Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What Doctors (Don't) Know


Duhlina

Recommended Posts

Duhlina Apprentice

I have a friend who is a doctor. He is a primary care doctor - I'd guess he's about 55-60 years old, he's not a GI specialist or anything like that. I was joking with him yesterday that the dog is happy that the treats I gave him for Christmas have wheat in them so he doesn't have to share them with me. My friend read the bag and said "Oh, they are made with barley flour so you can have them" :huh: Seriously?? He is a DOCTOR and he has no clue about Celiac? NONE?! I was really shocked when I heard him say that. It just really hit home that most doctors really have no clue what Celiac is. <sigh>

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ellie84 Apprentice

celiac disease is a relatively new disease, it was discovered shortly after the second world war. Before the nineties it was considered a rare disease and doctors didn't learn much about it. It has become more well-known since the nineties, so the knowledge about it is slowly increasing. It's still poor with most doctors though, so it can be useful to drop off a leaflet with information about celiac disease. The Dutch coeliac association offers these leaflets to patients to show to their doctors.

Link to comment
Share on other sites
frieze Community Regular

celiac disease is a relatively new disease, it was discovered shortly after the second world war. Before the nineties it was considered a rare disease and doctors didn't learn much about it. It has become more well-known since the nineties, so the knowledge about it is slowly increasing. It's still poor with most doctors though, so it can be useful to drop off a leaflet with information about celiac disease. The Dutch coeliac association offers these leaflets to patients to show to their doctors.

Open Original Shared Link

first identified in the 1' century AD.

Link to comment
Share on other sites
Aly1 Contributor

Although celiac has been a known disease for quite a long time, it was considered a rare one until relatively recently. I think at this point in time patients have to read read read and educate themselves about the condition - we are not at the point where patients can just rely on their docs for guidance like they might with something like diabetes.

It's even worse if you are gluten intolerant and not celiac - it's only been a little over two years that the EXPERTS acknowledged that this condition is genuine...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,079
    • Most Online (within 30 mins)
      7,748

    Martyg24
    Newest Member
    Martyg24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest source at any given time. I take it you are a pretty sensitive celiac.
    • Tanner L
      The regular cheddar and sour cream Ruffles have yeast extract, which is probably the source of gluten.  Pinpointing the exact cause of gluten exposure is always tricky, but I've come to learn my initial reaction to gluten compared to the ongoing symptoms that will occur days, weeks, and sometimes months later.  
    • plumbago
      Yes, that's probably best. (Honestly, that is an extraordinarily high number, I've never seen anything like that. I repeated my blood tests (not taken while pregnant BTW); before giving up cake, pizza, and beer, I wanted to know for sure! You don't wanna mess around with anything while pregnant. Congratulations and best of luck!
    • trents
      Here are the ingredients listed for the regular sour cream and cheddar Ruffles: Potatoes, Vegetable Oil (Canola, Corn, Soybean, and/or Sunflower Oil), Maltodextrin (Made from Corn), Salt, Whey, Cheddar Cheese (Milk, Cheese Cultures, Salt, Enzymes), Onion Powder, Monosodium Glutamate, Natural and Artificial Flavors, Buttermilk, Sour Cream (Cultured Cream, Skim Milk), Lactose, Butter (Cream, Salt), Sodium Caseinate, Yeast Extract, Citric Acid, Skim Milk, Blue Cheese (Milk, Cheese Cultures, Salt, Enzymes), Lactic Acid, Garlic Powder, Artificial Color (Yellow 6, Yellow 5), Whey Protein Isolate, and Milk Protein Concentrate. CONTAINS MILK INGREDIENTS. Here are the ingredients listed for the baked ones: INGREDIENTS: DRIED POTATOES, CORN STARCH, CORN OIL, SUGAR, MALTODEXTRIN (MADE FROM CORN), SALT, SOY LECITHIN, DEXTROSE, WHEY, WHEY PROTEIN CONCENTRATE, ONION POWDER, CHEDDAR CHEESE (MILK, CHEESE CULTURES, SALT, ENZYMES), MONOSODIUM GLUTAMATE, BLUE CHEESE (MILK, CHEESE CULTURES, SALT, ENZYMES), CITRIC ACID, ARTIFICIAL COLOR (YELLOW 6 LAKE, YELLOW 5 LAKE, YELLOW 5, YELLOW 6), SKIM MILK, NATURAL AND ARTIFICIAL FLAVORS, GARLIC POWDER, LACTIC ACID, DISODIUM INOSINATE, AND DISODIUM GUANYLATE. CONTAINS MILK AND SOY INGREDIENTS   They look a lot the same except for the baked product contains soy. What do you suppose is the hidden source of gluten in the regular Ruffles that is not found in the baked ones? Could you be mistaken in attributing your reaction to the Ruffles? Could it have been from gluten in something else you ate around the same time or even a non-gluten tummy event?
    • Katiec123
      @plumbago on my blood tests I got 4500 and normal should be between 25-30 but they wanted me to continue eating gluten until a endoscopy was done and also biopsies taken. I’ve took it upon myself to cut gluten out today based on the research I’ve done about it during pregnancy 
×
×
  • Create New...