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Bulimic Reaction To Gluten
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I am 43, I have been gluten free for more than 10 years. I was diagnosed in my 20s with Chronic bulimia because it didn't go away at the time "most girls" get over it. I now know that yes, there were some emotional aspects...especially in my teens and early 20's but mostly, it's gluten. So most of the time I am just fine and dandy. Once in a while though I'm not careful enough and I get gluten into my system. This almost invariably causes a binge/purge cycle...and I am just so very, very "over" this. Can anyone tell me the best and fastest way to get gluten out of my system so that I can reduce the reaction. Both my autistic 18 year old and I are gluten free, but my husband and 19 year old daughter are not, so there is always gluten in the house. My latest adventure involved soy sauce. I forgot to tell them gluten free at the restaurant, and decided to eat the food anyway. This was a mistake...

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Sorry to hear your reactions are so severe. :( I know about those ill-considered "oh, I'll eat it anyway" moments. I zapped myself last month with french fries from a shared fryer and I knew darned well I shouldn't eat them. Gluten messes with my mind too, though it's mostly anxiety/depression.

It sounds to me like you need a gluten-free house. Your husband can get his gluten favorites away from the house. You really shouldn't be worrying about CC at home when it makes you so seriously sick.

Some people have luck with L-glutamine for gut-healing. It seems to encourage your GI to heal faster. I also find it helpful to take some extra B-12 if I'm glutened, and inositol helps my anxiety. Is there a strong anxiety component to your bulimia? I also take natural anti-inflammatories like MSM and bromelain but I haven't the foggiest clue whether they do much. It helps the anxiety to feel like I'm doing SOMETHING.

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I am 43, I have been gluten free for more than 10 years. I was diagnosed in my 20s with Chronic bulimia because it didn't go away at the time "most girls" get over it. I now know that yes, there were some emotional aspects...especially in my teens and early 20's but mostly, it's gluten. So most of the time I am just fine and dandy. Once in a while though I'm not careful enough and I get gluten into my system. This almost invariably causes a binge/purge cycle...and I am just so very, very "over" this. Can anyone tell me the best and fastest way to get gluten out of my system so that I can reduce the reaction. Both my autistic 18 year old and I are gluten free, but my husband and 19 year old daughter are not, so there is always gluten in the house. My latest adventure involved soy sauce. I forgot to tell them gluten free at the restaurant, and decided to eat the food anyway. This was a mistake...

Hi Hedgie and Welcome!

You post kinda hit me hard. Two years ago December 21 my gorgeous classical dancer niece died. She struggled with an eating disorder, and also had some emotional issues in her youth. She enjoyed some drinking, but not to a great excess...and her system just could not handle it and shut down. We lost her. And it was tragic loss for the world.

I feel the power is in your hands or ask for the hands of others. I would advise you to be more careful with your diet, so a bulimic response is not necessary. And if you need some additional counseling to manage your eating, please do. If you need your home to be totally gluten free for your health, do it. Your gluten eating family members are old enough to deal with it. They can eat gluten outside the house and respect your health as well as your daughters, while they are in your home.

There are many resources here...take a walk around and welcome again. :)

EDIT: Skylark always has good advice, I just post slowly ;)

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Thank you, excellent idea to make the house gluten free. Now that my daughter is in college especially, I can at least have a several month period of time with nothing to worry about. My biggest problem has been that according to the doctors I don't have celiac, and I went gluten free at a time when celiac was the only acknowledged "problem" with gluten. So there is still as small voice that tells me ( it's all in your head) I think today has shut that voice up! I will try the b-12 now... I don't think that I need further counceling, especially having found this site and feeling very vindicated! I just really need to accept the fact that even trace amounts of gluten are not going to be tolerable for me.

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I am 43, I have been gluten free for more than 10 years. I was diagnosed in my 20s with Chronic bulimia because it didn't go away at the time "most girls" get over it. I now know that yes, there were some emotional aspects...especially in my teens and early 20's but mostly, it's gluten. So most of the time I am just fine and dandy. Once in a while though I'm not careful enough and I get gluten into my system. This almost invariably causes a binge/purge cycle...and I am just so very, very "over" this. Can anyone tell me the best and fastest way to get gluten out of my system so that I can reduce the reaction. Both my autistic 18 year old and I are gluten free, but my husband and 19 year old daughter are not, so there is always gluten in the house. My latest adventure involved soy sauce. I forgot to tell them gluten free at the restaurant, and decided to eat the food anyway. This was a mistake...

Hi Hedgie. I don't have any sage advice for you, but just wanted to offer an empathizing ear and pass on some virtual hugs! I too have suffered 18 years of bulimia, I am turning 30 this year and very happily married with 3 lovely children so I should not be suffering with this eating disorder anymore either. I should be over it. I found out only recently and quite by accident that I am gluten intolerant (have not been tested for celiac yet) and that some of the symptoms that completely disappeared the first time I went off gluten include: depression, anxiety, obsessive and negative thoughts, suicidal feelings, anger, irritability, feeling "out of control", brain fog, confusions... I felt these things since I was 12 years old and never understood why. My parents gave me such a hard time for being sad and depressed after I hit puberty, and I beat myself up for not being a more positive happy person, but I just couldn't be. I felt horrible all the time. It's no wonder I turned to binging and purging, food was the only thing that game me any comfort or sense of well being for a short time. It was also gluten-filled food though so it also intensified all the awful symptoms and I sensed it was some kind of poison I could not keep in my body. So after eating, I got rid of the food. After 18 years of this behavior, and then feeling normal after being off gluten, I had no need to binge or purge. When I am gluten-free now my eating disorder is just plain gone. So I understand you completely and I too consider it a symptom of gluten. Best wishes and luck in your recovery. Sometimes its nice to know you aren't alone!

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I am 43, I have been gluten free for more than 10 years. I was diagnosed in my 20s with Chronic bulimia because it didn't go away at the time "most girls" get over it. I now know that yes, there were some emotional aspects...especially in my teens and early 20's but mostly, it's gluten. So most of the time I am just fine and dandy. Once in a while though I'm not careful enough and I get gluten into my system. This almost invariably causes a binge/purge cycle...and I am just so very, very "over" this. Can anyone tell me the best and fastest way to get gluten out of my system so that I can reduce the reaction. Both my autistic 18 year old and I are gluten free, but my husband and 19 year old daughter are not, so there is always gluten in the house. My latest adventure involved soy sauce. I forgot to tell them gluten free at the restaurant, and decided to eat the food anyway. This was a mistake...

Hi Hedgie,

I have also wondered what is the fastest way to get gluten out of my system. I drink a lot of water, thinking it will help the gluten go through my system faster and if I feel like walking I walk some thinking that the gluten will be used and go through my system quicker. These are just my non-medical person thoughts :) I would like to know the answer to this also.

I have 3 college age daughters and my husband who are not gluten free. I cleaned out some cupboards away from the others and claimed them as my own and put gluten-free signs on the front of them. I also bought containers for my foods in the fridge and labeled them also. I bought all new dishes for just myself. I wash my hands a lot also because of gluten left on door knobs, or wherever....

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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