Celiac Disease. Me?
Posted 30 December 2011 - 11:41 AM
Thanks to anyone who finds this and responds.
Posted 30 December 2011 - 12:01 PM
And yes, you are reacting normally. This signals a huge change in your life, and change is always both scary and exciting. Hang out on the board for a while, read other people's posts, and wait for some responses to yours.
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Posted 30 December 2011 - 12:04 PM
Good afternoon everyone! I found out last night that I have Celiac Disease. Last night and this morning I was literally laughing about it. It seemed to be a joke to me, It didn't really hit me untill my husband left for work and my son is at camp I dont usually have any quiet time. As soon as I was alone I started crying. I don't understand this I have felt sick for so long and now a miracle has happened I found out why. Although I found out why, why am I so upset. Please tell me if I am responding to the news normally I feel like the bottom just dropped out from under me. I don't even know where to start! Please someone give me some advice words of encouragement or something. Because right now I really wish for someone to tell me it won't be so bad. I hear Gluten Free diet and I automatically think never having bread again or cereal or pasta and those are staples in my diet how do you live without these things... I though whole wheat and grains were good for you now I find out that they are extremely bad for me. The doctor is doing a Biopsy does this mean I may have cancer. Oh my God, I don't know what to do with this news!
Thanks to anyone who finds this and responds.
Thank you so much for the encouragement and kind words. I really appreciate it! I plan on being on this blog alot!
Posted 30 December 2011 - 12:11 PM
mother to 4 great kids, 32 years old
Gluten free since Nov 2012
Posted 30 December 2011 - 12:26 PM
Posted 30 December 2011 - 12:48 PM
It's a big adjustment, but there are tons of people here who are doing it successfully every day. Your will function so much both physically and mentally when you remove the gluten from your diet. You can do it!
Posted 30 December 2011 - 12:52 PM
Let me tell you, I am a foodie! I love to cook and I love to eat good food. The Celiac diagnosis had me railing and crying at first. Then OMG! I realized I felt sooo good. I could quit locating the bathroom in every store I entered. Truthfully, I do still get upset occasionally when everyone else is scarfing down something forbidden to me. That is very normal.
Do stay with us here. We can help you transition from "How am I going to live this way?" to "No big deal." Don't hesitate to ask us here for product brand names, recipes, eating out strategies or any of the other thousand qestions you will have. Help is as near as your computer.
Good luck to you. You have taken the first step toward health. Your attitude will make or break you in your quest for living happily without gluten.
Posted 30 December 2011 - 01:40 PM
Posted 30 December 2011 - 01:59 PM
Posted 30 December 2011 - 06:44 PM
If it makes you smile, I like to tell my friends who are freaked out by my "difficult" diet that champagne, truffles, Russian caviar, and pâté de foie gras are gluten-free.
I eat well. I love making homemade soups with long-simmered broths like the bowl of beef vegetable soup I'm having tonight. I make Indian food, or gluten-free versions of classic recipes like beef bourguignon and chicken cacciatore. Almost anything homemade can be done gluten-free.
Where do you start? With plain, old-fashioned whole foods. Go to the grocery store and get any fruit or vegetable that looks good. They are all gluten-free. Get some plain meat to cook, and grab a bag each of plain rice (not a flavored mix) and potatoes. Make sure you have some extra-virgin olive oil and balsalmic vinegar for salads - it's easy and naturally gluten-free. Pick up some eggs for breakfast and plan on making hash browns or home fries since it's the weekend. You can have milk, Yoplait yogurt, and natural cheese but if your stomach is really messed up skip the dairy until you heal some.
There are hundreds of meal ideas in this thread to get you started.
And our breakfast thread.
Posted 30 December 2011 - 07:49 PM
The biopsy has nothing to do with cancer. Instead, they'll do an endoscopy and take samples from your small intestine to see how much damage has been done to the villi that line it. If it doesn't come back positive you should still go gluten free. Damage can be spotty and maybe you're one of the lucky ones that doesn't have too much damage yet. Getting these results now may help your doctors track your progress in healing later!
The diet takes some adjusting to. A bigger adjustment is looking out for cross-contamination. You need to get serious about making sure your food doesn't come into contact with gluten. As for the breads and pastas, there are lots of them out on the market, and you can make your own, too.
Especially while in the initial healing process I think it's best to stay away from those "gluten-free" processed products. Our family has gone to a totally whole-foods, grain-free diet and we are very happy with it and feel so much better than we did when using the "gluten-free" stuff. But if you just can't see giving those things up right now, rest assured, gluten-free versions are out there.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
Posted 31 December 2011 - 12:05 AM
8 Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. 9 Whatever you have learned or received or heard from me, or seen in me—put it into practice. And the God of peace will be with you.
Posted 31 December 2011 - 02:23 AM
I have been gluten-freee for 8 months now and while I did a lot of two steps fwd and one step back for a while I can say I figured it out and have progressively gotten better. One of my docs is onboard and that helps alot. I no longer cook anything with gluten in it. My family loves the gravies and baked goods I make. I felt deprived at first......my system was really tore up and I had ALOT of healing to do so I stayed away from even the gluten-free products to allow time on a whole foods diet to work on my body.
Hang in there!!
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
Posted 31 December 2011 - 08:55 AM
it's a process, but it's totally worth it. for me, soooo many other things cleared up: vertigo, asthma, headache <i didn't even realize i had it allll the time until it went away, joint pain, fatigue, etc...
i am at about a year and a half - still have the occasional glutening, but never have i cheated purposely. that's how much of a difference this diet has made in my life
oh, and in the beginning i skipped the dairy and i still stay away from soy as much as possible. start out (as others have advised) "plain" - naturally gluten-free things like plain meat, veggies, etc - rice helped me alot in the beginning (good thing family likes rice!) also, i don't know where you live, but if you can get udi's bread or rudi's bread, that helped me SO MUCH to just make a sandwich whenever i wanted. also, tinkyada is the pasta that is most like the wheat pasta we are used to. lots of cracker, cookie, etc gluten free substitutes out there, but they cost a mint. easier and tastier to make your own!
good luck, you will be fine.
misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010
i'm down here in the well, looking back up at the hill
well, thank heavens i fell, i must look more like myself.
everyone is so kind, everyone looks like
a long lost friend of mine.... - 'up from under' - the wallflowers
have a nice day
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Posted 03 January 2012 - 10:58 AM
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