Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

It's One Of Those Days/weeks/months :(


AJ Leigh

Recommended Posts

AJ Leigh Rookie

I really don't want to be a baby and whine, but sometimes it's just so hard to cope. I swear no matter what I eat it makes me sick. It could be the mildest, most friendly thing for the stomach and I end up with bloating, gas, and terrible acid indigestion. I just don't know what to do at this point. It's not a matter of "will it make me sick?" it's "how sick is it going to make me?" I've had pretty much every test under the face of the sun, from endoscopy to colonoscopy to a billion different types of blood work, and everything is normal. In fact the doctors say aside from me being constantly ill, I am the healthiest person they've ever seen.

I'm running pretty low on hope here. I don't know how much longer I can deal with day after day of joint pain, fatigue, and headaches. I've been on a very dedicated gluten free diet for just under a year and yet I still feel terrible. I just found out I am more than likely intolerant to soy, which I've also cut out of my diet, yet I still feel like dirt. What can I do :(?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

fuss.

whine.

post.

and then figure out how you will handle it.

Looks like you're doing it right. :)

Link to comment
Share on other sites
Marilyn R Community Regular

Take a long soak in the bath (adding epsoms salts and baking soda is good.) I like about a cup of salts and about 1 1/2 cups of baking soda in really hot water. And then get your mind around eliminating dairy for awhile, and what you can do with that. (It's not that hard.) There's still so many really good things to eat!

Link to comment
Share on other sites
AJ Leigh Rookie

Thanks for your reply guys :). I've actually been mostly dairy free for a long time. The puzzling thing is when I had my colonoscopy/endoscopy thing the doctor said he could tell I was "severely lactose intolerant". I hardly ever eat dairy and when I do it's in small amounts with a lot of lactaid supplements. I guess I have to quit it altogether since my stomach is so damaged :|.

Link to comment
Share on other sites
Bubba's Mom Enthusiast

If you are suspicious of soy, be careful. It's in even more things than gluten!

I got to where I am reacting to soy more and more.

I found it used in supplements..especially as the source for vitamin E. Look out for tocopherol...can be soy or wheat derived.

I've been getting nauseated after taking my calcium supplement. I was told to take calcium with vitamin D for better absorption. I looked up the source for the D in the capsule and found ergocalciferol as the source. A quick search online said it comes from soy! It's everywhere I tell ya!

Other supplements to check include fish oil, vitamin d or D3, multivitamins, CoQ10, calcium with magnesium and/or zinc (soy polysaccharide).

I hope you can figure out what's getting you and get back on the road to healthy.

Link to comment
Share on other sites
AJ Leigh Rookie

I'm beginning to think soy is a bigger problem for me than gluten!

I've got to check every med I take now for soy, which will be a pain! I'm worried about my vitamins :((.

Thanks for responding!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...