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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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34 posts in this topic

I like the chips way too much IrishHeart! :)

Hubs and I can plow through a jumbo bag in no time :lol:

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I was a huge snacker, prior to October. I don't eat a traditional breakfast or lunch never did, loved my cookies and milk late night. We always have done whole foods for dinner and still continue. Most nights I'll skip the starch and make double vegetable and a salad with the protein. Milk is still an issue, so no more cookies and milk late night, also means no cream sauces.

I do enjoy Wise potato chip @ night. My deck draw is filled with chex's all kinds, pretzel sticks, crackers, shortbread cookies, dried cranberries, glazed nuts.

I have had Gluten Free Pantry, Brownies with added coconut oil (an added fat), and 1-2-3 Gluten Free Pan Bars, these were made for me. They can add the extra calories and fat your looking for. Good luck searching, try and stick to the whole foods and ones higher in fat and calorie content. They should help you with the weight gain.

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Milk is still an issue, so no more cookies and milk late night, also means no cream sauces.

Have you not tried the almond or hemp milks? They are delicious :)

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Milk is still an issue, so no more cookies and milk late night, also means no cream sauces.

Try some So Delicious Coconut milk. In the dairy section. Red Carton. Delicious with your cookies or cereal and works well in recipes and has tons of calcium. They make "ice cream" too! gluten-free, DF, and SF!

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Oh I should not be reading these posts on an empty stomach! I am so hungry and can't decide if I'm craving crunchy salty chips or brownies more! !

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Oh I should not be reading these posts on an empty stomach! I am so hungry and can't decide if I'm craving crunchy salty chips or brownies more! !

Go ahead---have both! ;)

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I am completely addicted to Sabras hummus. I use baby carrots instead of crackers or chips...yummmmm!

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I'm also relatively new to gluten-free, I"ve only found a few things that i can have with no problems. Takes me about 20-24 hours to become sick after eating gluten and 6-7 days to get over the main effect, Flu like symptoms. Be very careful with packaged foods that say gluten free on them, seems some are not. You can try these one a day in small amount an see if they work for you.

Dukes mayonnaise, great on a banana

Kraft oriiginal bbq sauce, does wonders to baked dark meat chicken, seems for me white meat is a little hard to digest.

Kraft original ranch dressing, great for those baked chicken wings

enjoy life packaged foods i have not had any problems with, other than they can be a little hard to find.

I highly recommend before trying any new food doing a search on this forum for "gluten free (name of food you want to try)"

I think with any food moderation is the key....

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Be very careful with packaged foods that say gluten free on them, seems some are not.

I don't think that this is the problem so much as - what is the definition of gluten free? In the U.S. there is no definition yet, but a proposed definition is under 20 ppm. That isn't enough for all of us. http://www.fda.gov/downloads/Food/ScienceResearch/ResearchAreas/RiskAssessmentSafetyAssessment/UCM264152.pdf

I wish you the best finding safe foods for yourself. You may do better with items made in gluten free facilities.

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    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
    • Recovery diet, nutrition, leaky gut?
      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
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