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My Boy Went On The Radio About Celiac

Started by domesticactivist, Dec 29 2011 07:40 PM

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10 replies to this topic

#1 domesticactivist

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Posted 29 December 2011 - 07:40 PM

My son has been part of our local public access radio station's youth collective for a couple years now. Every month, the kids pick a theme and do a show. This month, the theme was "The Letter C." My son decided to do his piece on celiac disease and cross contamination. He wrote it up and recorded it himself

http://kboo.fm/node/32879

This was a big deal, as no one at the youth collective except one friend knew that he had celiac disease. He's sat there and watched them all eat snacks he can't have every week all year and not said anything. In fact, the night he decided to do this piece, there was even a surprise pizza party half way through the meeting. (The group facilitator went and found him some clementine oranges for him when she realized of course the pizza wouldn't be ok.)

Anyway, I'm proud of him.

Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

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#2 kareng

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Posted 29 December 2011 - 07:47 PM

Oh! My gosh! That was so good! Wish I could have seen him!

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"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White

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#3 maximoo

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Posted 29 December 2011 - 09:43 PM

Awesome job!

#4 AVR1962

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Posted 30 December 2011 - 12:16 AM

That is absolutely awesome!!!

Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#5 sa1937

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Posted 30 December 2011 - 06:13 AM

You have every right to be very proud of him! Marvelous job!

Sylvia
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010

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#6 Bubba's Mom

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Posted 30 December 2011 - 06:30 AM

He did a wonderful job! You must be very proud of him?

#7 Ginnie64

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Posted 30 December 2011 - 08:00 AM

You should be very proud of your son. That was great.

#8 Hailiesmom08

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Posted 30 December 2011 - 09:29 AM

This is very cool!

#9 domesticactivist

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Posted 30 December 2011 - 09:34 AM

Thanks for the positive words, everyone. This was a big step for him since he likes to just be one of the guys with his friends. I was surprised he wanted to do it and am very proud of him!

#10 diandliam

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Posted 30 December 2011 - 11:44 PM

you should be proud! What a great lad and a great mum!

#11 IrishHeart

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Posted 31 December 2011 - 08:53 AM

Fantastic!! Kuddos to you and your son. Give him a big hug from all of us!

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.