gluten free before deciding to test. It's standard but puts people through so much pain and a longer wait to less accurate test results. Grrrr.
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Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

#3 domesticactivist

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Posted 28 December 2011 - 09:36 AM

Find out how much gluten is in your bread, pasta, cream of wheat, etc by looking at the protein content per serving on te label.
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Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

#4 ravenwoodglass

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Posted 28 December 2011 - 01:14 PM

Just eat a regular diet. Most folks on a normal diet eat at least the 4 slice of bread worth of gluten in a day and then some. Have a gluten cereal for breakfast, a sandwich or sub or a soup with noodles or barley for lunch and something with gluten for dinner and snacks. I wouldn't worry about 'adding up the protein count' since many foods have more than one protein source in them and that would be a real pain IMHO.
If you start to feel very ill from the challenge do contact your doctor. Reacting badly to a challenge after we have been gluten-free for even a short time is a valid part of the diagnostic process and some of us will react very violently to the challenge even if we have only been off gluten a short time.
Keep in mind that false negatives on testing is not uncommon even on a full gluten diet. After your testing is done, including endo if you are having one go back to the diet if it helps even if the tests should be negative.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)


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