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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Have To Take Gluten
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12 posts in this topic

I have meniere's joy.

The attacks of vertigo can write me off for up to 5 hours and I have migraines afterwards.

Low salt diet does nothing, Serc does nothing.

Stemetil seems to help, lower the tinnitus volume AND stop or prevent dizziness.

Stemetil has gluten and I am Coeliac.

Stemetil comes in a 5mg tablet would it really be that bad if I popped it every so often sometimes twice in tow days sometimes not for months? I have to take stemetil if it works.

Imagine yourself stuck a train station knowing if you stand up your will almost certainly topple over in peak hour :| Yes I definitely have to have stemetil, any thoughts? If rest of diet is strict?

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You can try taking the prescription to a compounding pharmacy to see if they can make it up for you without gluten.

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Try Dapsone, its much better

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Previous poster gave good advice. You could also talk to the pharmacist and see if there is another med that might be suitable. Be sure this is not gluten ataxia before you take the med as if you actually have ataxia the med may make it worse.

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Good suggetions above.

Have you tried a *high salt* diet? I'm serious - give it a try. I'm assuming you've gotten your b12 levels tested already?

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thanks for replies not sure I have the money for specially made medicine and dont think they even do that, if i have to wait 6 months to see an ear doctor i somehow doubt my medicine will be specialy made.

ATM my diet is gluten free and I am popping a stemetil once a week at the end of the day vertigo is utterly crippling and coeliac for the moment I am aymptomatic so i guess in this case It is wise for me to rob peter to pay paul!

Im hoping the trace amounts and so low it does nothing

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I have meniere's joy.

The attacks of vertigo can write me off for up to 5 hours and I have migraines afterwards.

Low salt diet does nothing, Serc does nothing.

Stemetil seems to help, lower the tinnitus volume AND stop or prevent dizziness.

Stemetil has gluten and I am Coeliac.

Stemetil comes in a 5mg tablet would it really be that bad if I popped it every so often sometimes twice in tow days sometimes not for months? I have to take stemetil if it works.

Imagine yourself stuck a train station knowing if you stand up your will almost certainly topple over in peak hour :| Yes I definitely have to have stemetil, any thoughts? If rest of diet is strict?

It apparently comes in different forms, ie liquid, suppository, tablet....do all forms contain gluten?

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thanks for replies not sure I have the money for specially made medicine and dont think they even do that, if i have to wait 6 months to see an ear doctor i somehow doubt my medicine will be specialy made.

ATM my diet is gluten free and I am popping a stemetil once a week at the end of the day vertigo is utterly crippling and coeliac for the moment I am aymptomatic so i guess in this case It is wise for me to rob peter to pay paul!

Im hoping the trace amounts and so low it does nothing

I noticed the way you spell celiac. Are you in Europe? IF you are be careful that you are not consuming gluten free items that are made with Codex Wheat Starch. Gluten Ataxia should be ruled out as the symptoms are similiar and those of us that have it can be very sensitive to even trace amounts of gluten.

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Obviously this will depend on what country you are in, but Stemetil is a brand name for prochlorperazine. At least in the US/Canada, prochlorperazine is also available as brand names Apo-Prochlorperazine, Compazine, Compro, and Nu-Prochlor. It may also be available as a generic. Any of these forms would contain the same active medication but may have different inactive ingredients (i.e. gluten). I realize the gluten content of medications is difficult to discern, but a different brand might be worth checking into with your doctor or pharmacist.

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I am a Kiwi and I just checked Pharmac's schedule (which usually pretty closely follows Oz). They list only Stemetil too.:( They do not take coeliac disease into account when choosing medications to list - only price.

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I am a Kiwi and I just checked Pharmac's schedule (which usually pretty closely follows Oz). They list only Stemetil too.:( They do not take coeliac disease into account when choosing medications to list - only price.

This may be a stretch but clonazepam (brand name Klonpin) has been shown to treat vertigo (off-label) at low doses. So you could try to get your doctor to prescribe it for anxiety if that is covered.

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They list only Stemetil too. They do not take coeliac disease into account when choosing medications to list - only price.

Although Stemil tablets are gluten, both Stemil injections and suppositories are gluten free. Both were prescribed for my coeliac to stop vomiting and nausea, but she went with Pramin which is gluten-free. All types of Stemil are on PBS.

Pramin contains the active ingredient metoclopramide hydrochloride which does an excellent job preventing vomiting and nausea. $5-$10 for 25 on PBS or private prescription.

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      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
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