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Lower Back Pain
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I have wondered if anyone has exsperianced lower back pain along with bloating, it seems like when I have eaten gluten foods that cause bloating , I also have a severe lower back ache, when I was super strict and ate only gluten free, the back ache went away.

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Oh yes indeed! Ugly low back pain. :(

Severe pelvic pain throughout.

(I have major joint/bone/muscle pain from celiac but it is LESS

since being gluten-free.)

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I had Lower Back Pain before I went Gluten Free, along with many other pains....

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Count me in too. Had serious low back pain, more so on the right side. Eating bananas and taking magnesium (500 mg) really helped.

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Yep. I have a couple of degenerating discs that present ongoing issues. Interestingly, when I went gluten-free, my back pain lessened. Totally was not expecting that, since I knew there was a clear cause for the pain. Nevertheless, I could sleep on my stomach again, which I hadn't been able to do even after spinal injections and PT. Now it seems there's a pretty clear connection between the times when it flares up and gluten exposure. I get headaches and GI stuff first, then the back and the other joints jump in on the second day.

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Thankyou everyone who answered about the back pain ! I have never asked anyone before if they suffered also, it is encouraging to hear others say it lessens with strick diet ! I am encouraged ! Thankyou !

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Wow. Thank you for posting this topic. I, too, get joint and muscle pain (and fibromyalgia flares) from eating gluten, but never connected the low back pain into the mix. I have degenerating discs in my lumbar and cervical spine. Of course getting glutened would make that pain worse. Duh! (gentle head smack!) :lol: I will pay attention now to that connection. Yet one more reason to be even more careful.

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Wow. Thank you for posting this topic. I, too, get joint and muscle pain (and fibromyalgia flares) from eating gluten, but never connected the low back pain into the mix. I have degenerating discs in my lumbar and cervical spine. Of course getting glutened would make that pain worse. Duh! (gentle head smack!) :lol: I will pay attention now to that connection. Yet one more reason to be even more careful.

I also have the fibromyalgia flares, and till you said it, I would never have linked it with the gluten ! Thanks,

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I've had pain up and down my back for about 8 years. Lower back pain is the worst. I also have GI problems associated with this. Tried chiropractic, had 5 epidurals, mobic, accupuncture. I've been through it all. I've been off gluten for 3 days now and I'm really feeling a lot better. I hope it lasts. Needs some relief. So tired of being in pain.

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Yes and it feels like my internal organs are petrified into rocks.

Good luck and read the labels - even when it says gluten-free!

Best of luck,

Cali

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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