Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Heart Palpitations/ Tachycardia


  • Please log in to reply
36 replies to this topic

#16 EJR

EJR

    Community Member

  • Advanced Members
  • PipPipPip
  • 51 posts

Posted 06 January 2012 - 09:28 AM

I believe that the heart palpitations and tachycardia (and sometimes atrial fibrillation) are caused by pressure on / irritation of the vagus nerve. This has been a problem for me for more than 30 years and is definitely food related, and for me it is associated with bloating and gassiness as well. I have several trigger foods for it in addition to gluten (corn is even worse than gluten), and it does occur when lying down most often -- the contents of the abdomen move around when we change positions and can put pressure on the heart and on the lungs, sometimes causing shortness of breath and increase in the bloating feeling. I used to get vasovagal syncope (sudden drop in blood pressure and fainting) from this pressure, but now I just get the a-fib, with associated runs of tachycardia and elevated blood pressure. It can be most disconcerting. It is definitely connnected to food and digestion, but hard to find anyone to deal with it because the cardios don't want to talk about digestion and the gastros don't want to talk about heart problems and there is no one out there to put the whole picture together. It gets very frustrating.


Thank you for this information, Mushroom. It describes very well what I also experience. I have had SVT's (supraventricular tachycardia) since I was 13 years old (now 65). I have also experienced the exact frustration you speak of with doctors (the gastros and the heart specialists). Just last night I had the problem when I went to bed so I got up and sat in my easy chair and watched TV until 2 a.m. Everytime I would lie down I would get heart palpitations. I had a lot of upper gas (also have a hiatal hernia so I suppose this doesn't help either). A friend
who has heart palpitations also has the same problem.
  • 0

Celiac.com Sponsor:

#17 peeptoad

peeptoad

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 139 posts

Posted 06 January 2012 - 09:48 AM

The TSH range is wider than recommended, but your TSH is still normal. Also all the other test results are in the normal ranges used by the lab. So the doc probably won't request more tests.

Perhaps you should reconsider original idea about palpitations being caused by food intolerance/allergies. Besides my cane sugar reaction, I also can get heart palpitations if I consume much caffeine from coffee, tea or soda pop.


Thanks burdee. If nothing informative comes from the event recorder I'm wearing, then I'll look into food intolerances. I got a little hung up on my thyroid because the nurse practitioner I saw a couple of months ago said it felt enlarged on palpation. That's why I asked my doctor for more tests. They were supposed to ultrasound, but that didn't happen either.
I don't drink soda or tea and only 1-2 cups of coffee/day and I don't notice an increase right after the coffee, so not sure caffeine is an issue. The palps are also worse at night and the coffee I only drink in the morning.

If the palpations are for sure benign (and it looks like it's moving in that direction), then I can live with them, but it would be nice to know...
  • 0

#18 Ziva

Ziva

    Community Member

  • Advanced Members
  • PipPipPip
  • 27 posts

Posted 06 March 2012 - 03:59 PM

I get palpitations (but not fast enough to call it tachycardia) whenever I eat cane sugar, which is one of my diagnosed (IgG mediated) allergens. I also get a little nauseaus when I eat cane sugar. All my other allergens (gluten, dairy, soy, egg, vanill and nutmeg) cause gut pain, bloating and diarrhea or constipation. Cane sugar is the only one that causes palpitations. I can eat any other kind of natural sweetener (stevia, maple syrup, agave, beet sugar, honey, etc.) but nothing derived from cane sugar (molasses, sucanat, splenda, brown sugar) without getting those palpitations for at least 48 hours after ingestion. My ND says he's seen several people with cane sugar allergy as well as me.


