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I Think I Was Glutened!
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2 posts in this topic

Hello again everyone!

So I've been Gluten Free for one week (Due to blood tests being positive and doctors orders). Eating a lot of fruits and vegetables, proteins and rice/potatoes. I even tried gluten-free Spaghetti. (Tinkyada)

Yesterday was the first day someone else prepared a meal for me. I eat lunch at my in-laws EVERY single Sunday of the year.

My F-in-law made Potatoes, Chicken and Canned tomatoes (Rotel) in the oven. He did not use a lot of spices, only salt and pepper.

-I ate a small portion, as this was the first time eating someone else's food in a week. This was around 1pm.

Later in the day about 4pm I was feeling OK but sort of sleepy so I stopped at 7-11 for a "gas station cappuccino" I should have located the ingredients, but after reading online I thought it *should* be OK. I was fine after drinking a small cup.

For dinner (6pm) I was feeling pretty happy that I hadn't had a reaction thus far and stopped at Chipolte Mexican Grill with my husband and had a "Bowl" But I neglected to ask them to change their gloves when making my bowl, but there was no direct contact with the inside of my bowl with any tortillas/gloved hands.

A couple of hours later I started to develop a horrible migraine. I put myself to sleep thinking it would go away by morning. I woke a couple hours later with a severe migraine and feeling nauseous. I felt like the only thing I could do to make myself feel better was vomit, but I did not. I took a LONG hot shower that helped some, took 2 Tylenol and tried to sleep again. I felt so awful I woke my husband up with my crying.

Was this just a random migraine or was this because of my over-confidence in my eating yesterday? I am DEFINITELY going to be more careful from now on. I did have a migraine reaction to Barley about 6 weeks ago, so I think this is related.

To be honest yesterday I think I was starting to have Gluten withdrawals.. I was craving things I shouldn't have and trying to make excuses in my head so that I could eat them!! It could have been a disaster. I was starting to doubt that I am a Celiac... I have no doubts now.

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You are just one week in. If you have celiac disease, your body has been damaged and will take time to heal. During the healing process, you may have an adverse reaction to something. That does not mean you got gluten, although that remains a possibility.

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    • Weird things people have said
      You are right Dania, you cannot have "mild Coelic" disease and you cannot eat "a bit of gluten here and there" if you've been gluten free for a while. Coelic disease is a lifetime commitment to being gluten free, even if you don't have symptoms, it is still damaging the villi in the gut, which can lead to more serious health problems, (not that Coelic disease is not serious, because it is).  Some people may question whether it is safe to use the same colander as those cooking gluten, but it depends how well it is washed up as it is quite easy to miss bits. Personally, I bought a new one and I would definitely not use the same sieve as the mesh is far too tight not to collect  small amounts of gluten. I'm not too surprised at doctors not knowing all they should know about Coelic disease, it's the same here in the UK where Coelic UK actually advise doctors on the disease. 
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      I've had people say strange things about celiac to me lately... Like someone said, "Oh I'm just a mild celiac so I don't have to worry about cross-contamination." And then someone else said that they're celiac but things have calmed down now so they can have a bit of gluten here and there. And I told my doctor that back in 2014 I thought I had been gluten free but I actually wasn't because I had been repeatedly glutening myself with an old colander. And he just looked at me like I was insane, like a colander?? Sure... I'm not crazy, right? Even if you have no symptoms you have to avoid cross-contamination because you can be doing damage internally right? You can never have 'just a bit'. And a colander is a big source of cross-contamination right?? I know all this but why do these other people not? Why does my doctor not know? So confusing and spreading misinformation... And then they look at me like *I'M* crazy.
    • fructose malabsorption and gluten intolerant
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