Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Family Troubles
0

14 posts in this topic

Hey!

I am having some trouble with my family. None of them have Celiac, and so they want to go out to eat more often. That is fine with me..... except that they want me to come. It is a huge problem on this coming up vacation to Idaho especially, and they keep saying that the hotel we are staying at is a very nice one. The chef will come out and all of that, but I DO NOT want to get sick on vacation! I would be happier if I just had a hot dog and chips or something up in the hotel room. I keep telling them that, but its like they have their ears turned off or something. What should I do/say? Should I just go to the hotel restaurant and face the consequences? :unsure:

Lisa

0

Share this post


Link to post
Share on other sites


Ads by Google:
:huh: Oh wow. I've been there. How long will you be there? I would call the hotel and tell the chef. Also, try to get a microwave in your room. You can do the cold cereal / milk for breakfast or I can send you my microwave breakfast polenta recipe. Alternatively you can do the omelette in a clean pan request at the restaurant. Hmm......lunches. The salad bar gets a bit thin after a while, eh? Don't want you to starve. Grilled fish? Baked potatoes are safe. See if they'll send you an advance copy of the menu. Isn't it lovely to order straight from the menu? You can ask for any pasta sauce (if you think it's safe) over mashed potatoes or over rice. If you can (and if you're a hermit like me) ask for the chef's e-mail address and e-mail back and forth a few times until you know what you can order. Good luck! Sandra in Toronto
0

Share this post


Link to post
Share on other sites

I'd have a real frank convo with your family about it. If they are still unwilling to compromise at times and you have to go out there are a few things you can do. When the restaurant I have to go to seems like it will difficult, I will eat something before and then bring something to snack on at the restaurant or get a drink. Sometimes I will bring my own gluten-free sauce and put it over plain grilled meat or steamed veggies/rice. Read this post below for other tips for eating out:

http://www.glutenfreeforum.com/index.php?showtopic=8851

I do not eat out as often as I once did...but I don't think it would be a good idea to "never go out and eat again..." However, I think it is a wise to take it slow on eating out if you are newly diagnosed... Knowing how to make safe choices will get easier for you in time... Good luck!

0

Share this post


Link to post
Share on other sites

You could eat what you want to eat and then go to dinner with them ans just not eat.

0

Share this post


Link to post
Share on other sites

I agree with suicidal turtle. Since I'm new to celiac disease, I've eaten at home a few times and then I'll just get something to drink at the restaurant. That way I don't risk being glutenized, but I also spend time with my family/friends. My family said that they enjoy my company at the restaurant even though I don't always eat with them.

:) Jen

0

Share this post


Link to post
Share on other sites




How about another perspective?? :D I think you sound fearful and like you're withdrawing. :( Now don't get mad at me for saying this... but I think your family is looking out for best interests -- as they see them-- not as you see them. Celiac Disease has never kept our family from going out to eat, going cross country, vacationing, etc. We've never glutened the celiac disease kid on any trip either... or at a restaurant. At the school's christmas bake sale...well, dad bought him a rice krispy treat made with regular MALT filled rice krisyps. :o Anyway, if you were not a social person who enjoyed going out to meals with friends and family BEFORE your dx, then fine. Stay in your hotel room and be safe from every opportunistic gluten crumb out there. If you were a social person who enjoyed the company of friends and family prior to your dx and going out for meals with them was a joy... Then you need to think about that and maybe consider that you're in those bluesie justbeendx stages of a life changes disease. Depression is sneaky. Could you be showing signs and symptoms of that that your family is trying to counter? :unsure:

0

Share this post


Link to post
Share on other sites

I would bring stuff along and eat before you go out with them. You could always just order a drink then and not eat because of cross contamination. They may not understand but don't let them pressure you because you will be the one who pays if you get glutened and that just would not be good.

If you do want to eat there I would definitely make a call ahead of time to see if they can accomodate you and have a good policy.

0

Share this post


Link to post
Share on other sites

Thanks for the help, guys! I'll try your suggestions!! It sucks though because I do WANT to eat with them. I would be happy if I could just heat something up before and then just have a drink at dinner, but we will not have a microwave. <_< Do you think that the hotel will let me use their kitchen???? I guess it can't hurt to ask! :D

0

Share this post


Link to post
Share on other sites

I think that it's entirely understandable that you wouldn't want to eat out--I didn't either. Now I have everything under control and no gluten in my regular, everyday life. Three months in, you're still learning, cutting, etc. It is often suggested (by support groups, others) that you not eat out until you've completely healed and such. This way you'll know if you mess up and you'll feel more comfortable. I would eat out now, but not two-three months into the diet.

0

Share this post


Link to post
Share on other sites
I think that it's entirely understandable that you wouldn't want to eat out--I didn't either.  Now I have everything under control and no gluten in my regular, everyday life.  Three months in, you're still learning, cutting, etc.  It is often suggested (by support groups, others) that you not eat out until you've completely healed and such.  This way you'll know if you mess up and you'll feel more comfortable.  I would eat out now, but not two-three months into the diet.

<{POST_SNAPBACK}>

Wait.. do you mean two-three months into feeling better.. or actually having the diet?

0

Share this post


Link to post
Share on other sites

I meant the diet, but it could be either. Seven months in I didn't want to eat out, either, because I still felt just as sick. So at least a few months, maybe more if you don't feel well yet.