I spent the day wondering what was wrong with me. I've had heart palputations before but today had them off and on almost all day which was not "normal" and very unsettling. I got on here to see what others had to say. I'm new at eating gluten free and am taking iron and Vit D. The iron is causing some issues so I was taking Citrucel, says it's gluten free, and 60 calories per tablespoon. Tried the sugar free which contains aspartame. Didn't think about it containing the same thing as Crystal Light which I also react to but not as bad as today. Reading the posts made me realize what the sugar free was. Hopefully this feeling will go away soon.
  • 0

#19 Austin Guy

Austin Guy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 124 posts

Posted 07 March 2012 - 04:56 AM

I used to get tachycardia before going gluten free. When my heart would return to normal it would also skip beats from time to time and it felt like it was compressing extra hard at times. I've had that only once in the 9 months after ending life with gluten. My blood pressure and resting pulse have also dropped a lot.
  • 0
Self-diagnosed gluten intolerant May 10, 2011 after going gluten free May 8.
Allergic to cat dander, salmon, nuts, lots of airborne pollens and mold.
Soy intolerance August 2011
Corn and rice intolerance October 2011
Dairy and egg intolerance November 2011
Lactose Malabsorption January 2012
Coffee or caffeine intolerance January 2012

#20 Andi5

Andi5

    New Community Member

  • Members
  • Pip
  • 5 posts

Posted 09 March 2012 - 01:13 PM

Though I'm not diagnosed Celiac, I used to have palpitations. After reading an article by Dr. Gott I began taking vitamin B12 and haven't had them since. There aren't enough B vitamins in a multi to regulate your levels with this symptom (according to the article). Would be worth trying. It really helps to improve your energy levels as well.
  • 0

#21 Blue-eyed bandit

Blue-eyed bandit

    Community Member

  • Advanced Members
  • PipPipPip
  • 47 posts

Posted 21 March 2012 - 08:22 PM

I still get palps and what the doctors think is svt after going gluten-free. I'm hoping it'll calm down. Mine seem to be hormone related. I'll try b12 - anything is better than palps!
  • 0

#22 Roda

Roda

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,620 posts

Posted 21 March 2012 - 08:47 PM

I've been having issues in the past two weeks with tachycardia/chest pressure. Mine was caused by my potassium dropping to a very low level because of a diuretic I took for three days. So no more diuretic and the doc put me on RX potassium.
  • 0

Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#23 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 21 March 2012 - 09:39 PM

From what I have been reading in the last couple of days, it is important to keep all your electrolytes (minerals) in balance to keep the heart functioning properly. That means keeping sufficient levels of magnesium in balance with potassium levels, and possibly adding some taurine too. It is a complex thing - you can't really throw just some potassium at the problem and hope to get into proper balance..
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#24 Roda

Roda

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,620 posts

Posted 21 March 2012 - 11:25 PM

From what I have been reading in the last couple of days, it is important to keep all your electrolytes (minerals) in balance to keep the heart functioning properly. That means keeping sufficient levels of magnesium in balance with potassium levels, and possibly adding some taurine too. It is a complex thing - you can't really throw just some potassium at the problem and hope to get into proper balance..

I wish I could get someone to listen to me on that one. I originally went to the doc to see about doing something for the horrible fluid retention I have been having for the past 6 months. I agreed to try a diuretic since I was desprate for some relief. She told me it could drop my potassium levels and was scheduled for blood work in a week. I made it three days when I started having pretty severe symptoms. My potassium dropped to 3.0 (3.9-5.1) so they had me stop the diuretic and had me take 10 of 10 meq tablets of potassium over a 12 hr period then 2/day since. I had my blood work rechecked Friday and it went up to 3.5(3.6-5.1). Still low so they told me to take another 4 tablets then resume my 2/day and go back in a week for recheck. I'll be out of town so I can't get it checked until next Wednesday. It's been a mess, so has my stomach and of course I'm swelling again.

