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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Itchy Scalp, Laundry, And Shampoos
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9 posts in this topic

Hi Folks,

I have had a problem with dry itchy scalp. I was wondering if someone could tell me if this is an external or internal issue. I had joined the "No Poo" )(no shampoo) movement after using a few shampoos made my scalp itch and I broke out in severe hives around my neck as head as well.

I've been using baking soda and vinegar and even borax but to be honest my hair feels both oily, dry, and disgusting. The itching is getting worse and I know of a few gluten free shampoos but I'm not sure if it would work or not. To be honest, I haven't been on my gluten free diet either. I've also had all menopause symptoms.... I'm thinking premature ovarian failure only at age 24.

Is it caused by external or internal? I'm so itchy and I can't say I'm a pro at this! I'm still learning. I was diagnosed 3 years ago along with my mother. (Who is also suffering from the same problem, now losing her hair.)

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Have you had your thyroid checked? And if you think you're pre menopausal are you seeing a GYN or Endo? Have you had your vitamin levels checked?

And if you are Celiac and are not on your diet there's a very good chance it's internal (assuming you've eliminated gluten and other known allergens for you from body care products).

Only way to know is to get back on the diet and find out.

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Have you had your thyroid checked? And if you think you're pre menopausal are you seeing a GYN or Endo? Have you had your vitamin levels checked?

And if you are Celiac and are not on your diet there's a very good chance it's internal (assuming you've eliminated gluten and other known allergens for you from body care products).

Only way to know is to get back on the diet and find out.

I haven't had my thyroid checked in a few years. I am probably low on vitamins. I do take ferrous sulfate daily.. I think I may be premenopausal because my menstrual cycles have cut down to only lasting one day and I am definitely not pregnant. I've had the hot flashes, cold sweats, anxiety, NO libido at one point (that parts fixed),etc. I have a history of eight miscarriages as well which is why they tested me for celiac disease.. most of which blighted ovums. (I do have two beautiful children now though) I don't have health insurance currently but I am working on it now..

I'm starting the diet today as my new years resolution. :)

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Nizoral shampoo will knock that itch out I'm not 100% sure if its gluten-free It's about $15 @ walmart/walgreen's.

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I haven't had my thyroid checked in a few years. I am probably low on vitamins. I do take ferrous sulfate daily.. I think I may be premenopausal because my menstrual cycles have cut down to only lasting one day and I am definitely not pregnant. I've had the hot flashes, cold sweats, anxiety, NO libido at one point (that parts fixed),etc. I have a history of eight miscarriages as well which is why they tested me for celiac disease.. most of which blighted ovums. (I do have two beautiful children now though) I don't have health insurance currently but I am working on it now..

I'm starting the diet today as my new years resolution. :)

I would get back on the diet before you assume you are going into menopause. You probably are having hormonal issues, the question is WHY??? Gluten is probably playing a huge role. Celiac is a common cause of infertility as you well know, and I know I certainly have sub-par hormone levels.

I'm very sorry to hear about your miscarriages.

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I've had the hot flashes, cold sweats, anxiety, NO libido at one point (that parts fixed),etc.

Those things are definitely gluten related for me. I've been gluten-free for about 3 1/2 months now, and I still have itchy skin. I test high for Chronic Urticaria, which for me is itchy skin (and scalp) and wheals-- what look like little mosquito bites mostly on my arms and legs. Anyway-- many of your symptoms are gluten related. Be really strict with the diet and you will see a dramatic change. Also, try to get your nutrient levels up, that can certainly wreak havoc with your body.

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my hair feels both oily, dry, and disgusting
.

Psoriasis??? Psoriasis is an autoimmune disease that can be associated with diabetes and other autoimmune diseases such as Coeliac Disease.

Scalp Psoriasis [scaly patches or red lumps] can extend beyond the hairline onto the forehead, the back of the neck and around the ears. Over-the-counter tar shampoos and shampoos containing menthol can help reduce itching. Medicated shampoos, which treat the scalp [not the hair], are also available. There are prescribed drugs also ..

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I think I may be premenopausal because my menstrual cycles have cut down to only lasting one day and I am definitely not pregnant. I've had the hot flashes, cold sweats, anxiety, NO libido at one point (that parts fixed),etc. I have a history of eight miscarriages as well which is why they tested me for celiac disease.. most of which blighted ovums. (I do have two beautiful children now though)

Hi

I am so sorry you are suffering this at your young age. I am pretty certain that gluten messed with my reproductive system as well. It took quite a while for me to conceive both my children, but had no other problems. Pre-menopausal symptoms seemed to kick in in my late thirties, and cold, anxiety and varying libido have been constant companions throughout my twenties and thirties. In my forties the furnace started and my periods stopped for about 6 months. They restarted after a short spell off gluten due to medical treatment for something else and hormone treatment for ovarian cysts. Then the furnace restarted and my periods stopped again after another year or so. Blood tests confirmed I was post-menopausal at 46. Ok, slightly early menopause, but so what? I finally went strictly gluten free in September to sort out other issues and hey-presto my period started within a couple of days, and has been regular as clockwork since. The furnace has also gone (my normal "cold" self has resurfaced), and I only have the very occasional very mild flush. My periods are now short and light, so may be a short-lived reprieve, but at my age, it all helps.

I hope your going off gluten helps you too.

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Nizoral shampoo will knock that itch out I'm not 100% sure if its gluten-free It's about $15 @ walmart/walgreen's.

I second this. It has made a world of difference for me. I use it for about three shampoos in a row, then I can use regular shampoo for a couple months before it acts up again.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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