0

Share this post


Link to post
Share on other sites

I'm not a teenager but I thought I'd throw my 2 cents in.

I don't think you need to be so scared of eating out. I've been gluten-free for less than 2 months and I eat out in one form or another every day. Part of my job is being social and going out for lunches. The people I work the closest with are all aware of my situation so while they have started to jokingly refer to me as Meg Ryan I just make sure to ask plenty of questions before ordering and go with what is most likely the safest items. For instance if we are just grabbing something from a deli I make sure we go to a deli that has Boar's Head cold cuts and have them wrapped in lettuce (making sure they prepare it on paper rather than just the counter). Or if we go to a restaurant I'll order a burger with no bun (and make sure they don't add breadcrumbs).

Ofcourse you need to be careful, but in my experience so far most restaurants are very accomodating and very careful once you tell them that you have a food allergy and are not just being a pain in the butt. (I know it's an intolerance but I find people understand better if you describe it as an allergy).

0

Share this post


Link to post
Share on other sites

Really? Every time I tried describing it as an allergy they were afraid they'd kill me and closed up. If I tell them it's a digestive disorder they were less afraid and more willing to help.

Has anyone out there got tips on carrying food in the backpack or purse? i.e. spill proof bottles for gluten-free soy sauce or salad dressing?

Also, just a comment re: the bread basket. It's getting easier to say "no bread for me thanks". Wait staff seem to hear it all the time from the low-carb crowd.

0

Share this post


Link to post
Share on other sites
Ofcourse you need to be careful, but in my experience so far most restaurants are very accomodating and very careful once you tell them that you have a food allergy and are not just being a pain in the butt. (I know it's an intolerance but I find people understand better if you describe it as an allergy).

<{POST_SNAPBACK}>

Yes, in my experience people take it more seriously if you describe it as an allergy.However, I learned that saying an autoimmune disorder will get their attention too. Alot of times I will say that gluten will tear up my intestines and can put me at high risk for cancer and other things and that I will die prematurely. That pretty much gets their attention if I say that and some have questions about it and some don't

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,380
    • Total Posts
      917,558
  • Topics

  • Posts

    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
    • Newbie: mother to coeliac kids
      If I am rembering correctly,  Marsh 4 is the worst damage.  So he should avoid dairy products like cheese, milk, butter, cows milk ice cream for a couple of months. celiac damages the tips of the villa that help to digest lactose ( which is in most dairy).  Being unable to digest dairy will lead to more bloating, gas, etc.. 
    • need advice
      I'll keep this as short as possible, sigh. I remember having constipation all the time till i was 10 or 11 then i started getting diarrhea all the time. Ive never been able to pin my diarrhea to a certain type of food it always has been at random. Or it seemed that way. Sometimes ill have normal BMs for a couple weeks then diarrhea for a week or normal for a day or two diarrhea for a day or 2. I started getting tingly numb hands this year, i get sick all the time, i had one rash on my stomach i couldnt get rid of for years the doc said was dermatitis. So many more symptoms that line up with celiac. Heres the beef though- 7 months ago i had my first panic attack ever. I thought it was triggered by giving up chewing tobacco and the withdrawals coupled with stress at work and being a new dad but after reading about the connection between gluten im not so sure. The past 7 or 8 months have been hell. Constant anxiety, i dont get as kany panic attacks as i did in the beginning but now im suffering from depression. So, i started gluten free 2 days ago. The second day i started having horrible anxiety and a panic attack like my first one. Extremely intense.  Is that a sign that maybe i do have celiac or intolerance that coming off would make symptoms worse? I want to get tested but ive been to the ER 3 times and seen so many docs, psychiatrists and therapists trying to figure out a cause, i cant afford anymore. I dont think i can just one day bam! Have all this anxiety without a cause. Can i just do my best to stay gluten free and see what happens or is it very important to be tested? Also, will any gastro be able to test me? If i go to a gastro should i even bring up the anxiety and depression? Everytime i do i get a response similar to " its all in your head " and they just want to throw pills at me. I'm so lost to how my life got so messed up in 7 months. I need this to be the answer.
    • Newbie: mother to coeliac kids
      Until he starts getting better he really needs to stick with soft, bland foods. I put a mashed potato soup recipe in the recipes area. What is healthy for a normal person isn't necessarily good for an inflamed digestive system. Anything spicy, acidic should be avoided. Fruit is acidic. I've read that pickled cabbage is good, but you couldn't pay me to eat anything pickled when I was nauseous. Things that I think would be safe are: broth mashed potato soup (the am. cheese and butter make the broth taste great) Baked potato mushy meatballs, no spices other than salt low fat vanilla ice cream with whey in the ingredient list   If these things work out try adding summer squash cooked in olive oil, add salt Summer squash tastes good in mashed potato soup.   Twice as many small meals are easier on your digestive system.   I am not a doctor or nutritionist, just been there, done that, want to help.  
    • Newbie: mother to coeliac kids
      I've just had a call from out GP with biopsy results. She said it confirmed celiacs and has a March 4 level. Does this sound correct?  She said she expected it given his antibodies were the highest she had ever seen.  We have an appointment on Friday for follow up. At least we know for sure now. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,519
    • Most Online
      1,763

    Newest Member
    lesleeann
    Joined