I had initally inquired if magnesium would help my legs and I was told yes, but was not recommended to take it. I was told it would be dangerous to take it unsupervised because of an article she had read. I replied that there is a lot of scare tactics out there. I had my magnesuim level checked at the same time the potassium and it was 1.9 (1.8-2.5). I'm not sure what I need to do from here. I'm frustrated to say the least and I still don't have an answer to my my swelling issue. I ended up missing two days of work last week because of all of this. I'm still having intermittent tachycardic episoded also.
  • 0

Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#25 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 22 March 2012 - 12:53 AM

I wish I could get someone to listen to me on that one. I originally went to the doc to see about doing something for the horrible fluid retention I have been having for the past 6 months. I agreed to try a diuretic since I was desprate for some relief. She told me it could drop my potassium levels and was scheduled for blood work in a week. I made it three days when I started having pretty severe symptoms. My potassium dropped to 3.0 (3.9-5.1) so they had me stop the diuretic and had me take 10 of 10 meq tablets of potassium over a 12 hr period then 2/day since. I had my blood work rechecked Friday and it went up to 3.5(3.6-5.1). Still low so they told me to take another 4 tablets then resume my 2/day and go back in a week for recheck. I'll be out of town so I can't get it checked until next Wednesday. It's been a mess, so has my stomach and of course I'm swelling again.

I had initally inquired if magnesium would help my legs and I was told yes, but was not recommended to take it. I was told it would be dangerous to take it unsupervised because of an article she had read. I replied that there is a lot of scare tactics out there. I had my magnesuim level checked at the same time the potassium and it was 1.9 (1.8-2.5). I'm not sure what I need to do from here. I'm frustrated to say the least and I still don't have an answer to my my swelling issue. I ended up missing two days of work last week because of all of this. I'm still having intermittent tachycardic episoded also.

I am sorry you are going through this, Roda, and unfortunately I don't have any solid answers for you because I am trying to learn about it myself :( I have been taking diuretics for the last 30 years, but for most of that time they were potassium-sparing diuretics, meaning I did not have to supplement potassium. Then they started switching me back and forth between potassium sparing and potassium leaching and somewhere along the way I got mixed up if I was supposed to be supplementing or not, and I ended up in atriall fibrillation because my potassium levels dropped too low. And even if your blood levels show okay, what is available to the cells can be too low. I ended back up in the hospital, I told them I had not been able to get gluten free potassium and I had been gulping bananas all weekend and they said my potssium was sfine and that was not the problem. The next morning, they said I was low in potassium :rolleyes: Now in all this, nobody every mentioned Magnesium to me and this is something I explored with a nutritionist, and frankly she gave me so many supplements that they made me nauseous and I really couldn't handle taking them all. So I just took the ones that seemed to make sense. Now, I am on another forum for afibbers, and they are repeating the preaching of what my nutrionist told me :unsure: So I just sat here and swallowed a multimineral, a magnesium tab, a potassium, a taurine, two D3's, a zinc, and then rewarded myself with dark chocolate-covered preserved ginger so that I wouldn't feel ill. :o Because I am trying to keep myself from going into afib.... I also get calf cramping when I am low in magnesium and cannot seem to absorb the minerals from my food even though I am pretty sure that by now my gut is no longer a leaky one, just not healed back to the level it should be. I also still take digestive enzymes because I don't think my pancreas has fully recovered either.

I am a salutory lesson to peeps who take celiac disease lightly, who think it might be okay to cheat (I never did that, I have never cheated) and that it is not something to be particularly concerned about.

I am left in the position of knowing I should supplement magnesium and potassium, but not knowing at what levels, and no-one would be willing to monitor my levels to the degree necessary for me to find out how to do it.
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#26 Roda

Roda

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,620 posts

Posted 22 March 2012 - 02:05 AM

Luckily, mushroom I did not go into a-fib. They did an ekg and other than the tachy, it was fine. I still don't feel quite right. I've decided that I too feel I need to supplement some magnesium. I'm going to put it to my PCP again and if I don't get anywhere with her I'll discusss it with my endo.

As of right now I'm still swallowing the horsepills, I mean the postassium pills. :P I was initally at the start of all of this put on varapamil to help slow the heart rate down. They wanted to give me a beta blocker but I refused because of past experience and side effects. I quit taking it after a week, because I felt it was contributing to my fluid retention since it was a vasodialator. It was keeping my heart rate somewhat lower, but I feel it is just masking the problem at this point.

