What Doctors (Don't) Know
Posted 29 December 2011 - 03:47 AM
Posted 29 December 2011 - 04:39 AM
Symptoms started in 2007, but no link to celiac disease was found until 2009. I learned of celiac disease through the internet, my doctor never recognized it. She put me on a diet before tests were done, so the initial tests failed. My GI advised me to do a gluten provocation, which had to be stopped too soon to take a reliable biopsy. Based on symptoms such as vitamin deficiencies, GI problems and osteopenia my diagnosis now is: glutenintolerant, suspected celiac disease. This diagnosis was in march 2010, and I've been so much better ever since.
Posted 29 December 2011 - 05:13 AM
celiac disease is a relatively new disease, it was discovered shortly after the second world war. Before the nineties it was considered a rare disease and doctors didn't learn much about it. It has become more well-known since the nineties, so the knowledge about it is slowly increasing. It's still poor with most doctors though, so it can be useful to drop off a leaflet with information about celiac disease. The Dutch coeliac association offers these leaflets to patients to show to their doctors.
first identified in the 1' century AD.
Posted 30 December 2011 - 05:45 AM
It's even worse if you are gluten intolerant and not celiac - it's only been a little over two years that the EXPERTS acknowledged that this condition is genuine...
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