Weird thing is when I swell up the legs are the worst(probably have some venous insufficiency), but I get fluid retention all over, after I lay down for the morning or night it is either better or gone. Then when I get up to start my normal day it starts all over again. I was told it wasn't my kidneys or my liver since all looked picture perfect on labs. The PCP somehow looking at me ruled out lymphatics and heart, but don't know how... After the swelling goes down a bit I get a lot of twitching in my legs and it kept me up last night. Hence why I was inquiring about the mag. I go to my endocrinologist in April, so I hope I can deal with the fluid till then. I am wearing thigh high compression stockings at work, and up until the weather turned warm was wearing them all the time at home with the exception of at night. I had about a 5 day reprieve when I did take the diuretic from the swelling. My legs felt good and my pants no longer cut into my waist.

I too never cheet. I have no desire to. That's not to say I havn't gotten glutened on accident. I take this disease very serious and I really have no desire to add to my collection of autoimmune diseases or otherwise.

I also had a melt down today while I was talking to my mom. I had went earlier to buy some shorts and I only tried the one pair on. I bought two other pair in a different color but same size and brand. I got them home and low and behold the two other colors(I didn't try those on) didn't fit! I was already upset I had to buy a size 16 and then have that happen on top. I told my mom I wasn't happy right now and that I was a fat flippen duck(not the exact word I used :o ) and I was disscusted with myself. I weigh as much now as I did when delivered my two boys! I never did loose weight gluten free and now I'm just gaining more. The fluid retention doesn't help, but underneath it, I'm still overweight. Oh well, I'll figure something out. Unfortunately, with this thing cropping up with the potassium and the swelling for the last six months, it makes it near impossible to exercise.
  • 0

Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#27 Blue-eyed bandit

Blue-eyed bandit

    Community Member

  • Advanced Members
  • PipPipPip
  • 47 posts

Posted 05 April 2012 - 02:31 PM

I think magnesium is perfectly safe as my ER doc and PC told me it was fine to take and helps hold potassium. I too get palpitations and it can be frightening. I never cheat either!! Anyways i would be careful supplementing potassium as too much can cause palpitations as well. Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).
  • 0

#28 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 05 April 2012 - 02:52 PM

Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).


Ahh, you see, this is part of my problem. My food intolerances include potatoes (especially the lectins in the skin), oranges, tomatoes (bye-bye V8 juice). These were all previously high consumption foods for me and probably the cause of current intolerance. And you really shouldn't have more than one banana a day. :o I do do a lot of smoothies with almond / hemp milk often, 1 banana, some frozen mango in place of ice cubes (bought by the bag from TJ's), ground flaxseed, sometimes strawberries. And I snack on almonds. So I have to rely on supplements to make up for what the diuretic takes out.
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#29 Blue-eyed bandit

Blue-eyed bandit

    Community Member

  • Advanced Members
  • PipPipPip
  • 47 posts

Posted 05 April 2012 - 04:49 PM

Yes that's tricky... I can't imagine taking potassium because I had to after an ER visit for palps and the potassium gave me intense stomach pains as well as more palps even though my bloodwork was normal after 2-3 testings. I stopped it and had much fewer palps.
  • 0

#30 mushroom

mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts

Posted 05 April 2012 - 05:42 PM

Yes, the balance between not enough and too much potassium is not easy. Add to that the problem that what they measure in the blood is higher than the amount that is typically in the cells... they normally don't account for that. .I was admitted to hospital for afib, told them it was because my potassium was low (hadn't been able to get gluten free potassium over a weekend so ate WAAAYYY too many bananas) and they tested my blood level and told me it was fine (3.5 which is marginal). Next day's blood test they told me, guess what, my potassium was low (no kidding???!!) and gave me an IV and I popped right out of afib :rolleyes: I mean, what does the patient know? They're just the patient. Ignore what they say and rely on a stupid test. :blink:
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: